Hi Gill and you also Stephen
I am sorry to hear the news,but your Stephen have the right attitude,I can see were your thoughts are,Stephen will choose his time Gill but I think he just might surprise the medical profession.i think he has lots of things he wants to do,;-)
Slim wants to go fly fishing,will arrange it soon:-S
It,s very hard…[Read more]

Hi Dai
Thanks I am fine,just feeling a bit low at this time,no reason,
Glad to hear your good news,and it,s lovely to see so many people coming on the site with lots of good news,
Just what we need after so much bad news,In some ways i hope Sarah and Min,do go on and get on with the job of living and enjoy their future,but as you say they will…[Read more]

Hi
I hope Min has taken a little time out,may be,she has gone to enjoy her grand children,if she has she will come back refreshed,and stronger to cope with all those inefficient people who do not know her situation and have no understanding of it.
Min will come back in her own good time.Eve

Hi Gill
My,Stephen is brave I suppose it is better recovery with local,and chemo should finish off,I suppose Gill with all they go through,its just part of the bigger picture:-/.
Do understand were you are coming from,to me it seems like waiting for the next episode,I do not think sct now,I just wait!! as cdt did not work,will velcade:-P.I…[Read more]

Hi Graham
If Tom can do it you can,do not think they are a strict bunch,you have different issues when your younger with families,work and money so still worth trying,they can only say NO,and that,s nothing with all the other issues.:-S
If it is any help to you,at this time your face looks ravaged and you look into that mirror,it does get…[Read more]

Hi Dai
How did the holiday go,plus the weather,must have just been nice to get away from treatment for awhile:-/
Soon passes it seems like yesterday you were saying about starting Velcade,Slims just finished second cycle,wish we had your turn round for bloods and Velcade,we do it in 2 trips.60miles all together.:-S 😛 Tried staying around…[Read more]

Hi Graham,
My first thoughts on reading your post,your 2005 and relapse 2010,and wondered how you have managed to cope with this all this time,family and friends are good,but its people on the same journey who understand.:-)
You are further on your journey,than my husband,but I can see you are going to be a great asset to this site,and I hope in…[Read more]

Hi Everybody

NOTIFY

My word for today IFY Eve

Hi Paul
My husband is on the MX1 trials,he got CDT side,6 cycles intensive pathway,some advice I can give you,is high dose DEX does disguise any infections,low blood pressure was the start of Slims,not even picked up in A&E,so do take care.Septic pneumonia has cost him the chance of going for SCT.
Now on Velcade as no bench markers to judge how…[Read more]

Hi Jo
Thanks for the information,will ring and find out how late I can book it,and check about parking.If problems with parking Slim will not be able to come,as he cannot walk or stand for any length of time.
Also not sure how he will be,1 week of 4 cycle,has hospital on Friday,I might go on my own,It is easier to go by train then tube,but there…[Read more]

Hi Dai
4.21 am,and your creative demons,are all around you,to be able to express living and death in such a powerful way is a wonderful gift ,I think you have expressed my thoughts on life ,but put it in a nicer way than I can:-)
May be they are not demons but angels,your not ready to jump on the cloud yet.

When I read this my thoughts turned…[Read more]

Hi Everyone

How about HENCEFORTH A word not spoken very much but used a lot in letters.

RTH
Eve

Hi Gill
Just to wish you and Stephen good luck,hope every thing goes to plan,and you can have a bit of a rest soon,have noticed you are another one,who burns the midnight oil,terrible when sleep will just not come:-(
The rugby has taken over from the post on here a little bit,I enjoy the solitude of the early hours,If I want to feel a bit sorry…[Read more]

Hi Gina
Glad you and your sister enjoyed the info day:-)It helps i think when you meet people who have been living with MM a log time,it gives you a lot of hope,and on bad days,you can think its just a slight hiccup,and tomorrow will be better;-)
My nearest info day will be London next year,and nearest support group is over 60 miles away, that,s…[Read more]

Hi Alexis
My name is Eve welcome to the club,i never introduced myself officially,just,joined in,Then some one put on a thread"Who the Heck are you" think you will find it in Off Topic just scroll down.I came out on that no reason it cannot be updated on.:-)
So good luck,By the way i am a carer to my husband, keep posting Eve

Hi Ivan
It does depend on what type of Myeloma you have and how much bone damage and tumours,plus lesions.some are more aggressive than others.
This is such an individual decease you cannot go on anybodies bench makers.
Did you ask why they had taken you off CDT and put you on Velcade after just a few cycles???? You would normally do at least 4…[Read more]

Hi Ailleen
Welcome to the site,i have been on here since February,and must admit in the bad times could not have managed with out it.:-(
As David says some one is always ahead of you on this journey,I am a carer to my husband,It does take a little bit of time to take in,but my attitude is i want to know everything about this MM,
So do not…[Read more]

hi Ivan
Worth checking out,blood clots one of the side effects,pity about CDT,Slims on 2 cycle of Velcade,no big side effects(touch wood).
It might seem very small ,(like a sore leg) but do get things checked out.
will not have blood clots in future with Clexane surprised you were on such a low does,you look a big man from photo,goes on weight…[Read more]

Hi Nettie
Got to say you have got some guts!!!.but understand were you are coming from,My money will be on its way to you as soon as i work out how to do it,will put it on my facebook,people seem to find it an easy way to give.
My son in law just done the three peak challenge in 24hr.in shocking conditions,the group raised 7000 for childrens…[Read more]

Hi Ted
Must admit never heard of phone appointment !!!. We can ring after 1pm for app.now have a doctor just for extra app and surgery has very early app and late app at 7am and up to 7pm twice a week.
it is getting past the reception desk is the big thing,for eg: my husband has injections which he does himself,my doctors do not like having to…[Read more]