Hi Bridget
Good luck for today,hope it takes all the pain away .Eve
Hi min
I can help you on bank accounts,joint names is now considered to be your money do not worry about paying in cheques
in Peters name,Any accounts not in your name will have to go to probate as Peter has not made a Will, find a solicitor who does not charge the earth,do not be afraid to ask price and if your not happy,walk.
You can leave this as long as you want do not feel pushed into doing anything,pension from services will pay you full money for 4 months then,a certain amount after,get help through services.
I hope this is some help,if you need any more you know you can always e mail me,I will be here for you Eve
Hi Everybody and specially you Min,
It might not be the subject we want to talk about but it all helps,and gives us time to grieve.
Its my birthday today and since 9/11 I have felt guilty of enjoying it,then 5 years ago one of my sister-in-laws got cremated on my birthday it was such a sad day,and today i am in similar position another sister in law gets cremated today,i will not be going to this one as380 miles away and will not leave Slim.
So today i am going out with a big smile on my face to have lunch with the girls,what,s that old saying laugh and the world laughs with you,cry and you cry alone.
So I have warned the rest of my sister-in-laws watch out for my birthday ,you never know LOL Eve
Hi Everyone
Before Slim had this MM,We went to a few family funerals ,and on the way home,he said promise me if i die you will not go through all that clap trap.
As you might guess,he has no faith.He tells me because he was an NCO and doing full service,he has a right to be buried at sea.
When I asked why,His answer was,those b—ers messed me around for years,so in death i am going to do the same !!,he has always been happy under water was a diver for years.
I do think it must be wonderful for those who have this faith,who believe that life goes on,.:-)
Bridget on grumpy grandads my grandkids made up a song with a little bit of help from you know who
grumpy grumpy grandad lives in a van
he,s so grumpy his face is like a pan
wakes up in the morning
grumpy groaning snoring
grumpy grumpy grandad lives in a van
he,s so grumpy his face is like a pan
when we took the kids away the campers around us use to be singing it too!!
brings back memories as last year we could not take grand kids away:-P
love Eve
Hi
My word is INTERPRET that why i have not got a picture on here,the instructions are like a foreign language ,have to wait until the grand kids to come.
RET
PS,i will make another effort with the picture.Eve
I love my life before this MM,travelling was a way of life,it brings everyone down to the same level,no keeping up with the Jones,s.Then everything changed
I now love walking on the seafront and sitting looking out to sea.
I love the way everyone says good morning as your walk along
I love bumping into people i have not seen for years,and it,s just like yesterday.
I love the fact that I have so many memories,beautiful places,lovely people,from different countries and different walks of life.
I love the fact that all this has made my life a richer place.
And last but not least I love,the man I share these memories with.
Eve
Hi Amelie
The question,is a hard one,as a carer you will worry about it,is he doing to much?? but if he was at home would he be doing to much?,and the answer lies within his nature,his body his decision.
Slim my husband,the minute he starts to feel better,he goes over the top,thinks he can do every thing,you end up nagging,not helpful.
So now I sit back,wait until it get,s to much for him,and take over.
I would love to decorate my lounge but I know Slim could not sit back and watch me!!!
Let your husband enjoy the pleasure of being able to work,no one knows why,some people have longer remissions than others,or why some people do not get to that stage.
One day at a time eve
No excuse FLATULENCE LOL
NCE
Is there a smell round here.
Is this becoming a men,s meeting point!!!!8-) 😀 🙂
Short and sweet no gossiping!!!!
What are you men like. LOL
Eve
Thanks Sharon
Will look out for that,has his MRI scan on Sunday,With Slim its very hard to tell how much pain he is in,never one to admit to pain just the fact he takes Oxycodone hydrochloride and cannot do without it,and still is in pain is enough for me.Never touched a pain kill in all his life,even when he had a hip replacement,,broken ribs and arm,.So just to take a tablet means a lot of pain.
