Hi Tom and the family of Lappins

Will be lovely when it is 3 months appointments,already been told if we want to go away for any length of time,it can be arranged around Zomita.

It is a good feeling,just to know we are in this position,we will just be doing everything a bit slower as Slims body has taken a battering,and is still on pain…[Read more]

Hi Mavis Megan Joanne and Jean

Yes it is all good,I realised how I felt right through Slims treatment and how many people helped me through the many months with all Slims problems,We seemed to live in the hospital at one stage,and it is so nice to have this extra time to enjoy.

Jean I think Slim would be the same about going,I think they…[Read more]

Hi Tina
Well I have to say Slim never found the energy to get dressed until near the end,and lots of clothes just got thrown away,you will not expect them to be taken home.

Take things in that are around you at home,like your favourite mug,I would also take anything,that you like to drink in,as this is so important,as food and drink do not…[Read more]

Hi Joanne
Sorry you Dad is having a rough time of it,at least they found out what it was,and he is on his way to improving,just forget about the Velcade for a few weeks,just work on getting your dad in better shape and in the frame of mind to start Velcade,because that will be the last thing he wants to do.

Slim had pneumonia and was 21 days…[Read more]

Hi Jean
Yes Scrabble still on,I have 5 games on the go at the moment,I was doing so well against you,then you snuck up on me. lol

How are things with you,,4,5,6.Cycle is hard,just keep an eye out on blood pressure if it goes down,there is something amiss,so easy to miss an infection with steroids.

Will not be long before remission and then…[Read more]

Hi Gill

May I say you should be very proud of your self,because you not only gave Stephen a good send off,but you did it in style,

I have enjoyed reading your post,I did not cry but smiled and laughed,I can only say,it was like hearing you talking about Slim,even to Rod Stewart. If there is another life,you can bet he will be looking down on…[Read more]

Hi Tina
Well that is good news,it means by Christmas you will be home and recovering,have to get your christmas presents before you go in.

Slim was sorry he did not take a mug for tea in with him,so if you have a favourite,I would take it in.It will be over in no time,ask any questions you want about the SCT more advice you get helps you to…[Read more]

Hi Mary

Well everyone is saying the same you will get over this hurdle,as for felting the garden shedddddddddddd,he is going to have to slow down a bit.:-P

Mary I never take pills,but at one stage I found my self tearing a piece of a complete stranger,so that little white pill keeps my emotions under control,nothing worst than crying or…[Read more]

Hi David
IF you can get a PET scan out of them,it will show any form of Cancer outside of the bones,but they cost a lot of money.
I do not know how they will decide if Slims is coming back as they have told us only way is BMB.
Have another holiday ,then you might forget about the 3 months again.Eve.
Dai is very quiet anybody know if he is OK?????

Hi Mary

Sorry to hear about Stan,Slim was about 4 cycles on CDT,when he was rushed into hospital with septic pneumonia ,9days ITU 22 all together in hospital a weeks rest then back to next cycle tough but doable.Lot of damage to lungs holes and mass blood clots,only to be told at end of 6 cycle it had not worked and his condition was worse,then…[Read more]

Hi Cathy
Nice to know Ivan is on the mend,time for you to take a rest before the hard work begins at home.
It is hard for them to eat and drink,there taste buds are non exsistance,takes a long time for the gut and bowels to regain any order even months after Slim is occasionally sick and bowels controlled with powders,its so easy to get blocked…[Read more]

Hi Ann
swollen ankles and numbness are some of the symptoms,both will go with time.
You can buy socks that have more give at the top to make it easier to get them on,he needs to keep his feet elevated when sitting,i use to use coco butter milk from boots and massage Slims feet it does help with the feet being swollen.Helps circulation .
Eve

Hi Sarah and Henry
It is nice just to have that result from the BMB,so we know how you felt,here is were you start doing all the things that you keep putting off,have those holidays,and days out,and just enjoy your second chance.

Live your life,for all those people who are fighting this disease,enjoy it to the full.Love Eve and Slim.

Hi Min

This little one will be for my daughter,her thoughts are never far away,from Matty,she is strong,but at times finds she is over whelmed,It is usually when she does not expect it. Thanks again Eve

Hi Dai and David

Yes Dai you are right,I am impatient,it just seems to go on for ever.

David this maintenance treatment is part of the Myeloma X1 trials,after SCT you are randomised for revlimid or Zolinza,or not treatment,Slim got no treatment.

How are things going with you???? Love Eve

Hi Keith
Good to hear you are feeling better after the large doses of Dex,Slim never had massive doses of Dex,in fact after the pneumonia,they reduced it to 20ml a day on a four day cycle on the trials,so weight loss on heavy steroids still seems iffy.

Slims in remission,and on trials is now receiving no treatment,would love to say he,s…[Read more]

Hi Mari and Steve

Soon be all over Mari,but take it easy that journey alone is a horrible one,I was so tired just going up and down all those steps at the station was awful.

Slim had a driver for meds,could not keep anything down,even now he will not touch stuff he was sick on,cold milk and ice cream seemed to help.I just stocked the fridge…[Read more]

Hi Mari

I f I am correct that is a few floors up,turn left out of lift and walk down and it is on your left 2 wards through one door.!!!not very good views from windows,but bigger rooms,and from what I remember they would even do cheese on toast,bigger kitchen.It is roughly half a mile all together from Denmark Hill station.Slim was in there…[Read more]

Hi Pat
AL is similar,it is rarer,I think 600 cases a year,last time I looked and only one hospital Royal Free,there are a few people on here with both Amyloyds plus MM,they usually pop up in related conditions.

It is not knowing that causes sleepless nights,so once you do know you feel you have something to fight,Velcade works for MM.

Its…[Read more]