Hi Everyone
Well Tom it,s good to know I am not a deaf grey haired old lady and Slims not got a Complete chemo ,brain.my daughter came for the first meeting for a SCT and she confirmed to me its not panning out as explained.
Explained to us as 2 consecutive day of test,then decisions ,then cyclo and injections then harvest then SCT.

After the…[Read more]

Hi Bridget

Thanks for that tip,It has always been the case they are not obliged to tell you about all the help you can get,some things are very wrong with our society.

All this media attention,has increased attacks on disabled people,a couple of months ago,Slim was verbally attacked at the bank,he was on sticks and sat down,a man next to…[Read more]

Hi Gill
My fingers are crossed for you:-)
Why do men never tell you what,s going on ? Slim says it because I make a fuss and would cart him off to hospital!!!!,I call it caring !!

Lets hope its just a blip Gill,and you will get that holiday. I envy you,being able to get away,it is now 17 months since we came back from…[Read more]

Hi Jean

So sorry to hear your news,even if it is expected,you still feel the blow.
Do people take comfort that people they love are no longer suffering,or feel there is no justice that some ones life has been cut short,and they will miss so much of loved ones future lives.
You have your faith Jean,this must give you some comfort,I hope the…[Read more]

Hi
Well I have to say Dai I feared the worst,Slim has no memory ,so he has no fear,he goes into this hoping for the best,his decision ,up to now I have felt positive,started procedure only to receive a letter,with appointment for cat scan,how can they start this and then decide he has to have a scan!!!,they want us to travel 86 miles to sign a…[Read more]

hi Dai

Out of interest,have you ever seen or heard of the Zulu warrior,the reason I ask,is you mentioning the local barracks requesting rebel songs,they were banned in barracks ,Once heard and seen never forgotten.

I think the words ring true,kill or be killed.different world.time and place, keep writing,you have something to say ,love Eve

Dai

I hope you are going to put music to those lyrics ?

It reminds me a bit of the Irish rebel songs of the sixties, believe it or not the forces use to listen to them too.
Hope to hear it to music soon Love Eve

Hi Viv

I was hoping you would get some reply,s from people in your dad,s position,so I am boosting this to see if some people can help you.

People do get very tired,but you have to make the most of the times you have some energy,and make plans to go out even if its a walk round the block,all doctors will tell your dad to excise ,they chemo…[Read more]

Hi Dai
You are doing what you do best!!

I have a time it,s 4am don.t ask what I associate it with,but sure enough when it strikes 4am,I look at the clock and know the time without looking!!!

I do think about a lot of things and often wish I took a pen and paper to bed,my daughter does this every night,so you keep on with your writing time…[Read more]

Thank You Everyone
For your good wishers,very very impressed with Kings Chemo unit,it took us be surprise,after local hospital,the staff were very impressive,not one walked by looking down at the floor,and everyone kept checking all monitors.

Gives us more confidence in SCT.

Slim sleeping after busy time,next stage is harvest,so date…[Read more]

Hi Dai

Sorry i have missed your post.Rearly good to hear new treatment is working,and you have some releave from the pain.

Finding i cannot keep up with the post,think its because as things improved with Slim,my middle of the night,being wide awake has faded and now sleeping well myself,
It is lovely to hear the old Dai back again,Love Eve

Hi Tom
Well managed a few days away in motor home,but came home early Slim not to well,have been waiting on a phone call from Kings to tell us results,only to find they,did not ring mobile as requested,but left message on answer machine…[Read more]

Hi Viv

Welcome,this is going to be a big learning curve in your life ,and many times you are going to wish you are not here.There is no cure for Myeloma but it is treatable,how long a person lives depends on how they view there world,there hopes and dreams.

You have had Cancer yourself so you know the problems,We live in this world of…[Read more]

Thank you everyone for your good wishes,

Slims shattered gone to bed and I am going to follow him,left home at 9am got back just before 8pm.It leaves us a bit dumb foundered, spent a long time for test that could have been done in Canterbury,Ex ray and Heart Monitor.The rest could have been explained in a booklet.!!

Next appointment next…[Read more]

Hi Everybody
Well things are moving fast now,all dates have been moved forward.

Slim was lucky,he asked could he have anything done locally instead of travelling 85 miles to London,so they allowed him to have BMB in Canterbury.
Hoping he might be allowed to have the Cyclophosphamide 5 hr drip also in Canterbury.( fingers crossed ):-P

Off…[Read more]

Hi Paul

IT took me a long time to get Slim to claim benefits,his thinking, was he was retired.he would not get anything.
All though it was costing us a lot of money on petrol, parking,and general things that I would not normally buy,all his clothes were to big for him,plus lots of extra washing,not to mention the carpet that was ruined.

I…[Read more]

Hi Mavis
Lets hope this is just a blip and your BMB and your test comes back negative,Giving your condition you will not go on the intensive pathway,so should have a break in treatment.Slims has injected himself for over 6 months,because of blood clots,so you will soon learn

He did not loose his hair,but it got very thin,and blocked plug…[Read more]

Hi Shirley
Just replied to a post on treatment you might be able to answer a few questions???? sorry to put this on you .Eve

Hi Penny

First may I say I cannot help you,but I have replied to boost you up to the top again ,otherwise some post get lost

I think I am correct in saying Shirley has had one from a sibling and there are a few people in the process,I know Shirley does not post much,so look out for a girl in a cowboy hat LOL.I think she is based in…[Read more]