Hi Gill

Please don't feel that you need to apologise!!! I am sitting here crying, for you mainly because I thought your post was so moving – and also because my husband, also 57 went to bed at 7.30pm tonight. In so much pain, it is spreading on a daily basis! We are starting to think that perhaps not all related to myeloma!!! I just cannot bear…[Read more]

Hi Vicki

No, it does'nt get any easier, does it!!!! After only just over one week on the CDT, I have seen quite a change in Pete (really just over the last 2 days), but unfortunately not for the better. The pain has not gone away,just moved from upper back to shoulder, as I previously mentioned, and now at the front of his ribs. If only he…[Read more]

Thanks Tom

Another question answered!

Take care

Ann

x

Hi Vicki

I have posted a general message, but just wanted to know how you and Colin were? hope you are both well.

Really think that it has just hit me!!! Seeing Pete so poorly, just feel so useless and sad. But saying that, so many positive comments on this site, can't spend time feeling sorry for myself!!! – Pete is so positive, despite…[Read more]

Hello all

Hope you don't mind me bothering you again, but I do have a question!

Pete started CDT last Saturday, fine for 2 days, his upper back pain actually eased, but after bone drip (pamidronate)on Tuesday, he has felt quite rough! He then got a terrible pain in his left shoulder. still not gone away.

He was told about side effects and…[Read more]

Great News David

Best wishes

Love Ann and Pete

xx

Hi Vicki

Nice to hear from you, hope Colin is keeping ok and you too!

Yes Pete started tablets on Saturday, had a really good day Sunday, upper back pain actually disappeared for first time since end of December. He felt quite upbeat, no obvious side effects.

He went for a bone drip on Tuesday- Pamidronate (Aredia). (Has to go once a…[Read more]

Hi Vicki

Anytime you need to talk, please do, you will be helping me as well!!!!

Have a nice evening

Ann

xx

Hi Vicki

Pete was diagnosed a couple of weeks ago, I really don't know what I would have done with out this forum. Such lovely lovely caring people!!!!

I am really sorry to hear about Colin,but as you know it really is an individual condition (OMG, I sound like an expert now), but no, it is only from reading the comments posted here. Pete…[Read more]

Thanks everyone, just rang ward 9 at Musgrove and they answered my queries.

Best wishes

Pete

Hi everyone

Originally posted this to Tom,but just incase he is away, would really appreciate any comments.

Pete picked up tablets today (were not ready yesterday for him). We have spent the last hour sorting them out. He has got 6 lots to take plus aspirin, is this right? Really confused as on Dexamthasone and Cyclophospamide,the…[Read more]

Hi Tom

Its Ann (Pete's wife), sorry to trouble you. Pete picked up tablets today (were not ready yesterday for him). We have spent the last hour sorting them out. He has got 6 lots to take plus aspirin, is this right? Really confused as on Dexamthasone and Cyclophospamide,the instructions say 10 tablets weekly!! Does Pete just decide how he…[Read more]

Thanks Tom

You are always here for everyone

Good wishes

Pete

Hi all

Got skeletal xray results today. Has confirmed small holes in the bones, commence CTD on Thursday. We did'nt really take alot in at the consultation, but know that this is in the form of 3 types of tablets – plus aspirin to avoid clotting!!! – taken daily for about six months. Doctor also said I would need to spend an hour a month on a…[Read more]

Hi Ted, thanks for your reply. May I ask a stupid question? Docs said to Pete that if myeloma has'nt spread to bones, no treatment necessary!! Why can't they 'nip it in the bud now' -why wait for it too spread and how does it develope, we are both so confused, we have read all the literature etc etc Just don't understand?

Kind regards

Ann…[Read more]

Hi Debs, thank you, how are you doing at the moment? Still feel this illness is 'wide open'. No one seems to have the same symptons!! They still donot know if Pete's upper back pain is connected to the illness. Can you help with my worries??

Kind regards and best wishes

Ann
xx

Hi Paul

Really appreciate your reply, can I ask if your back pain is upper or lower and do you experience rib pain?
Regards

Pete

Hi all, this is Pete (husband of Ann)! Yes!! she made me read all your lovely messages and I must admit I was very touched, it seems true that only bad things happen to nice people, judging by your comments and pictures (not that it should happen to bad people!) Went for my skeletal xray yesterday and so now have to wait until Tuesday for…[Read more]

Thanks to all for your lovely responses. I visited the forum just to get it off my chest, never thinking I would get one reply let alone so many!!! As they say, it does help to talk.

Kind regards and best wishes to you all.

Ann

Hi Tom, thank you for your response, there is a god out there!! As I said earlier, felt so alone, but now I know that there are people to talk to on the myeloma site to exchange views, ask questions etc.

Pete is being treated in Musgrove Hospital in Taunton, hopefully I can get him to visit this site, just to talk, doubt though, he is…[Read more]