Hi Trish
Tell him not to rub site of injection,otherwise he will be full of bruises.
Slim had to inject himself for 8 months to prevent clots. Good luck with the Velcade. Eve
Hi Rebecca
You could have a look at back answers on this site,if you put in kidney in top right hand corner it should come up with something ,I think a fw people will reply to you who have had the same problem
My husbands kidneys regenerated,but he was still given a smaller dose of chemo for SCT. Enough to do the job,he does have to drink a lot of liquid to clear his kidneys. Eve
Hi Louise
I could tell you not to worry,but you will.its everything that everyone else has been through,make sure you take old clothes in,you just might want to through them away.Cold milk went down well with Slim,do not worry if dad does not eat,no use eating then being sick,things just do not have the same taste. They say a piece of pineapple sucked before eating helps with taste,but they are so tired,they just want to sleep so let him,take a good book to read they tend to like you there when they wake up,it is a very emotional time for them,I think men find this side harder.
Tell your mum to rest as much as possible,as when he comes home it is a bit harder,cleaning,cooking something they. Have asked for,then saying they do not feel like it,all part and parcel,it is very tiring takes a long time to get back on there feet,often with a few upsets,Slim ended back in hospital twice,Slims 9 months from SCT and still has not fully removed,mainly because of bone damage.hope this helps Eve
Hi Bev
Sorry to hear about you situation ,you do not say how old your father is or how old you are??.
It must be hard on you,but if your dad chooses not to tell you,there is no way you can find out!!!!
You could approach the situation by saying you have been on the Myeloma UK site,because some one you know has Myeloma and you found it very helpful and useful,if your dad has myeloma he just might ask about the site,you are not actually being untruthful,he just might help him to open up.
They might feel they do not want to worry you,or by denying it,might be a way of coping,our family know but we do not go into everything with them because we have to have some normality ,.hope this helps Eve
Hi Babs
Yep my husband has lovely locks plus from grey he went brown,I refuse to cut it
,in case they disappear ,he had straight hair before,I think it does go back to the way it was.:-S Eve
Hi Rebecca
Are you on dialysis ?..,
I can only tell you about my husband he was admitted with AKF,as he progressed his kidneys regenerated,never went on dialysis!!!!!when it came to his SCT they took on board the knowledge of his kidneys,and he had a lower dose of chemo,but enough to do the job.
There are people on here who have had SCT and dialysis ,and it worked for them,also some it did not work for,aim sure you will hear from them just be patient and give them a chance to reply,it's worth bumping you post up so they see it .Eve
Hi Daniel
You have been doing all this while sitting exams!!, Dan you are taking on to much do you intend to do uni???,you do have to gather you're family round and make desist ions ,I am surprised they let your dad out of hospital,without more surpport .
Although you dad is cheerful he must be worried, this problem is not going to go away,it is your dad who can put in for allowances,plus no matter what age you are you are entitled to careers allowance .Dan I am sure your dad would want you to have your own life 17 is a special age the next few years should be years free from problems. Eve
Hi Jean
Do not worry about him not phoneing,he will feel all his energy has been zapped out of him,sounds if things are going as planned,Slim use to sleep,on waking he was so apologetic ,I arrived he slept then just as I was leaving he woke,get a good book,they still want you there when they wake up. Love Eve
Hi Daniel
Yes you are going to need a lot of surpport ,you are a bit young to be taking all this and even with the best will in the world, it is to much,have you a social worker??? Are you claiming the maximin allowances?… If not see a mac millan nurse,if you ring them up they will visit at home,she should be able to help with forms,it might be worth visiting a hospic as,they have lots going on,and you might be able to get some respite for your dad to give you a break.
I think you need to sit down with your dad and have a good talk about managing the situation,if you have enough money you will be able to pay someone to come in and clean, plus arrange meals for your dad,Daniel you cannot do this on your own,even with the best will in the world,you have your life ahead of you.it is stressful enough for a wife looking after a husband
I have been doing it for 2 years and my husband can walk,just as he is getting better,my health. Has taken a bashing,,in the end the body says it,s enough.
Please make sure you get help and do not refuse anything even if it,s a niebour popping in to talk to you dad,loneliness is a bad thing.you have to look after yourself too.Eve
Hi Everybody
It is interesting how people differ when given. Zometa Slim started on it 2 years ago the same time he started treatment ,but now because we see consultant every. 2 months the Zometa is now given every 2 months,we were told as time goes by it is less effective . He has never had any flu symptoms, to make things easier we have blood done at GP then 5 days later Zometa.
Going every 2months makes life easier,we can make plans for 6 weeks and return for the last 2 weeks. Eve
Hi Trish
The program was Saints and Scrounges I tend to have the TV on rather than the radio as I am deaf so need subtitles,I was not paying a great deal of attention I do not know what the lady claimed but she was showing dogs and they filmed her,she had said she could not walk more than 50 yards without pain,and her answer was she had dosed her self up,so she could stand for 80 min,but they made the point that she had not informed them went to court pleaded guilty and had to pay back money and of cause she had a criminal conviction
I think if you inform them they send you another form to fill in,it does one mean you will loose any money,but you have to inform them,although Slim has had a SCT,he is in pain with the damage to the bones,plus hip replacement was never successful ,if he wakes in the night it is easier for me to get up to get meds,plus I hate him walking about in the dark in case he falls,
My form went in for attendance allowance and we stated that he had Myeloma. Hope this helps Eve
Hi Tom
I just say it as I see it,and people should not ask questions if they do not want answers. I think coming from Liverpool is the reason people seem to be more blunt and take bad news and turn it into a lighter thing,it helps people to talk to you about it.
I do find my sense of humour does get me in to trouble down south,as I have aged,I have subdued it.
Jane you can use any of the sections ,I just suggested that you post your first in newcomers because when some comes on in the middle of someone else's topic people do not know who they are,I did the same as you,and I think it was Gill, opened a Topic who the hell are you,we had a lot like me who did not introduce them selfs,also Jane you might get into under 50 if they let Tom in,at57 you should get in. Love Eve
PS anyone feel like starting another Who Are You???? I've, lost touch a bit on who,s who
Hi Babs
Slim had a letter ages ago just a general letter from pensions office,he gets attendance allowance ,right in the middle of the letter it actually says you must inform them if you have a SCT or any other change. I am glad I looked through mail,what I do is quickly look at things,keep them,then when I have a pile if I am going to keep things for filing or throwing away..
It could be so easily missed,I think this post arrived,and I just thought its another letter from pensions,I do not read them normally just look at how many extra pennies they are going to give us. Love Eve
Hi Jane
Welcome to the club, it's my husband with Myeloma and he is 2years down the line,nice to hear you have a sense of humour,I think it will hold you in good stead as your treatment progresses.
I have a sense of humour,sometimes near the mark,but I think if you did not laugh about something you would end up crying,as you get to know people on here,you tend to she'd a few tears,although you never meet them.
They are a good bunch on hear,so if you are worried about any thing or just want info,or you can give us some help or info do not be shy,and post. Love Eve
Hi Sue
I know a number of people who are at different stages of mourning,this also includes my daughter and myself,for my first grandchild Matty who was 16.
There is no right or wrong way,just take it a day at a time,you will go through every emotion,but in the end you have to do it your way .No one can really help you,Ruth and I find talking about Matty helps,he is very much around us,guilt anger are just a part of it, I would say be kind to yourself ,you have walked a long way in your shoes,and Michael will still be walking with you on your new journey love Eve