He asked me the other day why they are not interested about the pain in his chest????but it is the way he comes over about it!!! ,I have a had to press for scan!!!
Very hard,to handle,thats why i have no chose but to go with him,if they ask him how he is,answers Fine!!!
He has gone from a wheelchair to sticks and is now walking without them.but the more he does,the pain increases,the tumour is situated t8 to t10,and I know there not keen to do radiotherapy ,given the position.
I have some nursing experience years ago,and one daughter is a radiography ,and other daughter has become an self styled expert because of her son having cp.,plus we have lots of medical people in family,but even with all this,when it comes to Myeloma,it,s a massive learning curve,so I am grateful for your help. eve
Hi Min
I posted on side effect when it should be here,loosing my mind that,s my excuse:-)
This has all been a wake up call for Slim,he is listening to me,and has said how it all bring s every thing home,Promises me in the future,he will do as i ask if he is ill,:-/ I know him well enough.i will still have a fight on my hands to get him,in to hospital>:-(
In the coming months you are going to have to start closing that door and put your hand out and reach for the handle,of the next door,they say it takes 5 years to come to terms with things,I truly hope it doesn,t Min i feel we are doing our mourning now,we are living with it every day,These are the things,that are left unsaid!!:-(.because we do not want to face that future.I try to think how lucky Slim and i have been,yes there will always be regrets,but we were lucky in finding each other and for that i am truly grateful.
It,s sad when people are coping with this on there own,or the young ones who know they will never see there children grow up.
So what i wish for you is reach for that handle,Peters memory will walk through that door with you,I wihsh you a good future Love Eve
Hi Min
I know you will get through this,Luck or some one looking over you having your son by your side!!:-)
Sarah was lucky to be able to bring her husband home to die,Peter was lucky in the fact that he new nothing about his death,you had to carry that burden,
We all know how stubborn men can be,and often that,s why we love them so much,It made him the man he was,one to be very proud of,
I like the bit about hiding the whiskey ,my daughters would have poured it down the drain:-P LOL and rightly so,whiskey makes you frisky so the saying goes,but it doesn,t Min it makes you a different person,my advice stick to wine.
Do not have regrets Min,no one can predict the future,Peter has done a lot with his life.and you have been his support,he could not have had the life,he lived without you.and because of his life it made you more independent,that is what makes you special ,Why do you think it took me 30 years to marry Slim,I did not make a good service mans wife,takes a special person:-)
Love Eve
I think we should all grow old TERRIBLY disgracefully
BLY
Trying my best Eve
hi Gill
Thank you for bringing the video to are attention,it is exactly what is needed,It is making that call is the hard one,sometimes as in Slims case there was no temperture,and his insistence that I was fussing,even having a doctor out,who looking back had know idea,!!!!
Staff told me later what we went through should not have happened.
I can only say it will not happen again,
I was told in no circumstances was I to go to my doctor,bring him in blood test within 1/2 hour treated within the hour,and told to stand my ground if they did not treat him!!!!
It is very hard when your think the professionals know best!!!!!!
Eve
Hi Sharon,
Thank you for all that information,have asked about pet scan today,nurse said she would inform consultant,thought it was a good idea,the consultant is very much a bloods man,I get the impression he works purely on results.
Slim has tumour on spine,plus lesions on shoulder blades and skull,they have a pet scan at the hospital !!! so there no excuse.
I was getting concerned that Myeloma is not showing in monthly test if they had not done another bone marrow for trials,to all accounts Slim was starting to go in remission,The Myeloma has increased in the marrow.
I hope you do not mind me using you for info as you seem to be the only one in a similar position to Slim.???
Did you have any radiotherapy for tumours,i was told they only do this if pressing on spinal cord,and chemo does the same Job?
You are getting the same tablets as the trial people,so have you any idea if you will have a maintenance drug if you get the all clear?
May i say you luck very young in your photo,and with your nursing experience it must be more hard,different when your the patient!!!
Love Eve
