graham-c replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS 8 years, 4 months ago
Hi Heather.
I have always felt that my immune system and reactions were unpredictable and sometimes absent or over reactive. I gave up having winter flu jabs after I had a particularly bad reaction some years ago and it was undoubtedly down to the the vaccine. More recently, since Haematology have become more excited about my results (which I…[Read more]
graham-c replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS 8 years, 4 months ago
Just to clarify something, in MGUS paraproteins are a marker for all patients and the kappa/lambda ratio is also relevant to everyone. I have had a kidney removed and I pay particular attention to the eGFR figure which is a measure of kidney efficiency because that is an organ that can become affected.
On your tests IgG relates to one particular…[Read more]
graham-c replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS 8 years, 5 months ago
I’m sorry to her about your experience jaylo47 and it does appear that there is a much better set up in Leicestershire as you say, where I live.
The benefit of being referred to a specialist is that you’ll enter a regular regime of tests which are then monitored by an expert. I started off with a whole body skeletal scan and bone marrow biopsy. M…[Read more]
graham-c replied to the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 8 years, 5 months ago
That was unexpected. I was having blood tests every 3/4 months with a nurse due to call me with results which was a reflection of my very low risk category, and I was happy with that. In fact I had been thinking I might be discharged.
The phone call last week asking me to call in to the hospital suggested that things had changed but, even then,…[Read more]
graham-c replied to the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 8 years, 5 months ago
That was unexpected. I was having blood tests every 3/4 months with a nurse due to call me with results which was a reflection of my very low risk category, and I was happy with that. In fact I had been thinking I might be discharged.
The phone call last week asking me to call in to the hospital suggested that things had changed but, even then,…[Read more]
graham-c started the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 8 years, 5 months ago
I haven’t posted recently because nothing much has changed until now.
Having been rolling along with MUGUS quite happily for a number of years I had become quite accustomed to having the regular blood tests with nothing exceptional happening.
Being MGUS I consider that I should not be having symptoms and, any symptoms I do have cannot be…[Read more]
graham-c started the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 8 years, 5 months ago
I haven’t posted recently because nothing much has changed until now.
Having been rolling along with MUGUS quite happily for a number of years I had become quite accustomed to having the regular blood tests with nothing exceptional happening.
Being MGUS I consider that I should not be having symptoms and, any symptoms I do have cannot be…[Read more]
graham-c started the topic MGUS – maybe changing ? in the forum Smouldering myeloma / MGUS 8 years, 5 months ago
I haven’t posted recently because nothing much has changed until now.
Having been rolling along with MUGUS quite happily for a number of years I had become quite accustomed to having the regular blood tests with nothing exceptional happening.
Being MGUS I consider that I should not be having symptoms and, any symptoms I do have cannot be…[Read more]
graham-c replied to the topic Continuously declining eGFR in the forum Smouldering myeloma / MGUS 9 years, 1 month ago
Thanks for your kind thoughts Chrissie but, if I appear to be in mental torment, it’s probably more to do with my style of writing than how I actually feel. As regards MGUS I must be at the lowest risk level from my blood tests, though there is always that risk. It’s just the inconvenient kidney function test results. Alongside that my ‘flavour’…[Read more]
graham-c replied to the topic Continuously declining eGFR in the forum Smouldering myeloma / MGUS 9 years, 1 month ago
The fact is that I should have been referred to Nephrology before now due to my declining kidney function because I fall well within the NHS and NICE referral guidelines.
However, and this is a good reason for knowing your results and the implications, my current results don’t put me at any immediate risk. I know that my GP won’t refer me without…[Read more]
graham-c replied to the topic Continuously declining eGFR in the forum Smouldering myeloma / MGUS 9 years, 1 month ago
The fact is that I should have been referred to Nephrology before now due to my declining kidney function because I fall well within the NHS and NICE referral guidelines.
