Hi David
Yes it does touch your heart,I could take you some were in this country, very much the same,my grandson goes to a school in Valance school in Westerham in West Kent.A school for profoundly special needs children the only one in Kent

When you go in there are a mass of wheelchairs with smiling children in them,some can operate a switch…[Read more]

Dear Scott
I know,I put weight on all the meals Slim asked for and could not eat,don,t like waste so the dog and I got fat,and Slim got thinner and shorter,
As for drinking, YES guilty,but realised from old,it does not help so try my best to moderate it.( a bottle a day) LOL:-P only kidding but i do understand.:-S
When I was . 30 I had a life…[Read more]

Same here Eve

Hi Everyone
Sometimes you just do not believe what can happen in such a short space of time,I do not know which is worse,1 year or 15 years,It,s never ever going to go away.I suppose we have to draw strength from any remissions and as you say sue,there are good times,
It has made me appreciate Slim more,as for bringing us close,we got married…[Read more]

Hi Everybody
Nice to hear everyone getting out and about:-)
Jean the pneumonia jab is good ,once in a lifetime but will not protect you from every type:-(
Glad to hear your enjoying Spain,and Ted enjoy your holiday to Cornwall.
Love Eve

Hi Craig
How did you manage to get sod through the senses ,you cannot say h-e-l-l with out getting your hand slapped on here:-P lol
good for you ,about getting help,don,t forget some people never ever draw there pension on here,work for a life time,and never get to collect.So take everything you can,I got messed up by pension people who lost…[Read more]

Hi Min
So glad you are looking forward to the holiday,There is lots to do there,the only thing I found was just keeping myself covered up,except in pool or in hotel,need light clothes,taxi,s can be a bit of a rip off,negotiate before you get in.Good place to buy gold.Have a wonderful time.
Do not forget to tell us all about it when you get back.:-) eve

Hi Mari
How are things going for Steve and yourself ,its all a bit of wait and see,not a nice position to be in,but it just might be a blip
Hope Steve is keeping fit on the bike,long rides might take his mind off things.As Deb say,s retail therapy is a good thing shops are full of lovely things,might be worth your while to take your mind off…[Read more]

Good Morning Every One
Susannah thank you for information and yes i will be interested on your husbands progress,it,s a good thing for us to know about new trials,and it has to be helpful to you to be able to talk about it openly so I am looking forward to see how things are going,about the Dex on MYeloma X1 trial the dose was reduced on Slim to…[Read more]

Hi Craig
Just read your post do not know if you have looked at the financial side of things,but i found this a great help,just to have someone come in and do some heavy stuff,worth looking into,Slim gets attendance allowance as over 65,but Etta at 54 should qualify for independent living allowance plus carers allowance.It means you can go to…[Read more]

EXERCISE FOR PEOPLE OVER 6O

I,ve tried this and it really works !

Begin by standing on a comfortable surface with plenty of room either side.

With a 5 lb potato bag in each hand extend your arms straight out from your sides hold them there as long as you can.Try to reach a full minute,and then relax

Each day you,ll find that you can…[Read more]

Hi Sue
Nice to hear from you,did not think I would get any replies ,so glad you proved me wrong.Must state from the start Slims is not in this position but I have no allusions,that if the Velcade does not work,which path we will be travelling.
I am not shy,in terms what the future might hold, my attitude is the more you know, the more chances…[Read more]

Hi Anna
You have come to a good place for Information and support,so may i say welcome to the club.
My husband is on Velcade,with the added complication of not knowing if Velcade is working until bone marrow taken,so bloods is the only way of telling us about his general health I get results at the start of each cycle,and it just helps me to…[Read more]

Hi Everyone
I would agree ,we need to talk about different hospitals and the general treatment we get concerning cancer it does vary from trust to trust also what drugs you might be entitled to depends on were you live.hence postcode lottery.
When you consider that myeloma is only 1% of cancers and bence jones kappa light chains is one of the…[Read more]

Hi Jo
Nice to hear from you, yes in the camper only way I can get Slim away,only going local at the moment,mainly so I can take the car it just a change of scenery takes your mind off things.
Decided to get someone to decorate as if I start it Slim will insist on helping,so clearing thing this week,and going away for awhile,painting and new…[Read more]

Hi Everyone
I can understand how you ladies feel about the menopause,I had it forced on me,they had to remove my ovaries although I was older,Did not like the idea but as I had trouble with one said the other one could get a growth on it,once i got the all clear never looked back,Lot of the tiredness went away so its not all bad,gave me a new…[Read more]

Hi
Nice to see you are doing well Bridget,ans to see that you Sharon have finished your Velcade,just looking at the way people have responded to Velcade, Dai not sleeping you Sharon tired out Slim not sleeping and no side effects,what makes the same treatment re act differently on people.
Waiting till November for a PET scan is a long time,when…[Read more]

Hi Everyone
Yes Dai it is a postcode lottery for treatment ,and from what I am hearing Nottingham does seem to come out tops.
East Kent is lacking lots of things,some patients with other forms of Cancer have to travel as far as Maidstone for specialised treatment around 65 miles one way,A friend of mine had to do it every day for a week,
The…[Read more]