Myeloma Forum | fozz | Activity

fozz replied to the topic Recurrent kidney infection - any advice? in the forum Smouldering myeloma / MGUS

Tue, 03 Mar 2015 19:34:40 +0000

Hi Graham, I’ve just had a look on my print outs and the last eGFR was 71 so I guess it’s still pretty ok. Kath x

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Tue, 03 Mar 2015 18:59:41 +0000

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Tue, 03 Mar 2015 18:55:11 +0000

fozz replied to the topic Recurrent kidney infection - any advice? in the forum Smouldering myeloma / MGUS

Tue, 03 Mar 2015 17:51:23 +0000

Thank you Graham, I’ll have a look for that figure, it’s not one I recognise. I know they do creatinine etc but there’s lots of separate figures for that.

Kath. X

fozz started the topic Recurrent kidney infection - any advice? in the forum Smouldering myeloma / MGUS

Tue, 03 Mar 2015 10:22:39 +0000

Hi, since the beginning of January I have had a kidney infection. I’ve had about 8 courses of various antibiotics, several cultures for specificity and antibiotics changed accordingly.

I’m currently diagnosed as MGUS but prof cook requested a repeat round of bloods at the start of the infection and they showed a rise in m spike and sflc ratio…[Read more]

fozz started the topic Confused and worried. in the forum Newcomers

Wed, 18 Feb 2015 18:48:40 +0000

Hi all,

I wonder if anyone can help either to help me understand things or help stop me from worrying?

I’m 44 years of age, female and have 3 children.

I was diagnosed with MGUS about 7 weeks ago, my m spike was 9g/l and everything else in the bloods was normal. BMB showed less than 1% plasma cells with 77% of those with neoplastic…[Read more]

fozz replied to the topic Paraprotein gone from 9 to 13 in 2 months in the forum Smouldering myeloma / MGUS

Sat, 14 Feb 2015 15:05:06 +0000

Thanks Ian. It’s the waiting game that’s hard, the waiting to see if it goes up again and the limbo land of will it or won’t it. I’m happy it’s MGUS and nothing more but there’s just always that possibility of it progressing. I just need to get my head round it which was going ok until this jump in the levels. Now I’m waiting to see what prof cook…[Read more]

fozz started the topic Paraprotein gone from 9 to 13 in 2 months in the forum Smouldering myeloma / MGUS

Fri, 13 Feb 2015 10:56:28 +0000

Hi all, I haven’t been on here for a while as I’ve tried to keep busy and positive. I had a diagnosis of MGUS in January following BMB which showed .77 % plasma cells of which 79% have neoplasia markers and skeletal survey showed no convincing lyric lesions. Then out of the blue I got the mother of s kidney infections and my gp suggested I phoned…[Read more]

fozz started the topic Low blood pressure after bmb in the forum General

Fri, 12 Dec 2014 22:17:44 +0000

Hi all,

I had my first bmb today, the procedure went well, I had local and felt only a little discomfort. A few minutes after the plaster was on I felt very faint. They took my bp and it was 63 over 52. They made me drink lots and said they would need to give me iv fluids if it didn’t come up. It took about 3 hours to come up but I didn’t need…[Read more]

fozz started the topic Another agonising wait... in the forum Newcomers

Thu, 27 Nov 2014 19:44:53 +0000

Six weeks ago I saw my GI consultant and she said she wanted a blood test repeating. I asked what it was, she said I have a raised IgA paraprotein and she wanted to see if it was still raised. Naturally I googled it. When those blood results came back the IgA was still raised at 12g/L and she requested a haematology referral. I asked for a print…[Read more]

fozz replied to the topic Blood results in the forum Newcomers

Sun, 16 Nov 2014 21:52:00 +0000

Thank you for your reply Mavis,

I’ve not had any x-rays or anything else other than bloods done so far. My bloods showed that I’m slightly anaemic, my white cells are low and my neutrophils are low. There’s no evidence of kidney damage but I do get a lot of kidney infections amongst other infections. I’ve just had 14 days of antibiotics for a…[Read more]

fozz replied to the topic Blood results in the forum Newcomers

Thu, 13 Nov 2014 19:00:06 +0000

I’ve now had a referral to haematology. I’ve found out that my IgA paraprotein is 12g/L and I believe anything over 10 is for referral. I’m hoping to get the letter with all my results on tomorrow.

What questions should I be asking the haematologist?

Thanks

fozz started the topic Blood results in the forum Newcomers

Mon, 10 Nov 2014 19:36:13 +0000

Hi,

After a bit of a battle I have finally managed to get some of my blood results but I don’t know what they mean and now I have an agonising wait until my gastro consultant gets back off her holiday as it was her that ordered the blood tests and my gp doesn’t know what my results mean!!

All I know is that the IgA is still raised with a…[Read more]

fozz replied to the topic Any advice really welcome! in the forum Newcomers

Fri, 07 Nov 2014 18:14:50 +0000

Hi again,

I’ve finally got a little bit more information about my blood test results. My iga is unchanged (from what I don’t know and it doesn’t show on screen what level it’s at apparently!), my igg is unchanged (but is apparently low) and my igm has increased by 8%. Does all this mean anything without the actual levels?

fozz replied to the topic Any advice really welcome! in the forum Newcomers

Wed, 05 Nov 2014 15:56:37 +0000

Hi,

I’m still getting no answers. I still haven’t had the results of the last blood test to check the iga paraprotein level. I phoned the doc today and she said he isn’t in today but will get him to chase the results tomorrow and phone me. Meanwhile I’m on my 2nd course of antibiotics for my chest and still no improvement. My full blood count…[Read more]

fozz replied to the topic Any advice really welcome! in the forum Newcomers

Sun, 02 Nov 2014 00:02:22 +0000

Thank you for your replies Jan and Eve. I’m still trying to get hold of my results, it’s been a bit of a battle trying to get the iga results out of them. I had the bloods done on Tuesday and by Thursday I was so poorly with chest they admitted me, the hospital sent me home to continue with antibiotics after taking a chest xray and confirming that…[Read more]

fozz replied to the topic Any advice really welcome! in the forum Newcomers

Mon, 27 Oct 2014 16:30:46 +0000

Thank you for your replies. I saw the doc last week and they didn’t have the iga levels on their system and they’re trying to get them. I also phoned my gastro consultants secretary as it was the gastro consultants tests that found the raised iga and I’m still waiting to here from her too. Meanwhile I’m struck with another hideous chest…[Read more]

fozz started the topic Any advice really welcome! in the forum Newcomers

Tue, 21 Oct 2014 18:08:46 +0100

Hi everyone, I wonder if you might be able to give me your knowledgeable opinions? I saw my gastro intestinal consultant on Friday whom I have been under for just over 6 months. I last saw her 3 months ago and she noticed the results of a blood test I had done as an in patient when I had had a series of recurrent infections (pneumonia and…[Read more]