Myeloma Forum | JanetJordan | Activity https://forum.myeloma.org.uk/members/faith/activity/ Activity feed for JanetJordan. Tue, 21 Apr 2026 17:33:50 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 c0ea660a09222a19e421d60bbc0711e0 JanetJordan replied to the topic Memory Lose in the forum General http://www.myeloma.org.uk/forums/topic/memory-lose/#post-122211 Wed, 20 May 2015 12:49:23 +0100 I do miss not getting engrossed in a book, I could read for hours at one time. Will have to get some magazines and look at the pictures.
Have watched that film Jeff and I would say do one task at a time!!

Janet X

]]> 2a8a333396114a44ea52697babf1859d JanetJordan replied to the topic Dry and Brittle Fingernails in the forum General http://www.myeloma.org.uk/forums/topic/dry-and-brittle-fingernails/#post-122210 Wed, 20 May 2015 12:30:42 +0100 I have started using coconut oil on my nails thanks Dorothy.
I have vertical ridges on all of my fingernails, Karen, they seem to be getting worse just lately.
All these things we have to put up with but we are still here which is good.

Janet X

]]> 802d0adaddfa40436ae7e69ecadeab16 JanetJordan replied to the topic Memory Lose in the forum General http://www.myeloma.org.uk/forums/topic/memory-lose/#post-121538 Thu, 02 Apr 2015 15:50:21 +0100 Very good responses, my husband, Roger, often tells me that he has told me something which I can’t remember. He is trying not to get too annoyed with me..
Thanks Richard for your outlook on this!
Take Care

Janet X

]]> e79f6e0f86740a26dd87cb9350e4464b JanetJordan replied to the topic VELCADE AND THALIDOMIDE in the forum General http://www.myeloma.org.uk/forums/topic/velcade-and-thalidomide/#post-121507 Tue, 31 Mar 2015 18:34:38 +0100 I also felt like a very old lady while on treatment. I had/have the same side effects as you Carol numb toes as well as finger tips.

Janet X

]]> cbe725ab823f8d6cf5b077a2f01f06e0 JanetJordan replied to the topic Memory Lose in the forum General http://www.myeloma.org.uk/forums/topic/memory-lose/#post-121506 Tue, 31 Mar 2015 17:41:51 +0100 Thanks Tony, it takes me ages as well to read a book I have to renew my book at the library quite often. My hands and feet are cold all day and night.
Regards to you too
Janet X

]]> ad8d31f5f4851b19bb89877c6e949b34 JanetJordan started the topic Memory Lose in the forum General http://www.myeloma.org.uk/forums/topic/memory-lose/ Tue, 31 Mar 2015 12:13:37 +0100 Hi All,
Has anyone after having a Stem Cell Transplant suffered from memory lose and lose of concentration (I so loved reading books and getting engrossed in them can’t any more).
I also have cold hands and feet (I wear thermal socks doesn’t help much), I put that down to the Thalidomide.
Thanks
Janet X

]]> b9146b19321edebae5cc49ac83cc1a75 JanetJordan replied to the topic VELCADE AND THALIDOMIDE in the forum General http://www.myeloma.org.uk/forums/topic/velcade-and-thalidomide/#post-121268 Thu, 12 Mar 2015 20:04:20 +0000 Hi Amanda, I was on Thalidomide for 12 weeks prior to my stem cell transplant. I must admit that I didn’t feel too good on it I felt like an old woman I was only in my late 50’s but I am still here which is the main thing! Few problems with my hands and feet now they are a bit sensitive I often drop things because I can’t feel them. But be…[Read more]

]]> 045f5557d8a93e19fa594f2e1802bb12 JanetJordan replied to the topic Still feeling good in the forum General http://www.myeloma.org.uk/forums/topic/still-feeling-good#post-94324 Fri, 08 Feb 2013 17:56:04 +0000 No one really knows how we feel thats why it is good to go on this forum site.
It is always best to keep positive and not let MM beat us.

Keep with good thoughts
Janet x

]]> 3456c83345dd698a62ed36e793533010 JanetJordan started the topic Still feeling good. in the forum General http://www.myeloma.org.uk/forums/topic/still-feeling-good Wed, 06 Feb 2013 19:29:56 +0000 Just like to tell you all, 6 years after after my sct I am still good, protein is fluttering a little bit and I must drink more water, for my kidneys, but apart from that all is well. Just want spring to come now to warm my bones.

Keep positive
Janet

]]> 08b30f570a9d8f9551a5d0e7bc5cce54 JanetJordan replied to the topic Hair in the forum General http://www.myeloma.org.uk/forums/topic/hair#post-93513 Sat, 22 Sep 2012 14:54:59 +0100 Thanks for all of your replies.
I had my SCT just over 5 years ago, I lost all of my hair and it did come back thick and curly. This past couple of years it has gone dry and brittle. I think that I should have it cut short really wanted to grow it though. Looking at it another way, I am still here even if my hair looks naff :):)
At last, I…[Read more]

]]> 05df4ed95f59c5c3aa6d13a97841da6e JanetJordan started the topic Hair. in the forum General http://www.myeloma.org.uk/forums/topic/hair Wed, 19 Sep 2012 15:58:29 +0100 Hi, to you all

My hair is vey dry and brittle, never like this before MM. It has now started to get me down,it never looks nice. I have tried all different shamppo's and conditioner's with no difference to my hair. Silly question but have you any ideas what I could try next?

