Myeloma Forum | JaneFeasey | Activity https://forum.myeloma.org.uk/members/feaseyjane/activity/ Activity feed for JaneFeasey. Sun, 12 Apr 2026 03:46:48 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b97033a30d48ed5e827684aa0c01d22f JaneFeasey started the topic A long journey in the forum Off topic http://www.myeloma.org.uk/forums/topic/a-long-journey/ Mon, 23 Jun 2014 23:13:17 +0100 Hello to all.
Well it has been months since I was last on here.
in nov. Of last year I had my SCT .
Unfortunately I caught an infection .i was on iTu for a month and HDU and spent a total of
3 months in hospital.
It was touch and go but I survived.

It was a very difficult time for my family,but everyone rallied round.
I had a stroke and heart…[Read more]

]]> 85a157426256c40d46d720a8d067b6da JaneFeasey replied to the topic Full Remission in the forum Treatment http://www.myeloma.org.uk/forums/topic/full-remission/page/3/#post-102166 Sat, 13 Apr 2013 19:11:40 +0100 Hi Pete

Well what fabulous news am so pleased for you

You didn't,t say where you are going on your travels

So I wish you a fab time

Enjoy, Enjoy,Enjoy

Ps I sent you a message but it has disappeared somewhere

Jane xx

]]> 62b0fe3bc1f486613333f958e201bd8b JaneFeasey replied to the topic my mum has myeloma. first time post in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-has-myeloma-first-time-post/page/2/#post-87440 Sat, 13 Apr 2013 19:04:44 +0100 Hi Nerys

Just catching up with my messages

So how is you mum and how are you

Thanks for your lovely reply

Just started chemo CTD so it's early days for me
My Consultant did talk about SCT but that is a way off yet.

Keep in touch and let me know how things are

Jane xxxx

]]> 74670ab5c013b3fe027e37f114bee2f4 JaneFeasey replied to the topic Myeloma Mumma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/myeloma-mumma#post-87481 Sat, 13 Apr 2013 18:58:36 +0100 Hi Suzanne

Just wondering how you are
I get behind with my messages and end up posting
Threads everywhere and anywhere

Anyway just thought I would drop you a line to say
That I was thinking of you xxx

Jane xxxxx

]]> 65d7d3c93c7923226668797335e51a93 JaneFeasey replied to the topic 2 weeks in hospital in the forum General http://www.myeloma.org.uk/forums/topic/2-weeks-in-hospital/page/2/#post-94814 Sat, 13 Apr 2013 18:50:34 +0100 Hi Jo

Sorry to hear you haven,t been well
Hopefully with the sun shining tomorrow it will make you feel a little better

Take care

Jane
Xxxxx

]]> df860f196a86248ae14edf71ba5e796c JaneFeasey replied to the topic Update on 21/2 years in the forum General http://www.myeloma.org.uk/forums/topic/update-on-212-years#post-94875 Sat, 13 Apr 2013 18:40:48 +0100 Hi Eve

It does sound like Slim is having a rough ride of it all

Can you not be transferred to a different hospital
My you that's easier said then done

Wishing you both well

Jane xxxxxx

]]> 53162cf64686755a5c38dded4c540d60 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/4/#post-87338 Sat, 13 Apr 2013 18:34:38 +0100 Hi Sarah

Thanks for your lovely message
What great news about Henry full remission.
I bet you are both thrilled

Slowly getting on with my treatment
It has only been nearly 2 weeks so early days

Please keep in touch

Happy for both of you

Jane xxxx:-)

]]> 74397eab8d03eb8b855e9814733fa4ee JaneFeasey replied to the topic Anti Biotics in the forum General http://www.myeloma.org.uk/forums/topic/anti-biotics#post-94840 Sat, 13 Apr 2013 18:29:28 +0100 Now then Tom what have you been up to.

What a shame you have been a bit off
Hope you feel better soon
And reading your reply its cheaper to drink at home .lol

Get well soon
Onwards for you my boy xxxx>:-)

Jane xxxx

]]> cbe0e341304c2af8cdf868c049ba10c7 JaneFeasey replied to the topic Mums's MM and now has breast cancer! in the forum General http://www.myeloma.org.uk/forums/topic/mumss-mm-and-now-has-breast-cancer#post-94700 Tue, 09 Apr 2013 16:13:39 +0100 Hi Sandie,

Thanks for your lovely message.
All those blessed tablets ,its enough to make you depressed.
Bless your mum,it's bad enough feeling tired,but that sick feeling as well
Plenty of rest and do what your body tells you.

