Hi

My husband started on CDT but had to stop to let a back wound heal. He wasn't tolerant of it first time but when they restarted after 6 weeks he was fine. His light chains are now 54 and he has had an excellent response. Give it another try as it really works.

Maureen

Dai

Hope you get this sorted out soon. Get an opinion from another consultant. You are quire entitled to do this.

NHS bah

Maureen

Hi Jo

Sorry to hear you have been unwell in hospital. Hope you are feeling better.

Maureen x

Gill

What a lovely photograph and Stephen looks so well. Look back on the happy times. Stephen would want you to enjoy life.

Sending love

Maureen x

Hi Andy

Great news. have a few drinks.

Maureen & Ian

Hi Clara

We live in Dunblane in Perthshire. We don't know if my husband will get a SCT.

It is a horrible disease and hard to cope with. How is your mum coping?

Maureen

Hi Tom

I would do anything to make Ian more comfortable but yes I do have to have time to myself to.

Don't know when the treatment will resume as the bed sore has to heal before we can move forward.

Maureen

Hi David

Good idea about taking the phones of the hook as most people phone me when I get back from hospital and all I want to do is relax.

Take care.

Maureen

Hi Megan

I prefer to make meals and take them to Ian. He needs lots of protein to heal the bed sore. He had a visit from the dietician and is now on another menu but I have made lasagne to take in tomorrow.

Having a night off tonight and now sitting with my feet up and a small sherry.

Maureen x

Hi Got the night off from visiting Ian as one of his friends is visiting. I intended to do some spring cleaning but after making lasagne and doing the ironing I am now sitting down with a small sherry and will have an early night.

Ian had an mri scan today to determine how big the bed sore is. We should get the results tomorrow.

Hope you…[Read more]

Hi Andy

Enjoy your holiday in Greece. Hope all goes well with the surgery.

Ian not mobile yet.

Maureen

Hi Jo

You mentioned you didn't have a SCT because of your kidneys. Did you have to take any treatment after your 4 cycles of CDT and did this give you 3 and half years remission?

I don't think Ian will be able to have a SCT so I am curious to know what happens.

Maureen

Hi Clara

Do you live in Scotland?

Good luck with your dad's SCT

Maureen

Hi David

So sorry to hear that you have relapsed. Hope all goes well on the velcade.

Maureen

Hi Eve

Hope you and Slim are coping. It must be hard when the myeloma rears it's ugly head again. How long is it since Slim had his SCT? It is a good idea to keep a diary.How about going for councelling? I have to see the same councellor as Ian this month. I will pray for you both.

Ian has an infection in his bed sore and is on…[Read more]

Hi Eve

Ian first went to the doctor in April last year with backache and in his records he said to the gp that he thought it was something sinister. The gp is quoted as trying to assure him it wasn't. Went back several times and was given pain killers each time. By June it wasn't getting any better and he asked to be referred to a specialist.…[Read more]

Hi Nerys

My husband was daignosed with mm in late October. He had been suffering with backache since April and was sent to a specialist in June who sent him for physio. We had to go private for an mri scan and that was when a tumour on his spine was detected and mm was diagnosed. Like your mum, my husband's legs started to wobble and he had…[Read more]

Good to know that a cure is being sought.

Donations are needed to keep up the good work.

Maureen