Hi Jean

At long last, hope all goes well.

With Peter at the moment. He is now in isolation, throat swollen, rash on his back. Living off ice cream and jelly. Not too bored at the moment and sleeping quite well.

Nurses are brilliant.

Good luck to Frank, speak soon

Love Ann and Peter

X

Hi Jean

Hope you get the call soon, you have waited so long, things need to start moving soon.

Pete has completely lost his appetite. I took him in some cheese rolls, at his request – he cannot get on with the hospital food, but he only managed to eat half a roll, said his throat is so dry, cannot swallow easily, that is all he his has eaten…[Read more]

Hi Jean

Really pleased things are going to plan. Save me repeating myself – I have started a new thread.

Take care and keep in touch

Love Ann
xx

Hi Chris and Lena

Really pleased to hear you are doing well Chris, great to hear from you both.

Pete has asked me to reply, for some reason he cannot connect to internet, he is going to have another go tonight.

He had line fitted yesterday, but they had to go through his neck! Even Dr Bolam could'nt get it in the normal way. He was…[Read more]

Hi Jean

Oh so pleased, at long last!!! I have been checking your posts hoping to see this announcement!!!!!

Pete went in Monday for his SCT.

They had problems fitting the line and so in the end it had to be inserted through his neck. The consultant said that 9 out of 10 lines go in really easy, trust Pete to be the unlucky one. Really…[Read more]

Hello Dai

Yes they are going to save 50% for a later date, if needed!!! Hopefully that will not happen!!

Hope you are ok and keeping well.

Ann and Pete

Hi Vicki and Colin

Hope all goes well for the bone marrow test.

Not heard from Biker Chris, so if you are out there Chris, let us know.

Feel for Jean and Frank, but do you think it is a postcode lottery!!

Speak soon, keep in touch

Love Ann and Pete
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Hi Jean and Frank

Yes I have been looking at your posts and did wonder why you had'nt said anything about an admission date.

I think Pete has been really lucky,obviously, right time, right place.

Keep in touch Jean

Best wishes

Ann

Hi all

Have'nt posted for a while because no news since Pete failed to produce enough stem cells in December for the SCT.

I do visit the site nearly every day, just to see everyone's progress, even though it is good and perhaps not so good news at times.

Well he hit the jackpot today due to a Prelixifor injection – 3.5 million which…[Read more]

Hi Dai

Best wishes, have a good Christmas

Love Ann and Pete

x

Hi Chris

Thanks for your message. Not too down, don't mind another visit, (well I have'nt got a choice and the end does justify the means!!)

Bumped in to Dr Bolam at Musgrove yesterday whilst there for bone treatment. He said he would get me in for an appointment in the next couple of weeks to arrange schedule.

No hair loss to date, but…[Read more]

Hi Debs

Just wanted to say, read your article in Myeloma Matters. Beautifully written and you look great!!!!!

Best wishes

Ann and Pete
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Hi Jean and Frank

What great news!!! Well done Frank.

Have a lovely Xmas and a very Happy New Year

Best wishes

Ann and Pete

xx

Hi Jean

Oh thanks for that, hopefully Pete's consultant will say the 1.6 million is enough.

Hope Frank is feeling a bit brighter.

Again, best of luck for tomorrow, let us know how he gets on

Ann
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Hi all

Well today was so disappointing!!! They only managed to get half a million cells, a grand, or not so grand total of 1.6 million. They put Pete straight on the machine, without waiting for this mornings blood results??? Probably a good job as his levels had dropped to 8 overnight and so I doubt they would have even tried again today!…[Read more]

Hello all

Just a quick update on today at Southmead. Pete was borderline – 9, but they decided to go ahead with the procedure. He spent 3.5 hours on the machine and before we left the nurse did mention that they did not think that he had produced all that many cells. Anyway doctor has just rang and said was just over a million, which is alot…[Read more]

Oh good to hear from you Vicki and really pleased to hear Colin doing ok, so sad about his dad, but as you say it never rains but pours!!!.

Pete ok, he met Biker Chris and his wife Lena on Friday when he went for his consultation. I was'nt with him, but he did say, got so much info from someone who has been through it all, he really did enjoy…[Read more]

Hi all

Yes, do intend to set up a thread, but thought I would wait until 17th when stems cells are hopefully removed successfully etc etc.

You guys have been so helpful, thank you so much!

Pete feels really well, even did some DIY on Friday, could'nt believe it, but then again, everyone so different.

He will go back to work tomorrow,…[Read more]