Hi Dick,
So sorry to read about your recent diagnosis.I to only found out about 7 weeks ago.
Haven,t started chemo yet,have the joy of that next week.
You didn't,t say what chemo drugs you are on.
It must be very difficult ,for you living in a different country.

This site is marvellous , and hopefully people can offer you lots of…[Read more]

Hello Tom

Nice to hear from you.
Had a visit to haematology today only to be told the Consultant was sick argggghhhhh.
Had bloods taken,no major change
So hopefully will get a call next week as to when I start CTD.

Have a. Very busy week on hence the reason why I delayed the treatment
My daughter and son in law are moving Friday and…[Read more]

Hello Tom

Good to hear from you
Thanks for the info
I hope it will be the same for me then lol.
I might just ask them to put me in an induced coma for two weeks when I have SCT.lol.
Hope your keeping well .
What are you up to for Easter
Are you doing any special

Speak soon onwards and upwards. Tom.

Jane xxxxxxxxxxx.

Hello to you all.

Welcome to all newcomers.

Well it's been a while since I wrote something on here , and wondered should I write about my last
Visit to the hospital

This is written with my sense of humour so please don,t take offence
So off I trot to the hospital 2 weeks ago to have my hb checked as was low the week before.
This is…[Read more]

Hi Norma

Hope everything went well today

Jane x

Hello

My heart goes out to you and your mum.
Sorry I don,t know your name.
Your mum has has a dreadful journey with myeloma.

I,m sorry I can,t answer your question about the levels as have just been diagnosed myself
I too was experiencing dreadful backache but always seemed to be poorly.which I know now
Was poor immunity.My paraprotein…[Read more]

Morning Jackie.

I am to start 3 weekly CTD over 6. to 8 courses.and then to have a SCT if things go well.
Today am back at Haemotology to have my Hb checked as it gad dropped last week to 9.2
So am hoping I can just walk out and not have any treatment
I have 2 grow up daughters ,1 still lives at home
My husband along with the rest of my…[Read more]

Hi Phoebe

Thanks for sharing you incredible story.
Good luck to you both on this long journey
Stay strong for each other

Jane xxxxx

Hi Jackie,

Hope things are okay with you and your mum.
Haven,t started treatment yet,in the next couple of weeks I presume
Saw the Chemo nurse last week with the treatment info,the do,s and don't,s so much to take in at the moment
Please keep in touch
Stay strong and take one day at a time

Jane xxxxx

Hi Jackie

So sorry to read about your mum
I was diagnosed the end of Feb and my family and I are still coming to terms with it all
All the people on here have made me very welcome and offer lots of support and a shoulder to cry on when needed.
Having a supportive family really helps .
If you ever need a rant ,just et me know.
We will all…[Read more]

Good Morning Vicki and Colin

Thanks for your message
Hope you are both okay today.

So have appointment to see chemo nurses today , have so many questions to ask,
Your comment,has put my mind at ease.

Take care both of you.

Jane xxxx:-D

Hello Happy Tom onwards and upwards

Will track you down on Facebook

Jane

Xxxxxxxxxx;-)

Tom has warned me about you Eve lol
Also if Tom can get into the under 50,s so can I.
My sense of humour has also got me into hot water many a time.What I think Is funny other people don,t
Who gives a Damn. Now am I allowed to say that on here.lol

Well actually I am thinking Eve ,to give Tom a lovely nickname on here.
Only been on this…[Read more]

Hi Ali,

Was on a downer slowly coming back up.
In answer to your reply when I have to wear a wig at least I,will be saving hours spent on doing other things so that is a massive positive.

The sun is shining and it is lovely and warm today.Happy Days xxx

Hi Eve

How nice to speak to you at last lol
Well I did try 3 times to access this site and thanks to you here I am, on the right site
I hope your husband is responding well to treatment,

Having a good day today my wicked sense of humour will shine through
Now Eve do i stay on this site of do I move help help

Have been thinking how to…[Read more]

Hi Mavis ,
Thankyou for your lovely message and advice
It feels strange to be on the other side I must admit
After years of comforting patients and their families ,I am now one of them
So glad your in remission,do you feel back to your old self,or do you feel different
My hair is very fine anyway,lol, so I reckon I will have to wear a wig…[Read more]

Hi Vicki.
Thankyou for your lovely message
Do you know,like you said,I knew if one person having myeloma and all of a sudden your surrounded by it.
Unfortunately my daughters mother in law was diagnosed in oct 2012
I read all the info there was to read and then bang wallop here I am.

I hope Colin is recovering as well as can be…[Read more]

Hi Lesley
Thanks for your lovely message

I am sure I will start my treatment in April,as I mentioned to the consultant that the week leading up to Easter was special to me.,and we have so much going on.Unfortunately we just ran out of days and months to book a holiday.

Isn,t this site just wonderful.I know what you mean the reason why we…[Read more]

Hi Alison,
Thankyou for your lovely message,what a shock for you and your family..I do hope you mum is doing well.
Having wonderful supportive friends and family ,makes the journey so much easier.Ali I look forward to catching up with you soon
Take care

Jane xxx:-)

Hi Jo
Thankyou for your lovely message
What lovely people on this site,and what a comfort that while being on this long journey all together we have each other
Will keep you informed as much as possible.
Have to see the chemo. Nurses next week.O the joys lol

Will be in touch Jo and thanks

Jane
Ps will have to think of a funny slogan…[Read more]