[feaseyjaneParticipant]

Dear Eve. and Slim.

Am so sorry to hear the news.
How gutted you both must feel.
Hopefully the next stage of treatment will sort this awful bloody disease in to touch

Sending hugs from Northampton

Jane
Xxxxxx

[feaseyjaneParticipant]

Hi Everybody

Well went to see the Consultant yesterday .This was after the big
Mix up last week.
Consent forms to sign,and then the big question about Thalidomide .
Had to have a pregnancy test done.O dear my husband and I did laugh.
I think the consultant choked a bit when I said "my husband would want
To know who the father was"
So still a few issues to sort out.
CTD now to start next Wednesday argghhhh
PP are stable at 39 .1

Wishing everybody a Happy Healthy Easter

Ps Tom upwards will find you on Facebook in a mo

Jane xxxxx8-) :-S 😀

[feaseyjaneParticipant]

Hi Babs,

What an encouraging post to read.
Happy Birthday Stem Cells:-)
How lovely visiting Australia,it is a beautiful country

So Babs enjoy enjoy enjoy

Love
Jane xx

[feaseyjaneParticipant]

Dear Sandie,

I am so sorry to read about your mum diagnosed with BC ,as well as having to cope with this blessed myeloma
Sending my wishes and prayers to you both

Love
Jane xxx

[feaseyjaneParticipant]

Hi Nerys

Just thought I would drop you a line to see how you all are.
Any news on mum,s SCT and how is she feeling at the moment

Sending hugs to you both

Keep well and warm

Love jane xxxxxxxxx

[feaseyjaneParticipant]

Hi Dick,
So sorry to read about your recent diagnosis.I to only found out about 7 weeks ago.
Haven,t started chemo yet,have the joy of that next week.
You didn't,t say what chemo drugs you are on.
It must be very difficult ,for you living in a different country.

This site is marvellous , and hopefully people can offer you lots of advice.

It's hard putting on a brave face,but with love and support from your family
It will help through the dark times

Take care

Jane :-S

[feaseyjaneParticipant]

Hello Tom

Nice to hear from you.
Had a visit to haematology today only to be told the Consultant was sick argggghhhhh.
Had bloods taken,no major change
So hopefully will get a call next week as to when I start CTD.

Have a. Very busy week on hence the reason why I delayed the treatment
My daughter and son in law are moving Friday and from then on i will be enjoying e week with hubbie .

How lovely looking after your grandchildren they keep you forever young.
We are are not blessed with any yet.

So Tow onwards and upwards keep well and when I et. Minute will check you out on Facebook

Love Jane:-S

[feaseyjaneParticipant]

Hello Tom

Good to hear from you
Thanks for the info
I hope it will be the same for me then lol.
I might just ask them to put me in an induced coma for two weeks when I have SCT.lol.
Hope your keeping well .
What are you up to for Easter
Are you doing any special

Speak soon onwards and upwards. Tom.

Jane xxxxxxxxxxx.

[feaseyjaneParticipant]

Hello to you all.

Welcome to all newcomers.

Well it's been a while since I wrote something on here , and wondered should I write about my last
Visit to the hospital

This is written with my sense of humour so please don,t take offence
So off I trot to the hospital 2 weeks ago to have my hb checked as was low the week before.
This is the funny part I,m needle phobic so work my self into a frenzy before I give blood
Was told I might h ave to spend 4 weeks in hospital when and if I have S C T, I nearly passed out with shock.
I was also told about the medication I am to be on.Can,t stand taking tablets.
When I was walking out those hospital doors that cigarette was out the packet before you could say Jack Robin lol
I had a very large glass of red that night.

So the moral of this story is

Keep Calm and Carry On
Till I can,t stomach the wine or ciggies .

Does anybody else smoke ,have read through older posts and its never mentioned x

[feaseyjaneParticipant]

Hi Norma

Hope everything went well today

Jane x

[feaseyjaneParticipant]

Hello

My heart goes out to you and your mum.
Sorry I don,t know your name.
Your mum has has a dreadful journey with myeloma.

I,m sorry I can,t answer your question about the levels as have just been diagnosed myself
I too was experiencing dreadful backache but always seemed to be poorly.which I know now
Was poor immunity.My paraprotein level was 105 and is at the moment 95
After a sketetal x ray my bones are okay so fingers crossed
I am to start CTD very soon

This is a wonderful site ,and I,m sure many people will answer your questions.
As you will be told ,like I was try and remain positive.This is hard and many a day doesn,t go by when I have a few tears.

Take care

Jane xxxxxxx

[feaseyjaneParticipant]

Morning Jackie.

I am to start 3 weekly CTD over 6. to 8 courses.and then to have a SCT if things go well.
Today am back at Haemotology to have my Hb checked as it gad dropped last week to 9.2
So am hoping I can just walk out and not have any treatment
I have 2 grow up daughters ,1 still lives at home
My husband along with the rest of my family have been wonderful.

Glad you had a wonderful Mother,s Day with your mum and she enjoyed it.
It must be hard with young children trying to juggle your own life as well as staying strong for your mum
They will be your salvation believe me.
Remember to look after yourself and have Me Time now and again it will help
Take care Jackie

Will be in touch:-D

Jane xxxxxxx

[feaseyjaneParticipant]

Hi Phoebe

Thanks for sharing you incredible story.
Good luck to you both on this long journey
Stay strong for each other

Jane xxxxx

[feaseyjaneParticipant]

Hi Jackie,

Hope things are okay with you and your mum.
Haven,t started treatment yet,in the next couple of weeks I presume
Saw the Chemo nurse last week with the treatment info,the do,s and don't,s so much to take in at the moment
Please keep in touch
Stay strong and take one day at a time

Jane xxxxx

[feaseyjaneParticipant]

Hi Jackie

So sorry to read about your mum
I was diagnosed the end of Feb and my family and I are still coming to terms with it all
All the people on here have made me very welcome and offer lots of support and a shoulder to cry on when needed.
Having a supportive family really helps .
If you ever need a rant ,just et me know.
We will all get through this together

Take care Jackie

Jane xxx

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