Looking forward to the summer Sandie
Best wishes to your mum and to you too

One day at a time…[Read more]

]]> ad3064051edeb9d98ed4e70dbf1c7912 JaneFeasey replied to the topic Holidays, travel insurance and relapsing! in the forum Off topic http://www.myeloma.org.uk/forums/topic/holidays-travel-insurance-and-relapsing#post-110714 Tue, 09 Apr 2013 15:49:15 +0100 Hi Wendy

What a wonderful experience after the small blip with insurance
Lovely photographs.
Good luck to you

Jane
Xxx

]]> 41545a07f3c4bd12882de7a326e74ec6 JaneFeasey replied to the topic Trial TEAMM in the forum Treatment http://www.myeloma.org.uk/forums/topic/trial-teamm#post-102247 Fri, 05 Apr 2013 20:33:31 +0100 Hi Eve

How good to hear from you
How is Slimm doing at the moment,and you of course

Good idea about the yoghurt
Eating porridge at the moment
Easier to swallow with a mouthful of pills and you don,t have to chew

Love to you both stay strong which is easer said then done

Ps love what you posted about Tom keeping an eye on what you…[Read more]

]]> 7d0d1a6e4f183afc1e1bddf4609641d8 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/4/#post-87336 Fri, 05 Apr 2013 20:22:23 +0100 Hi Peter
Thankyou for your reply.

Good luck for Tuesday
It's good to hear positive comments
I was told 5 to 7 years life expectancy
Does that mean overall with treatment ,who knows.
Well have to think one day at a time
Please keep in touch
Will be thinking of you with everything crossed for Tuesday

Jane xxxx:-)

]]> fa24033e63e0df2bd6ccd62f008ed4b1 JaneFeasey started the topic Trial TEAMM. in the forum Treatment http://www.myeloma.org.uk/forums/topic/trial-teamm Fri, 05 Apr 2013 17:26:05 +0100 Am about to embark on this new trial
Tackling Early Morbidity and Mortality assessing the benefits of anti biotic prophylaxis and its effect on healthcare associated infections.
So what it means for newly diagnosed Mm patients is the aim of the trial is to test if an antibiotic called Levofloxacin ,
Taken early on in your Myeloma can reduce the…[Read more]

]]> 6948f758871b63e5fd507664d850fcf1 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/3/#post-87334 Tue, 02 Apr 2013 09:24:16 +0100 Morning Babs

Thanks for your reply,

Must admit this pregnancy test thing certainly puts a smile on friends faces when I tell them
Hope you had a good Easter even though it was damn cold
Still lighter nights,puts a little spring in everyone's steps

Take care

Jane
Xxxx

]]> 38e4d4170e47834e802bf612350095dd JaneFeasey replied to the topic Myeloma Mumma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/myeloma-mumma#post-87476 Tue, 02 Apr 2013 09:15:42 +0100 Hi Suzanne

Sorry to hear about past medical history
I can,t really help you ,onSCT as only just diagnosed myself,and start my chemo tomorrow
Many people on here will be able to offer you lots of information.

Wishing you all the best Suzanne.

Jane

Xxxx

]]> cce98c038b030b3501ae5021941e6e2c JaneFeasey replied to the topic Two and a half years in the forum General http://www.myeloma.org.uk/forums/topic/two-and-a-half-years/page/2/#post-94739 Tue, 02 Apr 2013 08:56:12 +0100 Dear Eve. and Slim.

Am so sorry to hear the news.
How gutted you both must feel.
Hopefully the next stage of treatment will sort this awful bloody disease in to touch

Sending hugs from Northampton

Jane
Xxxxxx

]]> 9a0c3af326856cf1b9eda1d00b11b0b9 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/3/#post-87331 Tue, 26 Mar 2013 22:04:05 +0000 Hi Everybody

Well went to see the Consultant yesterday .This was after the big
Mix up last week.
Consent forms to sign,and then the big question about Thalidomide .
Had to have a pregnancy test done.O dear my husband and I did laugh.
I think the consultant choked a bit when I said "my husband would want
To know who the father was"
So…[Read more]

