Hi David
That is wonderful news,you must be feeling so high,and its great for us to see someone turning that corner,Champagne is the order of the day,I can see you now cruising up the Rhine sun setting sitting in the stern with a glass of champagne with your lovely wife,thinking isn,t life great,just wish it was me in my moterhome on the bank…[Read more]

Hi Gill

Glad to here Stephen managed his 2nd SCT
It is awful when you are stuck at home,first the hospital,then home I felt Spring came and went with out me knowing,and Slim has not got to the hard part yet,on 5th cycle ctd.

Sleep is the worst thing my body clock woke up if Slim moved!!!!!then in the day it just went on,bath toilet,fetch…[Read more]

Dai

How can you say that,I am a scouser,born and bred!!!!! warm hearted,lovely person and if you don,t agree i will do a Margaret Thatcher on you,I will hit you with my handbag:-P

PS got a plum in my mouth now stuck some were between my wisdom tooth!!!!

Dai
i have to say it,you have a wonderful way with words.eve
P S. Slims done 22 years of yomping in Marines just told him to go and join up again, lol

Thanks Stuart
Done and dusted next has to be photo,still learning promise not to say naughty words.lol

Hi Min
You sound about were I was a month ago,and it did not help people telling me to get some rest,
I lost the plot a few times,had to go to doctors,saves money not buying gin, lol . It did help to pop pills kept my temper under control,tears stopped flowing,saved a bomb on tissues.Only take them when my demons rise to the surface.
I have to…[Read more]

Hi Min

Where are you on the roller coaster!!!!,at the moment I feel i am on a nice level bit!!!! feels like heaven.
Bridget seems to have gone off the radar !!!
I think every ones gone on holiday and left us behind LOL

Glad to see you jumped the hurdle, love eve

Hi Christin

I found i had to ask questions,information was not very forth coming,I think they try not to bombard you with lots of information. i felt if they were keeping information from me,but it is just that they do not know you and do not know what your reaction will be.As time goes on this will get easier,
Your dad has a right to see any…[Read more]

Hi Bellis
Just thought I would pop in and say hello,and offer you a welcome

I cannot help you with your posting,
I am assuming your mums twin will donate stem cells!!!!!.
If it is ,it sounds wonderful to me,I hope it works out for your mum,and someone is able to give you some help,Any advancement on treatment,is something we all like to…[Read more]

Hi Andy
I have a slight problem,and do not know who to ask so i have come to you handy Andy,

Do not know how to change my name on this site,as I now have a different surname,can you help.
kind regard Eve

Hi VIcki
We were told if have little side effects on first cycle the rest are usualy the same but everyone is different.
You do not say what type of Myeloma your dad has,they take bloods and get 2 cycle within days,Once your dad starts on bone infusions the pain will easy but in the mean time make sure you tell the clinic it is very important…[Read more]

There is all so a good side for example I changed my gp within the practice because i felt I needed someone who would listen to me.The new gp is a lady and talking to her,she told me on mondays she does her home visits in her own time before she starts surgery,i bet not many gp do that.
When Slim was going to ITU he was rambling on about getting…[Read more]

Hi Min
It makes me so mad when I read about some of the things that go on in hospitals,but glad Peter is eating,a good sign. Its all just awaiting game hoping every day he will get a little bit better.
It will get better Min,look at us,2 months on slowly Slim is feeling better every day,and does not remember much of the bad times.At times i…[Read more]

Hello Meika and Christin

Just to say a welcome to you,
May i suggest you look at the post[ a ray of hope ]then go back over the old post,you can do this by clicking on photo.
It might give you some hope and encouragement.
best wishers eve

Hi
Thought of some more stupid remarks,
When Slim was in A&E,being sent home,I pointed out his bp 60 over 40 told it did not matter!!!!!!
|Fathers Day went to barby,first time out with people for a long time,daughters sil,came over saying Slim you look rearly well,I expected you to be looking,ill and grey looking,did not comment on his 5inch…[Read more]

Hi Min
How are things going with Peter and yourself,is he starting to pick up ?
Have you far to travel to hospital ,It all takes so much energy,It is suppose to be a nice day today,although its raining right now,lets hope the sun comes out,I find things all ways seem a little bit better on sunny days.
This is just to let you know,I am thinking…[Read more]

Good luck Angelina glad you have decided what to do,if your sil says anything you tell her straight,she would not be able to walk a mile in your shoes. until you are going through this thing,no one has any understanding how it is.Can I say now you have decided to do this,make sure you put something in your boxes that has John smell on it,sounds…[Read more]

Hi MaRi

I just cannot imagine it,London to Brighton,56 miles is it,with that great big hill you have to ride up,it gives us so much hope.he must be fit.
Thank you for your post,my husband is on his 5th cycle of ctd and had complications with pneumonia,some times I just cannot see any progress,and then some one posts with such good news and its…[Read more]

Hi Keith
I think we were all wondering what happened to you,but to scared to ask,as we new you were going through a bad time,but its lovely to here you are doing well.
Have a good break away from it all,wish i could do the same [I am jealous ] Best Wishers Eve

Hi Ladies
The worst thing that was ever said to me concerned my first grandchild who has cp.I was walking him,and met a male friend who new my daughter,and was explaining why Matty was in a wheelchair.
He asked if my daughter Ruth was going to keep him!!!!!!!I often feel like coming out with comments{no hes going out with the rubbish] just to…[Read more]