Hi everybody – I need some help.
I was fortunate and got onto the RADAR clinical trial after diagnosis of Multiple Myeloma in July. However after a recent serious reaction to Stem Cell Harvesting just prior to the planned Transplant process, I was taken off the trial due to potential ‘risks’ so no chance of transplant now.
This occurred […] View
HiBrewy
I had my sct cancelled due to a severe reaction after 4 cycles on the RADAR medical trial. This was supplemented with a further 4 cycles of chemo in which because I wanted have the lenalidomide I had to provide that myself privately as the NHS would not supply it as part of my ongoing treatment.
result was a success, I have now had 13 months of full remission and things are still good.
My consultant was very keen for me not to take any maintenance drugs whilst in remission as the concensus was that the effectiveness of lenalidomide as maintenance will gradually reduce and by the time I get to the first relapse it would be totally ineffective, thus removing an important drug which would be part of the regime for the relapse treatment.
Like you things are good for me at the moment, and long may it last.
Take care and I hope things stay good for you.
Hope this helps,
Graham
Hi, I had 8 months of Lenalidomide, taking it morning time 3 weeks in 4, it worked great, I have had 11 months of Full Remission so far, no issues/side effects with the Lenalidomide, no sleep issues either.
Hope this helps
