Hi

It is so nice to see such positive reply,s to Mari.No matter how many people tell you there is light at the end of the tunnel,you find it hard to believe until you can see it for yourself plus we all know how this illness can change to become a fight for your life.no matter how old your children are,you still worry how things will turn…[Read more]

Hi

I can only tell you about my hubby,admitted with AKF,but kidney function improved,after a few blips,pneumonia which left him with wholes in his lungs plus blood clots,resulting in injections for 8 months, finally,referred to Kings for SCT.

Had SCT,but a reduced dose of chemo,enough to do the job,it worked SCT successful .
He had 2…[Read more]

Hi Rob

Do not worry. About the tube it is the least of your worries,one would have been fitted later for SCT it actually makes your life a lot easier,on normal treatment they go in to veins every time often they collapse,some like my husband it takes a number of tries,so a centreline sounds much better.

If you are looking at all…[Read more]

Hi liz

Now Slims in remission and off treatment,I find I am posting less,but I like to keep up with what is going on also if you have not looked at the site for awhile you do loose track of what is happening to people,plus all these new people coming on,if they felt anything like
I felt when Slim was first diagnosed,they need lots of boosting…[Read more]

Hi Rob

Just to welcome you to the site and wish you well on your MM journey.

Wi th you being based in London you will have some of the best experts and treatments available ,we are Kent ,but my husband went to Kings for his SCT,also to. Have a choice of trails,my husband did MyelomaX1 trials,CTD randermised,which did not work,so straight on…[Read more]

Hi Everyone

Well we made it,and when I learn how to put pictures on here,you might see some.

Has taken a fair time to get over the flight home,at the moment Slim is doing better than me,he,s waiting on consultant for the ok,it's a bit of a worry every 2months wondering if its all ok,as Slim is one of these people that it no longer shows…[Read more]

Hi Maureen

My husband did 6 cycles after CTD failed for him,tolerated it very well,went on to SCT and is now in remission .hope every thing goes well with your husband.

Time soon passes,the worst thing was having to go to the hospital bloods in the morning then home and back again twice a week,use to look forward to the week off.Eve

Hi Sue

How are you,??? Just to let you know,we are thinking about you,do not worry if you cannot reply,everyone understands.Love Eve

Hi Tina

Would agree with Tom,you have along way to go,Slim has the same problem,try sucking sweets helps with moisture ,Slim is getting a bit better,but sometimes he goes to speak,and because his mouth is so dry,he does not make sense.Always carries drinks with him no matter were we go.Eve

Hi Jo

How are things going??? The Velcade is not so bad,just all the hospital visits !!!

Hope you are managing to get out and about,and results going in the right direction Love Eve

Hi Lesley

It is very frightening

when you get that final answer,but we felt after months of not knowing what my husband had a sense of at least we know now,although I did burst in to tears at the doctors surgery anger was the next feeling why did the doctor not listen to me when I told him how ill Slim was,it took another doctor in the…[Read more]

Hi Steve

When are you taking the Dex,should be early in the morning as possible,it did make Slim argumentative,so certain he was right,plus became anxious at my driving luckly he did realise it was the Dex,It gave him a good appetite for a few days,so that was good.
The bad thing about it,is it mask infections,so you have to be careful and…[Read more]

Hi Wendy

Nearly missed your post!!! It would be easy to say not to worry,but after enjoying so much freedom from MM,it must be very depressing to think you have to start treatment,lets just hope it's a bit of a blip,if you start preparing yourself for it,it will be like livening on a roller coaster,Slim takes the attitude if you cannot change…[Read more]

Hi Daniel

You have come to a good place for information,and you and your dad can be assued people will give you all the help and support they can.

Please get it out of you mind how long,!!! It sounds bad but there is so much treatment these days,as you know it is treatable but alas no cure,it buys time,your dad had a good response first…[Read more]

Hi Keith

I can understand why you are feeling down and the whole thing must be so tiring ,ask you self how you would feel this time of the year without having MM.most people feel a bit washed out,cold weather rain,and with you the added trips to the hospital,
I would try to look on it as just a blip,we all know how even a cold can effect…[Read more]

Hi David

You would have been first to put your hand up.David,we all want the same thing,a cure,David Ian sure before your time is done,new trials will be coming along,and I believe passionately this is the way to a cure,saying that it,s Slim who takes the Drugs

My admiration goes out to all myeloma patients,even the ones who decide no…[Read more]

Hi Peter,

Just to wish you good look with SCT,not very nice at the time,but if you achieve extra time it,s well worth it.

A few tips for you,take your own mug in,as hospital vessels not big enough,take old clothiers that can be dumped,I can assure you if you do have any accident s your wife will not want to take your clothes home,physo…[Read more]

Hi Babs

my husband had his SCT,on X1 trials,then was randomised for no treatment,at first,with the knowledge of no treatment follow up,it felt very strange,but now we are looking at it as a bonus after 2 years of constant treatment,he attends hospital once every 2 months for Zometa,and at the moment consultant once every 2 months,this gives us…[Read more]

Hi Maureen

I would not base your knowledge of one department on were you should have treatment,your husband ,s treatment for spinal work,might be different from the cancer unit,some have just designated wards and some are better than others.
My husband had a choice of 3 local hospitals for treatment,we chose the one first attended as he had…[Read more]

Hi Peggy

Sounds if you have had a bit of a do,do not rush getting out if you are not right you will only find yourself back in,in no time.

As for the comb over have a word with a nurse,see if they can find scissors ,must have them in a hospital,they did in my day.

Best of luck hope things start picking up for you.Eve