]]> 8a3698d22f558169bd6d2274c5dfd7f3 JaneFeasey replied to the topic Happy 1st Birthday to my Stemcells. in the forum General http://www.myeloma.org.uk/forums/topic/happy-1st-birthday-to-my-stemcells#post-94663 Tue, 26 Mar 2013 21:15:24 +0000 Hi Babs,

What an encouraging post to read.
Happy Birthday Stem Cells:-)
How lovely visiting Australia,it is a beautiful country

So Babs enjoy enjoy enjoy

Love
Jane xx

]]> eebaf2c06e1b545440e25a8d4100508c JaneFeasey replied to the topic Mums's MM and now has breast cancer! in the forum General http://www.myeloma.org.uk/forums/topic/mumss-mm-and-now-has-breast-cancer#post-94698 Tue, 26 Mar 2013 21:09:59 +0000 Dear Sandie,

I am so sorry to read about your mum diagnosed with BC ,as well as having to cope with this blessed myeloma
Sending my wishes and prayers to you both

Love
Jane xxx

]]> f000523eb31edda76cbc0c927679e8f8 JaneFeasey replied to the topic my mum has myeloma. first time post in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-has-myeloma-first-time-post/page/2/#post-87432 Tue, 26 Mar 2013 21:02:18 +0000 Hi Nerys

Just thought I would drop you a line to see how you all are.
Any news on mum,s SCT and how is she feeling at the moment

Sending hugs to you both

Keep well and warm

Love jane xxxxxxxxx

]]> c77cf32a881de0e5b7bf6c1834abd9ae JaneFeasey replied to the topic Someone else learning to live a different way in the forum Newcomers http://www.myeloma.org.uk/forums/topic/someone-else-learning-to-live-a-different-way#post-87463 Tue, 26 Mar 2013 20:47:07 +0000 Hi Dick,
So sorry to read about your recent diagnosis.I to only found out about 7 weeks ago.
Haven,t started chemo yet,have the joy of that next week.
You didn't,t say what chemo drugs you are on.
It must be very difficult ,for you living in a different country.

This site is marvellous , and hopefully people can offer you lots of…[Read more]

]]> 763aa6d047e75c56966ef79efd91f620 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/3/#post-87329 Wed, 20 Mar 2013 23:24:29 +0000 Hello Tom

Nice to hear from you.
Had a visit to haematology today only to be told the Consultant was sick argggghhhhh.
Had bloods taken,no major change
So hopefully will get a call next week as to when I start CTD.

Have a. Very busy week on hence the reason why I delayed the treatment
My daughter and son in law are moving Friday and…[Read more]

]]> 9707cd9d3f36deef80aa6c93135481e3 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/3/#post-87327 Mon, 18 Mar 2013 23:18:35 +0000 Hello Tom

Good to hear from you
Thanks for the info
I hope it will be the same for me then lol.
I might just ask them to put me in an induced coma for two weeks when I have SCT.lol.
Hope your keeping well .
What are you up to for Easter
Are you doing any special

Speak soon onwards and upwards. Tom.

Jane xxxxxxxxxxx.

]]> 5a05ed4dcaf472c78e1fb2c5df0bdb6a JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/3/#post-87325 Mon, 18 Mar 2013 21:32:09 +0000 Hello to you all.

Welcome to all newcomers.

Well it's been a while since I wrote something on here , and wondered should I write about my last
Visit to the hospital

This is written with my sense of humour so please don,t take offence
So off I trot to the hospital 2 weeks ago to have my hb checked as was low the week before.
This is…[Read more]

]]> 6fe246f8a33059391170d68dadd954c1 JaneFeasey replied to the topic First post! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/first-post#post-87453 Mon, 18 Mar 2013 21:07:18 +0000 Hi Norma

Hope everything went well today

Jane x

]]> f258d52a5660a2ba206c593646d81b8d JaneFeasey replied to the topic my mum has myeloma. first time post in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-has-myeloma-first-time-post#post-87418 Fri, 15 Mar 2013 23:58:55 +0000 Hello

My heart goes out to you and your mum.
Sorry I don,t know your name.
Your mum has has a dreadful journey with myeloma.

I,m sorry I can,t answer your question about the levels as have just been diagnosed myself
I too was experiencing dreadful backache but always seemed to be poorly.which I know now
Was poor immunity.My paraprotein…[Read more]

]]> bc550a565eec14561d566f512f85d3cc JaneFeasey replied to the topic my mum in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum#post-87367 Tue, 12 Mar 2013 07:45:45 +0000 Morning Jackie.