Thanks

Janet

]]> f624edb26cac5bbe08575c43e65e5b34 JanetJordan replied to the topic Wheatgrass in the forum General http://www.myeloma.org.uk/forums/topic/wheatgrass#post-92956 Thu, 28 Jun 2012 15:04:57 +0100 Hi Tom

I am fine thanks, still got a little bit of a cough though. I am also drinking green tea but just first thing in the morning, must try it all the time. I do also try to eat healthily, lots of fruit and veg .
I should come on here more often sorry!!

Love Janet

]]> dc1f48eb5a77f6ebb9a4900454cb648f JanetJordan replied to the topic Wheatgrass in the forum General http://www.myeloma.org.uk/forums/topic/wheatgrass#post-92953 Wed, 27 Jun 2012 17:56:49 +0100 Hi Dai and Janet,
I am in remission and I do eat and drink everything. I suppose that you could take allsorts of vitamins and still not be well.
Janet is the best name ever!!

Janet

]]> 6f58ea8ef82a3fae667eea6db4b7b76c JanetJordan started the topic Wheatgrass. in the forum General http://www.myeloma.org.uk/forums/topic/wheatgrass Wed, 27 Jun 2012 15:05:26 +0100 Hi

Has anyone taken Wheatgrass and if so has it helped you in any way. I am going to ask my consultant next Monday about it. Daughter-in-law has been taking it for irritable bowel and she feels great.

Thanks
Janet

]]> 98e4b7261a35e3d418e56de351e2113a JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years/page/2/#post-85702 Wed, 28 Mar 2012 16:47:52 +0100 Hi Gill

Sorry to hear about your husband, this is when we know that we are not on our own with this MM.

Love
Janet
xx

]]> 5a53224a4214a9b633eee60fc99de914 JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years/page/2/#post-85709 Wed, 28 Mar 2012 16:44:13 +0100 Hi Carol

I know that a lot of things have changed after 5 years. I was on Thalidomide, have a few ongoing side affects but at least I was in remission for 5 years.I can also have another stem cell transplant.

Thanks
Janet
xx

]]> 1d693561c9bf70ac12c96a83c47e6ae7 JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years/page/2/#post-85699 Wed, 28 Mar 2012 16:36:56 +0100 Hi Tom
Still got this chest infection, went for an x ray. If no better by Friday have to take stronger antibiotics. Fed up with this stupid cough now.

Love Janet
xx

]]> c68308b97786712e4e1111c4e939eb1a JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years/page/2/#post-85703 Wed, 28 Mar 2012 16:32:50 +0100 Hi Eliz
Sorry that I haven't replied before now, still got this chest infection.
To your question I go to The Royal Worcester Hospital, Worcester.
Hope someone will be able to tell me where I can park.

Love
Janet
xx

]]> 6677889ad0823645c28035aa7da6ef53 JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years#post-85697 Fri, 23 Mar 2012 14:44:42 +0000 Hi Tom

Just giving you an update on my cough.
Went back to the Dr's this morning as my cough was getting worse, I am now on antibiotic's because I have a chest infection. I will be glad when they start working so I can get a good night sleep.

Take care

Janet

]]> fa37633641c3e747985b96a1aad7e03b JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years#post-85694 Mon, 19 Mar 2012 17:48:11 +0000 Hi Tom

Still coughing, went to my GP but she can't give me anything, just have to wait until it goes on its own. Could take a week or more. I am so tired with not much sleep.
One of the "Yellow Liner" member

Janet

]]> 1cf8fdc6c9543d3f5c10f40f7be1f592 JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years#post-85695 Mon, 19 Mar 2012 17:42:51 +0000 Hi Eliz

They have only started to charge for blue badge holders, so I don't know where the yellow lines are as yet. If only, I could go to my local hospital could catch a bus then. Not as easy as that though is it?
Keep yellow lines going!!!

Janet

]]> ecd8bbe6c2bfcfc33e8bcea328ad3ef6 JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years#post-85690 Thu, 15 Mar 2012 15:24:48 +0000 Hi Tom

I will have to have a look at parking outside of the hospital. I do know that you get 30 free mins parking but that is never enough time.
Doing OK apart from a stupid tickly cough. Will make an appointment with my GP if it doesn't clear up by after the weekend.

Take care
Janet

]]> c813847e9d9e2b943d8811c07573a0e6 JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years#post-85688 Wed, 14 Mar 2012 13:55:10 +0000 Hi Tom
I do have a Blue Badge for the car, but the hospital has started to charge parking for everyone even Blue Badge holders.

Janet

]]> 03c38f0f9e4d7a19a9b90dedda62f7b8 JanetJordan replied to the topic Relapse after 5 years in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years#post-85685 Tue, 13 Mar 2012 15:05:51 +0000 Thanks for all of your replies. I know that I must keep positive. I was thinking of making an appointment with my own GP to talk about how I feel.
I have felt so good up to now!
I will keep you posted.
I do know that I am not the only one out there who has Multiple Myeloma.

Janet

]]> d3e6f5d2643a44fdd52a33660fb36857 JanetJordan started the topic Relapse after 5 years. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relapse-after-5-years Mon, 12 Mar 2012 18:34:01 +0000 I had my stem cell transplant 5 years ago which went well. Had my, usual, blood test and consultation with my doctor last week and my protein level has started to rise. I should of asked the doctor what happens now but I didn?t (too worried about parking fees silly really).I am worried that I will have to go through another stem cell…[Read more]

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