[faye1Participant]

Hi Sarah. My sister too has decided to go with the trial and should find out and get her meds probably on Friday. So I will post too. Kind regards.

[faye1Participant]

Hi toots, lovely to hear from you and I’m so pleased that everything is going well for you. I’m trying to read up as much as I can but it is very complicated and as far as I can tell is very individual. My sister has decided to go with the trial and should start later this week. I don’t know what her para protein level is but I’m assuming that is pretty crucial information. Thank you for replying and I’m so pleased you’re feeling so much better.

 

[faye1Participant]

hi sarah, thanks for replying. i think she will end up going with the trial too. as far as i can find out the drug lenalidomide, used in the trial, is often used now in patients where their myeloma has returned and has had positive results. A big decision though. When do you start treatment?  let me know which treatment you are randomised to and all the best with the tratment.

Kind regards

Faye xx

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