Hi Sarah. My sister too has decided to go with the trial and should find out and get her meds probably on Friday. So I will post too. Kind regards.

Hi toots, lovely to hear from you and I’m so pleased that everything is going well for you. I’m trying to read up as much as I can but it is very complicated and as far as I can tell is very individual. My sister has decided to go with the trial and should start later this week. I don’t know what her para protein level is but I’m assuming that is…[Read more]

hi sarah, thanks for replying. i think she will end up going with the trial too. as far as i can find out the drug lenalidomide, used in the trial, is often used now in patients where their myeloma has returned and has had positive results. A big decision though. When do you start treatment?  let me know which treatment you are randomised to and…[Read more]