Flyfisher

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    flyfisher
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    Hi Regine

    Sorry to hear about your diagnosis but wish you luck with whatever treatment regime you go for.

    After my diagnosis in 2016 I was told by my consultant that I should be suitable for SCT and was therefore not given a choice and was given Velcade for 9 months prior to my SCT which was in November 2017.

    Unfortunately I regressed 6 months after SCT and am now on lenalidomide with ixazomib and dexamethasone which I will remain on as I do not have the option of a 2nd SCT due to the short remission time.

    Whilst SCT is not a pleasant experience it is at least only short term and hopefully would give you a longer remission period.

    I am now 11 months into the lenalidomide regime which at certain times causes various problems/ side effects and will continue to do so but as this is now my only option I am learning to cope with them.

    It is a difficult position for you as everyone reacts differently to the various treatments but on balance I would say that I was glad I had the SCT.

    Hope this helps

    Regards colin

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