Hi Stephen
Slim had his SCT and came home on the 1st of June,since then its 2 trips to local hospital each week to check on bloods plus any extra trips for platelets,he also spent 3 days in local for fluids,plus blood and platelets,have been back to Kings who are happy with him,and want to see him in 2 months.
My own opinion is this is were the…[Read more]

Hi Jen

We all felt like that at the very start,medical jargon test results and wondering what is going on.

Some people get confused like your dad,my husband is the same,there is no way i could let him go for treatment on his own,after 18 months of chemo and treatment,he is not the person who started this treatment,it does not happen to every…[Read more]

Well i have to say Stephen,they sounded if they did a good job on you,Slims was very different.

We travelled 86 mile went to chemo out patients were he was given his chemo to help generate BMC out into blood and sent home with a five day course of injections.Travelling 86 mile back. Total 172 mile round trip to Kings London from the south…[Read more]

Hi Gill

It must be a very hard time for you at this moment I do hope they find something that will help Stephen,I do know some myeloma,s are more aggressive than others,i do not know if you remember Sharon who use to post,she had a more aggressive type.

I found it difficult to get Min on facebook,so i went through Tom or Dai they e mailed my…[Read more]

Hi Jane

Welcome to the site I am doing catch up,I loose track of what is going on,that,s why I am late welcoming you.

You sound if you have been through the mill a bit,i take it that you did not have a SCT because of age,and treatment that you have already had.

It takes awhile for energy levels to return after CDT,my husband had it then…[Read more]

Hi Onlyme

So sorry to hear your news,cannot help with your questions as Slim is behind you on this journey,lets hope the Rev works it does seem to buy that extra time,which in its own way helps you to adapt.

Sorry I cannot be much help,but if kind thoughts help,there is plenty coming your way.Eve

Hi Ian

You must be feeling a bit down,all that treatment and mm taking hold once again.i hope the velcade does the trick again and would be interested in the result as Velcade worked well for my hubby first time round,and its good to know what is round the corner.

Some times I wish I could swear on this site,and i am too old for the under…[Read more]

Hi Sue

Welcome to the site
Glad to see you managed to get some help with your questions,you should find on here if people cannot answer your questions they will point you in the right direction.

Let us know how things go with hubby remember there are people who are here to help you.Eve

Hi Sherif
I have come on your post just to say hello,and say I hope you find what you need,and wish your mother well Eve

Hi David

Its all coming out now,its not that you could not sleep,its because you did not want to sleep:-) . Must admit I have done a few champagne breakfast after all nighters the only problem was I could never remember who came to breakfast,so never kept in touch.(mess 41 commando unit) bar would not dream of chucking you out.

Had 4 hrs…[Read more]

Hi Dia and Tom

Well Tom I know I said I am just the carer,but I forgot to mention everything else,but as it would take,all day I will just except your praise:-P lol

Yesterday I took Slim to Kings starting off at 10am,getting there for 1pm and then spending hours waiting for bloods,doctor,then prescriptions ,getting away at 5pm,and getting…[Read more]

Dia

My eyes have so much grit it them,through lack of sleep,and I am just the carer :-SEve

Hi Mavis
Thanks for your wishers.

No such luck on the bloods,came out of hospital on Saturday,went yesterday to check bloods,phoned he needs platelets so back in to day,then check bloods again Wednesday,Then 86 miles to Kings Thursday.
Tried ringing Kings yesterday as Canterbury could not answer a question about injections,still waiting a…[Read more]

Hi Jen
You could be talking about my husband,except he had tumour on back,plus lesions on skull and shoulders after first CTD his bone marrow went up to 80%,so started Velcade which took it down to 6%,it was still going down,then he had his SCT and has come home,but is having a few blips on the way.

Slim has a chemo brain,I drive most of the…[Read more]

Hi Helen

I know,its just he has been here before and it took a lot out of him then,I was told then,he may never get back to the man he was,and they were right then,but give Slim his due he is a fighter,so fingers crossed.
I think it,s just me feeling sorry for myself,have given myself a kick up the bum:-P and Tom cheered me up 🙂

Going to…[Read more]

Hi David
I would agree, it just makes me wish I had put a high value on are years together 30 years together and 1 year married,I ask myself why we need such a wake up call as Myeloma to value what we are loosing.
I am feeling sorry for myself better give myself a kick up the bum.Love Eve

thanks Tom

It just what I need at this moment,a lovely man cheering me up and making me smile:-) 🙂 🙂

No they did not chuck him out,i think they have done all they can for him,because of this 100 day rule we are officially under Kings which is 86 miles away,they will keep looking at his bloods to see how he responds!!!!

I bought…[Read more]

Hi again Jeant

I was just looking through the post and thought I sounded very harsh I did not mean too, and must apologies to you.you are very worried and did not need me to tell you there is no answer.
The CRD has had good results its just about finding something that does the job,all the chemo,s have side effects and because people are…[Read more]

Hi Jo And Liz

Well my grumpy old man rang me at 8am yesterday to tell me he had been discharged so off I went to collect him,but when i got there,the doctor had made a mistake on paper work,so he had to be re discharged again by 11 he was loosing the plot,so all for a mistake in the paper work,Slim discharged himself,they were desperate for his…[Read more]

Hi Jean

Once when I was in the car with Slim,he was getting very jumpy and very annoying about my driving,he use to drive most of the time,i just came in handy when he had a drink and could not drive,but on this occasion we were on are way to hospital and he was so annoying i stopped the car.

He told me not to go any further as the car was…[Read more]