Hi
Found it.Eve

Hi Sue

Nice to hear from you,glad you have settled down and are coping with your diagnoses,many people on here are still at this stage for many many years,so lets hope as time goes by,your check ups will seem a bit easier.Although i know you must worry when the time comes round to be checked.

I do not think this worry leaves any one even…[Read more]

Hi Tom

Thought you were kidding when you said you needed character references,lol:-) fancy that if I had known you were serious I would have given you a glowing reference.

Any way good luck Tom although you do not need it,I hope you have ordered your mm tea shirts,if I am correct the show is based in Bristol lots of mm members around there…[Read more]

Hi Deborah
it does sound strange that your mums consultant did not offer an opinion,but I suppose if the trials are on offer at this hospital,it could be seen to either not supporting the trials,against his own believe.So I think your mum has to be very careful here.
If you go to the home page there is MUKS three trials,plus if you type trials…[Read more]

Hi Only me

I have been wondering how things were,take what ever is on offer to get you through your mums death,it is a sad thing to say,but you have a year ahead,of birthdays and lots of things knowing your mum is not there,everyone of us tread this path,and I hope knowing your mum is free from pain makes it a bit easier,it,s your Dad who now…[Read more]

Hi Ali

To me this is were the hard work begins,your mum is going to feel great about coming out,and if she is not careful will over do it.This is were she needs looking after,I found it easy to do a bit of a chart,she will be coming out with lots of tablets to take at different times,plus she needs food and drink put in front of her,does not…[Read more]

Hi Lynne

I am so sorry for your loss,this Myeloma is a hard road to take,and John,s seems to be harder than most,the last few weeks must have been some of the saddest days tinged with lots of love and memories,my thoughts are with you,and I hope,that as time passes all the good memories will makes you smile.Love Eve

Hi Pennie and Andy
It is nice to hear you are sounding a bit more positive.Do not forget any problems with AA appeal,I hate to say it but things are going to get worse before they get better,sometimes the chemo takes so much out of you.
I had to replace white carpets with laminated flooring,I will let you guess why.:-|

The more chemo and…[Read more]

Hi Gill

So glad for you both,hope Stephens sight comes back,Very tough place to have lesions,they can do wonders these days,and I can say they would not have done it,if there was chance of more damage,
As for the jag well what can one say,I have looked at those cars and my own personal thoughts are so rude an extension of a personal part8-)…[Read more]

Hi Helen
Who has not introduced her self,my name is Eve and I am a carer,have to say MY GOD,33 and pneumonia in itu leg op,and you thought you had a bad knee,you could laugh if it was not so serious.

One good thing being based in London gives you lots of scope for trials plus the best treatment that is available,
I have just come on to say…[Read more]

Hi Keith

I wish I could help you but I cannot,I know Dex does not help sugar levels,plus I know since Slim has been on chemo his cravings for sugar are unbelievable, never touched sugar before,do I put him on a fad food diet,!!!,my attitude is what ever he will eat,cannot afford to loose any more weight:-S

I know all about green tea,green…[Read more]

Hi Ali
This is the hard bit,you mum will sleep a lot,take a book to read,if the clothes are soiled just get the nurses to throw them away,this is were your mum will feel if she is loosing control,very emotional for her,the nurses understand,but expect a few tears,you keep your chin up,tell your mum she is through the worst,the nurses should be…[Read more]

Hi Dai
I would agree with you about the infection,hope you are taking a sample when you see doctor,you have to find out which one it is.:-P

When Slim was discharged from Kings he was given 200 paracetamol,bit of a shock to be given so many,as you cannot buy more than 30 over the counter,get depressed enough,they might help.:-(, I do not take…[Read more]

Hi Wendy

Good for you that's the way to go;-) Eve

Hi Mari

Glad you had a lovely holiday,and Steve,s feeling a lot better,just what was needed,when we asked about going away it was a complete no no,but are own personal circumstances would have taken over any way.

So on Wednesday I will look out for a tall man who looks if he has moth eaten hair lol,you tell Steve to look out for Slim the…[Read more]

Hi Dai

How are things going!!!!

At least you have had some good sport to watch,why you are feeling off colour,I just hope it was in your own home and not in hospital with a high temperature.:-(

Slims in today in the day unit,they are taking his line out at last!!!although his platelets are only 50 I think it is a good thing. Eve

Hi Andy

Slim says that why worry about it if you cannot change it,and he sleeps like a baby,it's me up in the middle of the night:-/

It,s the unknown that is worrying,I am sure once you go,you will feel more assured,have you far to travel!!!
Although Slim is on trials ,it was worrying to see no progress and very worrying,watching other…[Read more]

Dear Gill

You know we are all thinking of you in this bad time,so have a go all you like we do understand,you are in a position were no one wants to be in,and we all just feel for you Gill.

I hope the radotherapist can easy Stephens pain,I cannot imagin how you are coping with that,they can do wonders these days,they have machines that can…[Read more]

Dear Gill

What can I say???

Reading between the lines I have been waiting for you to post,as you say in denial,but it keeps you going,if it did not everyone would give up at the beginning,and at the end of the day Stephen and you are fighters,but some times enough is enough,it's being able to see it and accept it.

What matters now is…[Read more]