Hi
Just a quick reply to your post
I was diagnosed in march last year with light chain myeloma and no para protein
I was started on Daratumumab lenalidomide and dex one week later after that awful bone marrow biopsy
My light chains were at 28000
Apart from 4 days of chronic toilet issues and losing 8 pounds in weight the side affects were mild
Sleeping on the day of taking dex is still an issue but helped by Nytol before bed
This continued for almost six months and eventually the numbers went to 1600
Then the great hand in the sky said too easy mate and the Dara stopped working and numbers shot back to 5000
I’m 74 years old
Straight away I was put on Belamtumab and Velcade ewith dex in the day of IV
NO side affects to speak of but I do take one ceterizine (anti histamine) to combat rashes caused by co trimoxazole
I have only had one cycle so far because of mild eye problems but continue weekly Velcade
My numbers at the start of December were 56
So something is happening, and hopefully back to the full medication later this month.
One never knows as it is different for everyone but hey ho I’m still the right side of the green stuff
Keep positive , keep moving and keep busy
All the best David
