[foxy555Participant]

Thanks everyone, just rang ward 9 at Musgrove and they answered my queries.

Best wishes

Pete

[foxy555Participant]

Hi everyone

Originally posted this to Tom,but just incase he is away, would really appreciate any comments.

Pete picked up tablets today (were not ready yesterday for him). We have spent the last hour sorting them out. He has got 6 lots to take plus aspirin, is this right? Really confused as on Dexamthasone and Cyclophospamide,the instructions say 10 tablets weekly!! Does Pete just decide how he takes them, ie 2 a day and 2 days free. Would have rang hospital pharmacy but obviously closed at week-ends and we want to get moving tomorrow with the medication.

Any advice would be most helpful, just a bit frightened at the moment!

Many thanks

regards

Ann

[foxy555Participant]

Hi Tom

Its Ann (Pete's wife), sorry to trouble you. Pete picked up tablets today (were not ready yesterday for him). We have spent the last hour sorting them out. He has got 6 lots to take plus aspirin, is this right? Really confused as on Dexamthasone and Cyclophospamide,the instructions say 10 tablets weekly!! Does Pete just decide how he takes them, ie 2 a day and 2 days free. Would have rang hospital pharmacy but obviously closed at week-ends and we want to get moving tomorrow with the medication.

Any advice would be most helpful, just a bit frightened at the moment!

[foxy555Participant]

Thanks Tom

You are always here for everyone

Good wishes

Pete

[foxy555Participant]

Hi all

Got skeletal xray results today. Has confirmed small holes in the bones, commence CTD on Thursday. We did'nt really take alot in at the consultation, but know that this is in the form of 3 types of tablets – plus aspirin to avoid clotting!!! – taken daily for about six months. Doctor also said I would need to spend an hour a month on a drip to strengthen the bones. All I want at the moment is relief from the pain in my back and a good night's sleep. After 6 months they mentioned a stem cell transplant. Alot to take in today, but will read back at all your postings and perhaps all the terminology will make more sense. Not a nice day, but thanks to you all – this site has been so good for us both. Will keep in touch, let you know how the 'pill popping' is going.

Take care all of you.

Best wishes

Pete

xx

[foxy555Participant]

Hi Ted, thanks for your reply. May I ask a stupid question? Docs said to Pete that if myeloma has'nt spread to bones, no treatment necessary!! Why can't they 'nip it in the bud now' -why wait for it too spread and how does it develope, we are both so confused, we have read all the literature etc etc Just don't understand?

Kind regards

Ann and Pete
x

[foxy555Participant]

Hi Debs, thank you, how are you doing at the moment? Still feel this illness is 'wide open'. No one seems to have the same symptons!! They still donot know if Pete's upper back pain is connected to the illness. Can you help with my worries??

Kind regards and best wishes

Ann
xx

[foxy555Participant]

Hi Paul

Really appreciate your reply, can I ask if your back pain is upper or lower and do you experience rib pain?
Regards

Pete

[foxy555Participant]

Hi all, this is Pete (husband of Ann)! Yes!! she made me read all your lovely messages and I must admit I was very touched, it seems true that only bad things happen to nice people, judging by your comments and pictures (not that it should happen to bad people!) Went for my skeletal xray yesterday and so now have to wait until Tuesday for another consultation.

At this moment in time, being a bit selfish because with upper back pain it has stopped me playing golf – been 5 months now!!

I have found it so frustrating the length of time it has taken to get to where I am at this moment of time, just a waiting game, but I am sure you have all experienced this. NHS have been very good however, once they got the ball rolling!

Thanks again for all your positive comments and support.

Best wishes and thanks again

Pete

[foxy555Participant]

Thanks to all for your lovely responses. I visited the forum just to get it off my chest, never thinking I would get one reply let alone so many!!! As they say, it does help to talk.

Kind regards and best wishes to you all.

Ann

[foxy555Participant]

Hi Tom, thank you for your response, there is a god out there!! As I said earlier, felt so alone, but now I know that there are people to talk to on the myeloma site to exchange views, ask questions etc.

Pete is being treated in Musgrove Hospital in Taunton, hopefully I can get him to visit this site, just to talk, doubt though, he is stubborn!!!

Kind Regards and best wishes.

Ann

[foxy555Participant]

Oh thank you for your reply David. Really made my day to think people out there do care!! Oh bye the way, we have friends in Spain at moment, weather is lovely. Have a good trip. x

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