Thank you for sharing your story.

My father 52 has just had 2 cycles of DT-Pace and is now ready for his stem cell transplant he is also being treat at the Marsden Sutton by Dr Boyd and Dr Kaiser. How long after your stem cell did you then have to start VDT?

Many Thanks.

My Father has been on a few courses of Velcade but had no real side effects from it. After the Velcade was given he would get a small like welting mark on his skin no pain from it the doctors gave him some cream which cleared it up. He has started to have some pain in his legs but we think that could be nerve pain from Thlamidomide…[Read more]

Thank you so much for your reply and advice I really appreciate it.

We are indeed going to speak with the consultant however he hasn’t had a great path so far so we are getting a second opinion as he doesn’t seem to be responding to treatment. bless him.

I wish you all the best and hope this works well for you.

P.s Dad also suffered…[Read more]

My father has just finished his first cycle of VDC. He was on a 3 week cycle. Now he has a 6 day break but he has started to get headaches. I have read online that could be weaning off the Dex.

Has anyone else ever experienced this if so what has worked to get rid of the headache.

Paracetomal doesn’t seem to be working.

Thanks in advanced…[Read more]

I complete relate to your story!

My father was taken to hospital with a shadow on his lung we were told the high chance was he had lung cancer 1 month later we were told it was myeloma he has no other symptoms apart from the a broken rib which is his only lesion with a pin prick on his hip.

I was so confused how they came to this diagnosis,…[Read more]

Thank you so much for your reply.

I will let him know regarding the running.

Regarding the SCT and the mixed opinions it is very tough however I agree as he is young he should go ahead but I think it’s the worry which is why I asked the question.

He has already started his Zometa and due to has his 3rd one this week, however I…[Read more]

I hope you won’t mind me writing in here as ny father is  51 🙂

we found out in June that my father had myeloma like others it came as massive shock to us.

my first question is does anyone that has been diagnoised ever run? My father was running around 20 k per week before and now were not sure if he can do any. Can anyone please advise? I…[Read more]

You can read up on CTD via this website i’m not really sure I would explain it correctly.

It sounds as though we have a similar story my father also is very fit and we don’t have cancer in our family.

The only thing we think could be linked is that he has had shingles twice about 2 years.

I really do hope there will be a cure…[Read more]

I have heard of it but I don’t know of anyone that has tested it yet.

My father is due to start treatment of CTD tomorrow, but when he was diagnosed a few weeks ago we have changed his diet. Specialists will say there is no specific diet but we say it’s worth a try. I researched different cancer related diets and came across a spice called t…[Read more]