I am sorry that you have not yet received any responses to your post. My name is Katie and I am one of the Myeloma Information Specialists here at Myeloma UK, I hope you don’t mind me replying on this occasion.
Unfortunately, fatigue can be a common complication of myeloma and its treatment. There can be a variety of causes, but it commonly occurs as a result of anaemia, which would be picked up in your routine blood tests. Treatment is always a balance between the need to bring the myeloma under control on the one hand, and not cause too many side effects on the other – this is mostly a balance that can be achieved. I would encourage you to speak to your medical team (haematologist and clinical nurse specialist) again. They should be able to provide further insight into the causes of the fatigue you are experiencing based on the results of your blood tests and suggest ways to manage it.
You might find the following resources useful:
• Our Fatigue Infoguide
• Our video about coping with myeloma induced fatigue
• Our Ask The Nurse blog about fatigue
Our Patient Diary has a section to record symptoms and side effects. This may be useful to help you keep track of your symptoms and to help accurately describe them to your medical team.
I hope this has been helpful but if you have any further questions, or would like to talk things through, please feel free to call the Myeloma Infoline on 0800 980 3332, or alternatively you can email directly to askthenurse@myeloma.org.uk
Katie