I am to start 3 weekly CTD over 6. to 8 courses.and then to have a SCT if things go well.
Today am back at Haemotology to have my Hb checked as it gad dropped last week to 9.2
So am hoping I can just walk out and not have any treatment
I have 2 grow up daughters ,1 still lives at home
My husband along with the rest of my…[Read more]

]]> 8b8234194e464663b8b43fc506bf19e7 JaneFeasey replied to the topic Our Journey in the forum Newcomers http://www.myeloma.org.uk/forums/topic/our-journey#post-87405 Mon, 11 Mar 2013 12:17:46 +0000 Hi Phoebe

Thanks for sharing you incredible story.
Good luck to you both on this long journey
Stay strong for each other

Jane xxxxx

]]> c89acf4245b1a6ab501409797bf759ad JaneFeasey replied to the topic my mum in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum#post-87365 Mon, 11 Mar 2013 12:12:30 +0000 Hi Jackie,

Hope things are okay with you and your mum.
Haven,t started treatment yet,in the next couple of weeks I presume
Saw the Chemo nurse last week with the treatment info,the do,s and don't,s so much to take in at the moment
Please keep in touch
Stay strong and take one day at a time

Jane xxxxx

]]> d389441541276fcad180f462576d4575 JaneFeasey replied to the topic my mum in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum#post-87363 Wed, 06 Mar 2013 23:04:02 +0000 Hi Jackie

So sorry to read about your mum
I was diagnosed the end of Feb and my family and I are still coming to terms with it all
All the people on here have made me very welcome and offer lots of support and a shoulder to cry on when needed.
Having a supportive family really helps .
If you ever need a rant ,just et me know.
We will all…[Read more]

]]> f3335a98a5dc037fdc4657a701125d92 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/3/#post-87324 Wed, 06 Mar 2013 07:39:24 +0000 Good Morning Vicki and Colin

Thanks for your message
Hope you are both okay today.

So have appointment to see chemo nurses today , have so many questions to ask,
Your comment,has put my mind at ease.

Take care both of you.

Jane xxxx:-D

]]> a84495263bc03b04ef573a82cf302302 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/3/#post-87321 Tue, 05 Mar 2013 17:45:26 +0000 Hello Happy Tom onwards and upwards

Will track you down on Facebook

Jane

Xxxxxxxxxx;-)

]]> 5930d35dd6575cd8ea398cced280da9a JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/2/#post-87319 Tue, 05 Mar 2013 13:59:34 +0000 Tom has warned me about you Eve lol
Also if Tom can get into the under 50,s so can I.
My sense of humour has also got me into hot water many a time.What I think Is funny other people don,t
Who gives a Damn. Now am I allowed to say that on here.lol

Well actually I am thinking Eve ,to give Tom a lovely nickname on here.
Only been on this…[Read more]

]]> a1b23913d540261c5861d0e3f935c337 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/2/#post-87318 Tue, 05 Mar 2013 13:44:39 +0000 Hi Ali,

Was on a downer slowly coming back up.
In answer to your reply when I have to wear a wig at least I,will be saving hours spent on doing other things so that is a massive positive.

The sun is shining and it is lovely and warm today.Happy Days xxx

]]> aeafd860d72625ef015a9187b1f1ccf7 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/2/#post-87314 Mon, 04 Mar 2013 20:57:43 +0000 Hi Eve

How nice to speak to you at last lol
Well I did try 3 times to access this site and thanks to you here I am, on the right site
I hope your husband is responding well to treatment,

Having a good day today my wicked sense of humour will shine through
Now Eve do i stay on this site of do I move help help

Have been thinking how to…[Read more]

]]> 80de136b6c7e67b5ca7f7fa0a8a59634 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/2/#post-87312 Mon, 04 Mar 2013 10:13:47 +0000 Hi Mavis ,
Thankyou for your lovely message and advice
It feels strange to be on the other side I must admit
After years of comforting patients and their families ,I am now one of them
So glad your in remission,do you feel back to your old self,or do you feel different
My hair is very fine anyway,lol, so I reckon I will have to wear a wig…[Read more]

]]> cf378f6d52362605841839486e2420f7 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/2/#post-87309 Sun, 03 Mar 2013 19:15:11 +0000 Hi Vicki.
Thankyou for your lovely message
Do you know,like you said,I knew if one person having myeloma and all of a sudden your surrounded by it.
Unfortunately my daughters mother in law was diagnosed in oct 2012
I read all the info there was to read and then bang wallop here I am.

