Hi Eve

Packs arrived and I will take the to the local gp's and hope it can save someone in the future from late diagnosis.

Ian is getting stronger but still only getting out of bed for 1 hour to let the bed sore heal. He is getting to the gym and cycled for half a mile so it seems promising. His mental state is so much better. I am going…[Read more]

Tom

I would complain to the consultant you saw privatley and ask why you didn't get an mri scan.

Maureen

Hi Tony,
Just spotted this!
have to quickly reply and agree the staff are great!:-)

take care
Karen
x

Hi Michele,
Thanks for taking the time to reply. I am finding this a lovely friendly site. It is good to hear from people who know how it is. I had coffee last week with a girl from work, who said I look really well, which is nice to hear, but because you can walk etc, people think I'm cured (touch wood my kidneys have been ok this far). I am…[Read more]

Hi Mavis,
I am new on here and still having a look round. Had to reply to this and say here here, to being thankful!:-)
Take care

Karen
x

Good read, I would like to hear the interview.
Good news about Red wine 😀

Eve

I phoned Ellen and the packs are on their way. I will distribute them to all the local gp surgeries.

Hope Slim is keeping well and gett appropriate treatment.

Maureen x

Hi Eve and everyone,
I agree, the failings are definitely in the GPs. I was having treatment for some months at a private osteopath based in my surgery. He said something was amiss with my back and went to see my GP to recommend he send me for a scan. My GP refused and just kept plying me with painkillers. All this happened approx a year…[Read more]

I was in the cell directly facing the kitchen. I think I was green cups, (chemo brain me!)

On the 6th June, I am on a clinic/consultant. at 11.25! But I am at the lower level.
My infusion is 23rd May. (day ward). The day ward staff are really nice, but is it me or does it sometimes seem a bit chaotic?
Take care
Karen

Hi Jean,

Thanks for a lovely welcome, I'm just about to put kettle on. Milk and sugar?:-D

Very nice to meet you, hope to share stories and rants in the years to come.

I have been on here all night, well a long time for me anyway>:-) .

See you soon
Regards
Karen

ps I was offered the maintenance drugs on my last visit by Dave, it was a bit out of the blue, and I declined as I want to give my body a rest as it has been battered.
Not sure if i have done the right thing though.
Regards
Karen

Hi TonyF,
I had my SCT on 11th Jan 2013, i was admitted on the 9th Jan> . I was discharched on the 28th Jan, we missed each other by a day. I know Drs Chapman and Barton, but my main consultant is Dr Garg, I seen her a lot when i went for my vertebroplasty to the Spire hospital (husbands cover through work), Dr Rennie did op, it went very…[Read more]

Hi TonyF,
Thanks for the welcome. Nice to meet you.:-) (bit of a smiley monster)
I hope there may be times when I can somehow help or support.
Regards
Karen

Thanks Etta,

I can tell already that people are friendly.

I put my story on my profile but will copy to here.

Thanks again Etta, nice to meet you. Karen 🙂

I am a 51 year old married mother of 2 teenage girls. Diagnosed aged 50 in July 2012, with Multiple Myeloma. Changed all our lives forever. We live in Rutland, but our nearest…[Read more]

David

Can you email me the article for gp's to look out for myeloma.

email address maureen_cerdan@yahoo.co.uk

Thanks

Maureen

Hi all

We all have to complain about poor gp's and doctors. Ian's surgeon said he would back us up if we need him. He also said that Ian had classic signs of myeloma and the gp and a good physio should have pciked this up.

No SCT planned for Ian. Got blood results today and light chains now 130 but consultant said all other bloods etc…[Read more]

Hi Eve, Tom & Tom

Ian first went to his gp in April suffering from back pain and tingling down both arms with weak hands. Sent away with pain killers. Went back several times to gp as back pain increased in the cervical thorasic area and he had a lump in his back. He was sent to see a specialist at our local hospital. Specialist advised he…[Read more]

Thank you Tom.. I love this site, everyone is so positive and supportive:-) [i][/i][b][/b]