Hi Gary
Welcome to the site,as a carer i and others,have been standing,just were your standing and feeling the same as you,no matter what we say you are going to worry,but welcome to the roller coaster.Do not feel embarrassed,just feel glad you are not alone,and everyone on here knows how you feel.:-)

Please get your sister to join the under…[Read more]

Hi Terry
Come on just to tell you what BMB is,it,s Bone Marrow Biopsy.
Slim has to have them as other results do not show true readings and the only way to tell if Chemo is effective is by BMB,and general health.
Slims on a three week cycle of Velcade 2 weeks on one week off a combination of VCD on different days,just finished 6 cycle waiting…[Read more]

Hi Min
I read that article too.
I think it has long been accepted that we all hold the ingredients within our bodies that can be cancer related,how it multiplies to full blown cancer related illness is not known,otherwise we would have an answer to Cancer.

I would like to see more research relating to the individual person,considering how…[Read more]

Well done Debs
were did you find the energy!!I want some.I agree you should take it a bit easier,you must have worked very hard.have a good Christmas Deb.Eve

Hi Sarah
She is lovely Eve

Hi Jean Tom and Min
Thank you for the advice about the tooth,Slim went to the dentist the other day,was called in and sent out to fill in forms on previous illnesses and medication.in that time 4 other patients went in as slim was filling in forms.LOL.
Went in needed tooth extracting,sent to hospital for xray ,these days they give you your own…[Read more]

Hi Everyone
I have a word,that I think is a good thing on this site the word is

OPENNESS Leaving ESS
on looking at the word it looks if it is spelt wrong,may be it,s because its a word not used very often.Love Eve

Hi Sue
Do not give up,you said your self you both have been in this position before not just once,so I would agree with Bridget,Ask for second opinion.
I know it is Michael and your decision,but he would not be here today if he was not a fighter.
I wish you well what ever you both decide Love Eve

Thank you everyone for your good wishers.
had last Velcade today,so BMB next blood test and Zometa all before Christmas,and one tooth to be removed along the way,sounds a lot but it,s less than we have been doing.
No marathons yet Dai,sleeping for England in the day awake all night,normality will be a bonus,what,s normal:-P I think I have…[Read more]

Hi mari
So sorry to hear Steve, back on the roller coaster it is funny when you hit it again when Slim had his CTD and we went to see consultant,and he told us it had not worked in fact got worse we were both very calm,strange feeling,may be you get past the tears and anger first time you are told.

Velcade!!! its worked for Slim from 80% in…[Read more]

Hi Christine
My name is Eve and i am a carer for my husband,first let me welcome you to your journey,and to answer your question,yes there are lots of people ahead of you on this journey.
As you must know by now people react different to different chemo and also people have different damage to bones.

my husband had 2 vertebra cracked plus…[Read more]

Hi Everyone
It is lovely news at the moment my glass is half full!!!.
Slims been on zometa since February,the last six months every three weeks instead of four,he has not had many side effects from either CTD or Velcade.

This Christmas has to be better than the last,and this is the ,wonderful news he might just be able to sleep that is the…[Read more]

Hi Jenny
Good luck for today,I will not tell you not to worry,because we all do.
Hope you received the e-mail.!!!!!
Eve

Hi Min
How are things going with you,walking your dogs helps i do a lot of my thinking walking my dog,in Deal there is a great bunch of dog walkers there is always someone enjoying the sea air even if it is freezing cold.:-P

When Slim came out of hospital,I was the same as you,having to tell them what equipment I required,an OT told me I would…[Read more]

Hi Gina and Linda
I know it must be hard,but as a mum,I know the last thing you mum would want is for you both to be upset,celebrate all the lovely things about your mum,The goodness and kindness that gave her two lovely daughters,I bet she never told you but she was very proud of you both,mums the word, give your mum a good send off,all my love…[Read more]

Hi Jenny
I received your e-mail but have no contact to be able to contact you,I know were you live,I do not want to put on an open e mail address on line.so may I suggest if you have the time,we meet for a coffee in town,I do walk my dog a lot on the sea front if you would like to meet up this is a good way,but if you just want to keep it to…[Read more]

Hi Jenny
I would agree with most of your comment concerning team approach,from what I can gather they have a meeting on Fridays were individual cases may or may not be decided on and then you have to fight your corner.
If you go in to my profile,you can e-mail me personally as I feel when you are dealing with individual consultants its better to…[Read more]

Hi Bridget
It did not seem a trauma at the time,more unbelievable,Slim was ready to let the whole thing go,but looking back he was already in a great deal of pain because he was wrongly diagnosed.
As I was not married to Slim at the time there was only so much I could do,his mum was a very difficult woman,she seemed to upset anybody in here…[Read more]