[fluffyflavParticipant]

Hi Deeceebee. I began treatment on the Tuesday and was admitted to hospital the following Sunday with hi temp. Spent the day on an antibiotic drip. Same again the following Saturday when again hi temp and pains in legs. Solution the same with most of the day on a drip. Things have settled down since. Currently on chemo cycle four and no reoccurrence of hi temps or infection. Possibly just my body getting used to the drugs. Fingers crossed you will be the same and things will improve.

[fluffyflavParticipant]

Cheers mate.

[fluffyflavParticipant]

Thanks jb2514. You have no idea the number of times I’ve had a bollocking for using the phrase ‘I’m just going to have to man up’. Great things have returned to normal after your SCT and I’m confident I’ll have the same reaction once I’ve had mine. Can I ask where you had yours?

[fluffyflavParticipant]

Hi Newscan. Similar experience to mine. Oct last year had unrelated blood test, urgent appointment arranged with haematology couple of weeks later in a MacMillan centre attached to my local hospital. On the day said to my wife to go off to the shops rather than wait for me, whilst waiting noticed all these signs about cancer and finally put two and two together. Phoned my wife and said it might be better if she came back and went in with me. Long story short, diagnosed with multiple myeloma at beginning of November followed by CT scan, MRI and bone marrow biopsy etc. End of November got the full extent of the damage. Unfortunately my mum passed away at the same time so delayed treatment to the end of December. Just completed the second cycle of chemo today with cycle 3 starting tomorrow. Already have an appointment at Addenbrooke with the stem cell transplant team on 3rd April to discuss the transplant. It was all a massive shock to start with, fit and healthy all my adult life and just never expected this to happen to me. I’m sure it was the same for you. Heartbreaking having to tell my sons and sisters, I left telling he grandkids to their dads as that would have been a bit beyond me. Now treatment has started I’m much more positive although the timescale of treatment is still pretty daunting. If it wasnt for my wife not sure how I’d have dealt with things. You’ll get through it as just like me you have to. Free parking is good. Take care.

[fluffyflavParticipant]

Thanks stillgoing. Another sleepless night last night due to the PN pain in my hands. Meeting with consultant next week so will discuss the sleeping issue with her and see where we go. Thanks for getting back to me.

[fluffyflavParticipant]

Hi Stillgoing. Just seen your post. I’m currently half way through four chemo cycles and dealing with all the crappy affects but struggling with the peripheral neuropathy. It pitched up after towards the end of the first four week cycle and was given gabapentin. Didn’t really help so consultant haemotologist reduced thalidomide by half and increased the gaba dosage. Helped a bit to start with but has got worse over the last week or so. Currently in my hands, wrists and fingers, big toes and affecting my balance plus of course the sleepless nights. Gabapentin dosage now at its max although takes a few days to take effect and thalidomide stopped until next meeting with consultant when I’m assuming a different drug will be introduced. I got a few exercises for both hands and feet on YouTube which at the very least stretched the muscles and use a heat and a cold pad throughout the day and before bed which do seem to help. If I get four or five hours sleep I’m happy and with the gabapentin and the stretching I’m managing to get. Treatment centre have told me to let them know if the sleep problem becomes a real issue but not sure I want to go down the line of some kind of sleeping tablets. Hope you’re finally getting your sleep problem sorted and good luck with the rest of your treatment.

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