[fendi03Participant]

Absolutely – Wishing fellow MM warriors well with their SCTs is EXACTLY what a ‘Support group’ is there for (as well as sharing experiences/side effects of meds).
I can’t believe that escalated as quickly as it did to secondary kidney failure…how on earth?! Treatment is going to affect everyone differently but that is what your medical team is there for, they take care of our body and we take care of our minds.
I do think this forum tends to be more upbeat with lots of patients sharing their positive experiences, lengthy remission times and developments in treatments (of which there have been many in the last 5-10 years alone and more in the pipelines).
No apology necessary ree2112, I think a lot of us would feel the same way!

[fendi03Participant]

I agree with Mulberry – our wants and needs do change of time, particularly when it comes down to things like Facebook. Some support groups are great (as ree2112 notes, SCT recovery chart etc) but when members post of those passing, it can be very distressing and triggering to those that have been diagnosed recently and have joined these groups for support.
I always look to the Myeloma website for up to date information about diagnosis & prognosis because, as we all know, it is now more frequently being treated and referred to as a chronic illness.
If in doubt, speak to your team is what I say.

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