Hi Winston
Welcome to the club,2003 until 2012,that not bad going at all,sad you are of remission but you gave it a good run,what did you first treatment consist of. 7 years which in it.s self gives everyone on here some hope.

I would have thought as they new you were in a situation,that they new it would come back,how did it get to the point…[Read more]

Hi Polly

Well you are getting there,do not mention the pharmacy:-S :'-( >:-(,this is the one thing you will have to look forward to at the start of each cycle,in the hospital we went to they just could not get there act together,I can honestly say the drugs came up to the unit on time only once,and they would not even let me collect them,its…[Read more]

Well put Dai

I think you do go through a time when you want to scream at the world,but you do get past that,and just think we will make the best of the time we have.

Mentally over the last 2 years I have mourned and buried Slim,looking back on it,I think it was just a way of preparing myself when he was very ill.We have talked about it and…[Read more]

hi Peggy

Well all I can say is when we went up to Kings and went through the procedure with a doctor,nothing went as he said,different appointments came through some were done before stem cells taken some after!!!! Must admit i felt as confused as you,we had a similar conversation,after what we were told and what did actually take…[Read more]

Hi Cathy

Nice to hear from you,Ivan has had a rough time of it so it might take a bit longer than most to make a recovery,Slim is 5 months past SCT and is only just starting to gain weight,and still is occasionally sick.

What sickness tablets is he on??? Slim had a few different ones,its hard to eat when ever thing taste awful,if you cannot…[Read more]

Hi Jean

Sorry can not help with the low temperature, but Slim had swollen feet,as Tom said you can get socks with loose tops it helps,I use to use Coco Butter Milk on Slims feet,a massage ever night use to help,got the circulation going,swollen feet are painful.Needs to get those feet up high a pillow under his lower legs of a night,but make…[Read more]

Hi Vikki and Colin

Just popped in to wish you the best,you do not need it though,you both seem to have the right attitude,will all be over in a months time,and although it will seem a long time to get back to good health,you do get there.Eve

Hi Andy
You will get there,it sounds like a good idea to me,crack on up wards,might be worth talking to Shirley on hear,I know she has had one.
Look at Myeloma Beacon Survives people on there have been going for many years,they say it,s the nearest thing to a cure.Eve

Hi Kerry

There are books you can get to tell you all about MM if you ask Ellen the nurse I am sure she will send you some,plus what ever hospital,Melvin goes to should have given you some.

I asked and was told they do not do staging any more,which was completely different from what the books said,when we went to Kings in London,I was told…[Read more]

Hi Kerry

I have just found your original posting,full of so much detail,it does explain why you feel so frustrated and angry,I can only say I am sorry I missed it completely,like so many others.

After reading this,I think you should sit down with your consultant,and ask a few questions,the compression of the spine is not good,I do not know…[Read more]

Hi Sarah
They will not use radiotherapy on your spine unless you have compression of the spine and cannot bear the pain,chemo will do the job just as well.

Just concentrate on your tablet regime,it helps to do a board with the days and times you have to take them,as it is easy to forget what day you are on,some hospitals provide a chart worth…[Read more]

Hi Chris

All sounds good,ask your wife to bring your favourite mug in,it helps with the drinking,rather than have hospital mugs.

It all takes a few days to kick in,do not worry,nurses have seen it all before,you should be able to have a walk round when it is quiet.You will not see them much as they keep away only do what is needed,because of…[Read more]

Hi Kerry

I think Tom has summed it up,you are just feeling what we have all felt at one time or another,you will work your way through this,but find some space just for yourself,instead of being a task to walk the dog,make it a pleasure,your own space.
The only time you have to worry is when you are bawling at strangers,or crying in front of…[Read more]

Hi Mary
This thread is getting so long,it will be a record soon,IF you sign in and go to the section you want example General or Carers.Scroll right down to the bottom and you can start another discussion.

Mary Slim had a good few infections you will get use to it,first sign of low blood pressure or temp or just not very well,ring the…[Read more]

Hi Ali

Tell your mum not to rub the site after injection,this is what causes the bruising,try not to touch it,hold the tummy firm,and make sure ,to use alternative sides.

Slim has very little flesh,but never had bruising only the flesh getting a bit hard.

Polly I know it,s hard,I make a better carer than patient,I know all the theory but…[Read more]

Hi Polly
Well my advice is to go on the trials,you will be randomised for CDT or CDR first one is standed treatment second one is a new version,both available as first treatments.It is the Velcade which is second line treatment that is important,Velcade at the moment is second line treatment that is still under trials,so could be with drawn,but…[Read more]

Hi Kevin
Just come on to say good luck with your SCT,it is hard going but like most things you will feel better just takes some time.Eve

Hi Lorna

Hope you are feeling more up than down,this illness brings you down to earth,big time,but saying that it does make you appreciate what you have,in your case how lucky you are to find the man you love.
Some one once said to me life is like a card game,you have been dealt your hand and it is how you play it that counts.
I feel down at…[Read more]

Hi Pat

Glad you managed to sought you pain out,pain can drag you down,and it is the last thing you need.Tramadol is effective but again not a slow release,your own doctor will not like you having a controlled drug,plus they are addictive so watch out for side effects.

Going once a week will take away some of the strain,when Slim was very ill…[Read more]

Hi Everyone
I do not think I ever felt angry with are situation,sorry we had put off doing many things,wish we had not put them off to a later date,but that,s life,you take your chances.

In fact I felt lucky,we do not have much money but we have not waited for retirement to do lots of things,I just looked at people,s lives around me.So anger…[Read more]