HI Dai
I take it the kept you in?????Eve

Sorry Deb,Slims on Velcade but does not suffer neuropathy I do give his legs a good massage,but i suppose you legs are to painful to touch ,I think Dai has a lot of knowledge and scott you could try e mailing one of them

love Eve

here is my memory for today
My mum use to buy every week something for Christmas,tinned fruit and things and put them at the bottom of the wardrobe,we were not allowed to touch them.

I can remember thinking if i made a little whole in the tin,I could drink the juice,and my mum would never know i got the old fashioned can opener and put a tiny…[Read more]

Any one remember green shield stamps,i know we saved books of them,cannot remember were we got them from??? or what they bought.

As you know i come from Liverpool,known as scousers,but did you know there is a stew that they call scouse you had it on Mondays made from left over meat from Sunday,and on Tuesday you had blind scouse which was the…[Read more]

Hi Gina
Your mum must be feeling low just being anaemic ,a blood transfusion should make her feel much better,until they decide treatment.When will you know what comes next Gina.
May be if you do some research to see what other drugs they use for Myeloma it might help,Hope your mum gets some blood as nothing worst than feeling washed out,and let…[Read more]

Hi Angela
What i am saying is you cannot second guess without more information,May be the nurse on Ellane on this site might be better at explaining it than I am.
I would hate you to think your father died because he was not well cared for.
I can only tell you after every cycle bloods are checked and any problems show up and your meds are…[Read more]

Hi Angela
So very sorry to hear about your father.
It would be very hard to comment on people who are having chemo unless you know what type of chemo your father was on.was he on any special trials.
To be on the intensive chemo he must have been deemed to be fit,as your are boarder line at 65.How many cycles of chemo were given .
DVT are a…[Read more]

Min
Be positive,IT took sometime for Slims infection to be controlled,and Yes it might not have got to this stage if he had listened to you.This just might be the wakeup call Peter needs,Slim does not believe me when i tell him half the things he did( has no memory) so he says 😛
Had to take him to hospital yesterday,local,took skin off…[Read more]

Hi Min
I am the youngest of 7 as I have grown older I realise why we were all sent to Sunday school.We lived in a 3 bedroom house with just a tap in the kitchen and outside loo.even if you were dying you were sent to Sunday school,I thought it was for our mortal soul,not for my parents.

Believe it or not Min our tea came from the ships,My dad…[Read more]

Hi Bridget
I can see were you are coming from,and I can understand you superstitions, do not worry you will know when the time is right for you.
It has taken you a few days to tell us,and I do not understand why you posted in this part of the site.
You are worth alot more than this,if you had posted on treatment people would know,what is…[Read more]

Hi Bridget
I have to say it Bridget your a brave lady,very brave,were an earth do you find all this strength,and courage.It,s not just the illness it is the courage,as you go through each treatment,you manage to find a smile and help other people on this site,all though you are in a great deal of pain yourself.
In you own way you are a…[Read more]

No Tom have never been told that,I would hit them with my handbag if they
did:-P ,
Tom its just my personality,my sister says " I just tell it the way it is",as I have got older I do try to curb it because the last thing I would do is offend someone.It is also the fact that I am a scouser and they tend to be a bit abrasive.
So now you back i…[Read more]

Hi Susannah
I do not know any thing about Bendamustine trials only MX1 trials,I can only go on information I have.This is were Gaya would be very helpful,she fought hard for frontline drugs.
It is postcode lottery,you would think having roughly 3000 patients diagnosed with mm per year they would be trying to sign them all up for trials,because…[Read more]

Hi Min,
You are making me laugh,I know it is not nice,but you know I have been there before,I made up my mind next time it happens I will refuse to take him home.I liked the grassing up bit:-)wicked
I have told Slim I refuse to go though all that again,I felt so guilty I blamed myself for not calling an ambulance sooner.He does not remember much…[Read more]

Hi Min
As you know Slims on clinical trials,and must admit some good some bad has come out of it.I do not think it is wholly for are well being.
First you have to ask yourself does the consultant feel so strongly that this medication is the best he can give: the answer should be yes
Second Is the consultant just interested in advancing his own…[Read more]

Hi All
We find are senile moments very funny at times,were does the day go,looking foe keys can take up time,My husband refuses to go in my handbag,he claims he could loose his hand in there,the more we try to be more methodical,the worse it gets how many pairs of reading glasses get lost!!!.then add this Myeloma to the mixture with all these…[Read more]

Hi Gina
I was just thinking the same as Jill how are things going with your mum
love Eve

Hi Dai

Left Liverpool 40 years ago,no regrets,when I first came down here,everyone thought I was Irish LOL now I have a plum in my mouth they think I am Welsh.
I know the Isle of Sheppey,few years since I have been there,Deal name fame is they lost 11 bands men to IRA bomb,they were all musicians no threat to anyone,most 18–21 years old.
I…[Read more]

Hi Jean
He is not to bad in himself considering the ctd has not done the job for him,and now started Velcade,another learning curve, 2weeks on 1 week off just started the week off.
he is not looking forward to having bone marrow taken at end of every cycle, but that is now the only way they can tell what is going on.One minute we are looking at…[Read more]

Hi Pauline and Jean,
Jean and I have had this conversation before,you will find Pauline there are a few others on this site with partners they feel like strangling some times,even with out the illness,that,s part of them,
I think jean and I came to terms with ,what was going on instead of getting angry we took the view( their body there life )it…[Read more]