Hi Jean
I have regretted a lot of things I have not done in my youth it is a time you can freely express yourself,as you grow older you grow aware of the TERRIBLE
looks you get from your children,when they consider you are misbehaving

Leaving BLE
Eve

Hi

My word relates to the colour hair I always wish I had,promised myself when I reached sixty I would dye my hair GINGER just to prove to my kids that I intend to grow old disgracefully,did not have the nerve!!!

so the ending is GER

Eve

Hi Sarah
How are thing going,are you still trying to come to terms with things,do not worry thing will get better, just take it one day at time,make sure hubby does not work to hard .Eve

Hi Alison
It is my husband who is the MM patient he is doing much better,just wish I had some dex to give me some energy. lol.
Good idea to ice stem cells,never thought of that,Slims lungs were not good after septic pneumonia all talk of SCT postponed now on Velcade.

Anyway so nice to hear you are back at work and doing so well,you must be…[Read more]

Hi Mike
Nice to hear from you,I understand were your coming from,but some things need to be said and told,for people who are here for the long haul,but I can understand your concerns,specially as you are the patient but as a carer,it is good to know what to expect.
having a macabre sense of humour has helped me.
Slim has been in treatment since…[Read more]

Hi
I have had the same problems but only sometimes computer also very slow,it also depends how I try to get into site.
If I try to get in from last log out that is retained as favourite I have had something like: opps google chrome cannot find site,server is not posting,when I try again through another avenue I usually get in.Eve

Hi Jim
Nice to hear from you,It is all a bit mind blowing to begin with,but it does get easier.My husband got CTD side of trials.
You just might sail through treatment and be on your feet in know time,every body is going to tell you listen to your body,it is important.
Jim watch out for Dex it does change your moods,make sure the person closest…[Read more]

Hi Min
Thank you for your reply,I must admit thought the DPA applied to paper work work as well as computer information.
What I was trying to emphasise was every one has the ability to know more about Slims illness than himself.
(As for to much information is not good or accurate) Well I would have to disagree,I think if information was more…[Read more]

Hi David
Can you just visualise the file that belongs to you.
The consultant reads it
His secretary can read it because all your results go through her
clerks can also read it,
every department that deals with individual parts of it can read that individual part.
when you go into hospital any nurse,o/t physio,doctor has access to your file…[Read more]

Hi Sue
Had to look up fish genetic testing,I actually thought this was being done in this country,as part of trials but not individually ,would be interested to know more about it,do you have much info on it? Eve

Hi Alison
So nice to see you posting ,and to know your kidney problems were resolved,good to hear you are back at work.Eve

Well I think you are all brave,you all deserve blue peter badgers just for going through this treatment,It takes guts,and to remain so cheerful and make people laugh,if you could bottle it,it would be a sell out. Eve

PS Tom;-) I am thinking he might like some of my fat

Hi Sue and Tina
I have also been wondering how you have been getting on with these trials,and wondering about a few other people on here who are not posting at present.I think it is sad,that you feel you do not like to post with news that is not so good,this to me is what this site is about,be it good or bad,people are on here for help and to…[Read more]

Hi Jo
Sorry for not replying before,been a bit busy ,with trying to get soft furnishings as decorating finished,only trouble is shows up rest of it:-P

I would like a copy,thought they might put something on here about it,Debs went but she sounds very busy.It would be a GOOD idea if Myeloma UK did videos of INFO days,for people like us who…[Read more]

Hi Dai
IT looks if Craig is the man that gets bits of my husbands body:-/more than I get at the moment LOL.

On a serious note I got the impression,that bone marrow bloods and urine go to Birmingham,which does the testing on Mm samples could be wrong!!!
If you want to speak to him look at third posting down on old correspondence will give…[Read more]

Gina
just to say good luck with the wedding,hope you have your wish come true.
If it is any help,A friend of mine,who,s husband had been told no more treatment,wanted to go on a cruise all though very ill,just wanted last holiday,doctor,s gave him steroids and he managed to have that holiday .just a thought? Eve

Thank you Ellen
For taking the time to give me a general explanation,I do realise you can not comment on an individual case,what you said I found very helpful,but brought a few more questions to mind.

The hospital my husband attends does have a PET scan also MRI,if some one had MRI scan on his spinal column only.How would it compare to having…[Read more]

I will settle for RED just remember it was a LIVERPUDLIAN who lives in the south and loves red wine and the colour red

IAN

LOL EVE

Hi
I have the same problem with expensive wine, I tend to drink the bottle instead of savouring it any wine snob would say I DESECRATED It
leaving TED

Hi Everyone
Slim does have a few marks on his tummy with needles,,he has to pinch the flesh as not much there to put needle into,I do not think I could do it day after day.Over six months now have been told that,s the least he would be on them,specially now he is on Velcade and the damage to his lungs although cat scan showed his lungs have…[Read more]