However, and this is a good reason for knowing your results and the implications, my current results don’t put me at any immediate risk. I know that my GP won’t refer me without…[Read more]
graham-c replied to the topic Chemists – my own rant in the forum Smouldering myeloma / MGUS 9 years, 1 month ago
I’m a little surprised to find that the NHS has posted my comment on the surgery review site but it’s well deserved. They overlooked the original change of prescription and, when I pointed it out, they prescribed only half the medicine and when I pointed that out, they did nothing.
I’m a little concerned that since they amalgamated local…[Read more]
graham-c replied to the topic Chemists – my own rant in the forum Smouldering myeloma / MGUS 9 years, 1 month ago
I consider myself to be a very polite, pleasant and easy-going person but I do have limits.
I cancelled my automatic prescription with the old chemist as the whole process was completely random and I don’t need the extra exercise of calling in on them daily to discover whether or not they had my medicines. With winter coming I considered that…[Read more]
graham-c replied to the topic Chemists – my own rant in the forum Smouldering myeloma / MGUS 9 years, 1 month ago
I consider myself to be a very polite, pleasant and easy-going person but I do have limits.
I cancelled my automatic prescription with the old chemist as the whole process was completely random and I don’t need the extra exercise of calling in on them daily to discover whether or not they had my medicines. With winter coming I considered that…[Read more]
graham-c replied to the topic Vaccination in the forum General 9 years, 1 month ago
After an experience I had several years ago I will never have another flu jab. There was no doubt as to what the cause was as the site of the jab came up in a hard lump and I had the worst case of flu ever. To add to that it badly affected the shoulder muscle (the site of the injection) and I had difficulty putting on a jacket for months…[Read more]
graham-c replied to the topic Starting Stem Cell Therapy in the forum Newcomers 9 years, 2 months ago
Needless to say the forum doesn’t need spam posts peddling dubious foreign prescription services.
–SPAM DETAILS REMOVED–
Respectable organisations don’t hide their identity behind a privacy protection service and the website was created less than a month ago.
This website, which has been in business for 7 years,
No it hasn’t
— Edit by…[Read more]
graham-c replied to the topic Starting Stem Cell Therapy in the forum Newcomers 9 years, 2 months ago
Needless to say the forum doesn’t need spam posts peddling dubious foreign prescription services.
Respectable organisations don’t hide their identity behind a privacy protection service and the website was created less than a month ago.
This website, which has been in business for 7 years,
No it hasn’t
— Edit by WebTeam
Hi Graham
Thanks for…[Read more]
graham-c replied to the topic Starting Stem Cell Therapy in the forum Newcomers 9 years, 2 months ago
Needless to say the forum doesn’t need spam posts peddling dubious foreign prescription services.
Website WHOIS
Domain Name: MEDICSHEALTHSUPPLIES.COM
Registry Domain ID: 1957182373_DOMAIN_COM-VRSN
Registrar WHOIS Server: whois.tucows.com
Registrar URL: http://tucowsdomains.com
Updated Date: 2015-09-03T08:35:18Z
Creation Date:…
graham-c replied to the topic Starting Stem Cell Therapy in the forum Newcomers 9 years, 2 months ago
Needless to say the forum doesn’t need spam posts peddling dubious foreign prescription services.
Website WHOIS
Domain Name: MEDICSHEALTHSUPPLIES.COM
Registry Domain ID: 1957182373_DOMAIN_COM-VRSN
Registrar WHOIS Server: whois.tucows.com
Registrar URL: http://tucowsdomains.com
Updated Date: 2015-09-03T08:35:18Z
Creation Date:…[Read more]
graham-c replied to the topic Extremely confused :-/ in the forum Newcomers 9 years, 2 months ago
I would recommend that you make a Subject Access Request for all medical documents. reports, tests and scans produced by the hospital department in respect of your husband’s treatment. It’s a simple procedure and the hospital website will detail how you go about it.
The maximum cost they can charge is £50 and they are legally obliged to fulfil y…[Read more]