https://forum.myeloma.org.uk/members/faye1/activity/ Activity feed for faye1. Sat, 02 May 2026 08:02:40 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 0440680a84bfb165b1a3cce7dd66dbe4 http://www.myeloma.org.uk/forums/topic/clinical-trial-or-no-clincial-trial/#post-125862 Mon, 18 Jan 2016 21:49:41 +0000 Hi Sarah. My sister too has decided to go with the trial and should find out and get her meds probably on Friday. So I will post too. Kind regards.

]]> cc28c56d2832143e6c853c65e1303e34 http://www.myeloma.org.uk/forums/topic/clinical-trial-or-no-clincial-trial/#post-125861 Mon, 18 Jan 2016 21:39:54 +0000 Hi toots, lovely to hear from you and I’m so pleased that everything is going well for you. I’m trying to read up as much as I can but it is very complicated and as far as I can tell is very individual. My sister has decided to go with the trial and should start later this week. I don’t know what her para protein level is but I’m assuming that is…[Read more]

]]> ba2685f352e765118e62d8cdc2f3b8a2 http://www.myeloma.org.uk/forums/topic/clinical-trial-or-no-clincial-trial/#post-125776 Fri, 15 Jan 2016 12:33:28 +0000 hi sarah, thanks for replying. i think she will end up going with the trial too. as far as i can find out the drug lenalidomide, used in the trial, is often used now in patients where their myeloma has returned and has had positive results. A big decision though. When do you start treatment?  let me know which treatment you are randomised to and…[Read more]

]]> 5d90888d923a51796fd81f3acb9e1429 http://www.myeloma.org.uk/forums/topic/clinical-trial-or-no-clincial-trial/ Thu, 14 Jan 2016 14:12:21 +0000 Hi, my sister, who is 42, recieved a diagnosis yesterday of multiple myeloma and has to decide by Monday whether she wants the standard treatment or to go with a clinical trial.  Any advice?  She really doesn’t know which one to go with.

]]> 820abf00cda8c910e9ccc4e710ddb1dd https://forum.myeloma.org.uk/activity/p/42603/ Thu, 14 Jan 2016 14:05:57 +0000 0