I hope Colin is recovering as well as can be…[Read more]

]]> a8d25b8361c549976662ebc9da4a0fe9 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/2/#post-87307 Sun, 03 Mar 2013 08:52:48 +0000 Hi Lesley
Thanks for your lovely message

I am sure I will start my treatment in April,as I mentioned to the consultant that the week leading up to Easter was special to me.,and we have so much going on.Unfortunately we just ran out of days and months to book a holiday.

Isn,t this site just wonderful.I know what you mean the reason why we…[Read more]

]]> 11501dad9c331204f9aa22c711263e8b JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/2/#post-87305 Sun, 03 Mar 2013 08:35:46 +0000 Hi Alison,
Thankyou for your lovely message,what a shock for you and your family..I do hope you mum is doing well.
Having wonderful supportive friends and family ,makes the journey so much easier.Ali I look forward to catching up with you soon
Take care

Jane xxx:-)

]]> c1cb96f14dc7a95f6167fc9e020e9c54 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361#post-87303 Sat, 02 Mar 2013 19:41:49 +0000 Hi Jo
Thankyou for your lovely message
What lovely people on this site,and what a comfort that while being on this long journey all together we have each other
Will keep you informed as much as possible.
Have to see the chemo. Nurses next week.O the joys lol

Will be in touch Jo and thanks

Jane
Ps will have to think of a funny slogan…[Read more]

]]> 992e331839766721edf980c73eea12db JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361#post-87297 Fri, 01 Mar 2013 21:37:24 +0000 Hello Tom,
Thanks for your lovely message
Have my comfy slippers on and I live in my dressing gown ,when at home.
Have read a lot of your blogs on here ,and what comforting vibes you give out.
I will drive everybody mad with, my moans,groans,tears etc.
But hey I won,t be the first.
So Tom,look forward to sending you plenty of messages…[Read more]

]]> c5b7b34b82d06730b72af8260234d2cf JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361#post-87298 Fri, 01 Mar 2013 21:27:52 +0000 Hi Emma

Thankyou for your kind message.I do have a positive attitude luckily, and a wicked sense of humour.I think I will need it.
Just taking one day at a time.My family and I have a few tears here and there,which is normal.Working in a hospice mentally I m well prepared.
I do hope your mum is doing well and with love and support from…[Read more]

]]> 9afc25220be8171c393060489dc81ad0 JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361#post-87294 Fri, 01 Mar 2013 15:11:46 +0000 Hello Alison

Thanks for the lovely message and what a lovely warm welcome I have received
Will be on this site many times in the future.Don,t know which way my journey will go but have to remain positive.
So looking forward to the Dex (not) so am happy happy at the moment.Am prepared mentally for the CTD and that s as far as I can go.Spring…[Read more]

]]> e99b6946e72a424a42827f6ffc0df47a JaneFeasey replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361#post-87292 Fri, 01 Mar 2013 15:05:11 +0000 Hello Jean Thankyou for your lovely kind message.Yes it is all very overwhelming at the moment
With the help of my family friends and all you lovely people on this site I will remain positive.
I shall be on here many times,no doubt as will have plenty of questions to raise

Take care Jean and Thanks

Jane x:-)

]]> 81371b30207a3a0d7f323a63732c7274 JaneFeasey started the topic New to this. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361 Fri, 01 Mar 2013 10:22:41 +0000 Hello to all
My name is Jane, I am 53 have 2 daughters and a lovely husband .
I live in Northampton. So my journey started at Christmas when again I was unwell with a head cold. My immune system had been pretty bad for the last few years. After a few blood tests I knew I had Myeloma. I was diagnosed on the 27th February 2013. As of yet all I…[Read more]

]]> 548f6d943c7954785b575597136f81b8 JaneFeasey replied to the topic Another new 'member' in the forum Under 50s http://www.myeloma.org.uk/forums/topic/another-new-member1358129514#post-107078 Thu, 28 Feb 2013 20:35:28 +0000 Hello All
My name is Jane and I was diagnosed with MM yesterday.My immune system has been pretty rubbish and found to have abnormal plasma cells.Haven,t been staged yet,that will be in the next couple of weeks.
I will be starting on Ctd treatment about the beginning of April.
Have found this site so very helpful,and hope that reading these…[Read more]

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