graham-c replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS 9 years, 3 months ago
Hi Heather.
I have always felt that my immune system and reactions were unpredictable and sometimes absent or over reactive. I gave up having winter flu jabs after I had a particularly bad reaction some years ago and it was undoubtedly down to the the vaccine. More recently, since Haematology have become more excited about my results (which I…[Read more]
graham-c replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS 9 years, 3 months ago
Just to clarify something, in MGUS paraproteins are a marker for all patients and the kappa/lambda ratio is also relevant to everyone. I have had a kidney removed and I pay particular attention to the eGFR figure which is a measure of kidney efficiency because that is an organ that can become affected.
On your tests IgG relates to one particular…[Read more]
graham-c replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS 9 years, 3 months ago
I’m sorry to her about your experience jaylo47 and it does appear that there is a much better set up in Leicestershire as you say, where I live.
The benefit of being referred to a specialist is that you’ll enter a regular regime of tests which are then monitored by an expert. I started off with a whole body skeletal scan and bone marrow biopsy. M…[Read more]
graham-c replied to the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 9 years, 3 months ago
That was unexpected. I was having blood tests every 3/4 months with a nurse due to call me with results which was a reflection of my very low risk category, and I was happy with that. In fact I had been thinking I might be discharged.
The phone call last week asking me to call in to the hospital suggested that things had changed but, even then,…[Read more]
graham-c replied to the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 9 years, 3 months ago
That was unexpected. I was having blood tests every 3/4 months with a nurse due to call me with results which was a reflection of my very low risk category, and I was happy with that. In fact I had been thinking I might be discharged.
The phone call last week asking me to call in to the hospital suggested that things had changed but, even then,…[Read more]
graham-c started the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 9 years, 3 months ago
I haven’t posted recently because nothing much has changed until now.
Having been rolling along with MUGUS quite happily for a number of years I had become quite accustomed to having the regular blood tests with nothing exceptional happening.
Being MGUS I consider that I should not be having symptoms and, any symptoms I do have cannot be…[Read more]
graham-c started the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 9 years, 3 months ago
I haven’t posted recently because nothing much has changed until now.
Having been rolling along with MUGUS quite happily for a number of years I had become quite accustomed to having the regular blood tests with nothing exceptional happening.
Being MGUS I consider that I should not be having symptoms and, any symptoms I do have cannot be…[Read more]
graham-c started the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 9 years, 3 months ago
I haven’t posted recently because nothing much has changed until now.
Having been rolling along with MUGUS quite happily for a number of years I had become quite accustomed to having the regular blood tests with nothing exceptional happening.
Being MGUS I consider that I should not be having symptoms and, any symptoms I do have cannot be…[Read more]
graham-c replied to the topic Continuously declining eGFR in the forum Smouldering myeloma / MGUS 10 years ago
Thanks for your kind thoughts Chrissie but, if I appear to be in mental torment, it’s probably more to do with my style of writing than how I actually feel. As regards MGUS I must be at the lowest risk level from my blood tests, though there is always that risk. It’s just the inconvenient kidney function test results. Alongside that my ‘flavour’…[Read more]
graham-c replied to the topic Continuously declining eGFR in the forum Smouldering myeloma / MGUS 10 years ago
The fact is that I should have been referred to Nephrology before now due to my declining kidney function because I fall well within the NHS and NICE referral guidelines.
However, and this is a good reason for knowing your results and the implications, my current results don’t put me at any immediate risk. I know that my GP won’t refer me without…[Read more]
graham-c replied to the topic Continuously declining eGFR in the forum Smouldering myeloma / MGUS 10 years ago
The fact is that I should have been referred to Nephrology before now due to my declining kidney function because I fall well within the NHS and NICE referral guidelines.
However, and this is a good reason for knowing your results and the implications, my current results don’t put me at any immediate risk. I know that my GP won’t refer me without…[Read more]
graham-c replied to the topic Chemists – my own rant in the forum Smouldering myeloma / MGUS 10 years ago
I’m a little surprised to find that the NHS has posted my comment on the surgery review site but it’s well deserved. They overlooked the original change of prescription and, when I pointed it out, they prescribed only half the medicine and when I pointed that out, they did nothing.
I’m a little concerned that since they amalgamated local…[Read more]
graham-c replied to the topic Chemists – my own rant in the forum Smouldering myeloma / MGUS 10 years ago
I consider myself to be a very polite, pleasant and easy-going person but I do have limits.
I cancelled my automatic prescription with the old chemist as the whole process was completely random and I don’t need the extra exercise of calling in on them daily to discover whether or not they had my medicines. With winter coming I considered that…[Read more]
graham-c replied to the topic Chemists – my own rant in the forum Smouldering myeloma / MGUS 10 years ago
I consider myself to be a very polite, pleasant and easy-going person but I do have limits.
I cancelled my automatic prescription with the old chemist as the whole process was completely random and I don’t need the extra exercise of calling in on them daily to discover whether or not they had my medicines. With winter coming I considered that…[Read more]
graham-c replied to the topic Vaccination in the forum General 10 years ago
After an experience I had several years ago I will never have another flu jab. There was no doubt as to what the cause was as the site of the jab came up in a hard lump and I had the worst case of flu ever. To add to that it badly affected the shoulder muscle (the site of the injection) and I had difficulty putting on a jacket for months…[Read more]
graham-c replied to the topic Starting Stem Cell Therapy in the forum Newcomers 10 years ago
Needless to say the forum doesn’t need spam posts peddling dubious foreign prescription services.
–SPAM DETAILS REMOVED–
Respectable organisations don’t hide their identity behind a privacy protection service and the website was created less than a month ago.
This website, which has been in business for 7 years,
No it hasn’t
— Edit by…[Read more]
graham-c replied to the topic Starting Stem Cell Therapy in the forum Newcomers 10 years ago
Needless to say the forum doesn’t need spam posts peddling dubious foreign prescription services.
Respectable organisations don’t hide their identity behind a privacy protection service and the website was created less than a month ago.
This website, which has been in business for 7 years,
No it hasn’t
— Edit by WebTeam
Hi Graham
Thanks for…[Read more]
graham-c replied to the topic Starting Stem Cell Therapy in the forum Newcomers 10 years ago
Needless to say the forum doesn’t need spam posts peddling dubious foreign prescription services.
Website WHOIS
Domain Name: MEDICSHEALTHSUPPLIES.COM
Registry Domain ID: 1957182373_DOMAIN_COM-VRSN
Registrar WHOIS Server: whois.tucows.com
Registrar URL: http://tucowsdomains.com
Updated Date: 2015-09-03T08:35:18Z
Creation Date:…
graham-c replied to the topic Starting Stem Cell Therapy in the forum Newcomers 10 years ago
Needless to say the forum doesn’t need spam posts peddling dubious foreign prescription services.
Website WHOIS
Domain Name: MEDICSHEALTHSUPPLIES.COM
Registry Domain ID: 1957182373_DOMAIN_COM-VRSN
Registrar WHOIS Server: whois.tucows.com
Registrar URL: http://tucowsdomains.com
Updated Date: 2015-09-03T08:35:18Z
Creation Date:…[Read more]
graham-c replied to the topic Extremely confused :-/ in the forum Newcomers 10 years, 1 month ago
I would recommend that you make a Subject Access Request for all medical documents. reports, tests and scans produced by the hospital department in respect of your husband’s treatment. It’s a simple procedure and the hospital website will detail how you go about it.
The maximum cost they can charge is £50 and they are legally obliged to fulfil y…[Read more]