I had a terrible experience over non-disclosure when I had kidney cancer. That’s history but I believe it affects how they deal with me now.

I only have appointments once a year which appears to confuse everyone but it ensures I’ll submit an SAR to keep up to date with my blood test results.

I have mentioned that it must be easier for them to…[Read more]

I think I’m correct in saying that I have it in writing that the hospital won’t inform me of results and, worse still, that was after I had submitted an SAR.

Once when I asked for a copy of my blood results I received a handwritten note with two figures on it ! Now I apply for blood results by SAR and specify exactly the four I want to know,…[Read more]

Paying £10 doesn’t bother me and, if it avoids a confrontation with a Doctor/Consultant, I’d prefer to do that. The benefit in doing it is that it activates a formal legal process. What alarms me is that the hospital don’t appear to recognise this and the ramifications if they don’t then comply.

I supplied a 24 hour urine collection last May,…[Read more]

That’s interesting to know Jill and does confuse my understanding of the illness, but we are all on separate paths determined by our own particular symptoms, reactions, health and results. I believe that FLC levels can also be raised by illnesses other than Myeloma and, having already received treatment, it may also be a factor in determining what…[Read more]

I too have had the problem of getting blood test results out of LRI. I now make Subject Access Requests, which are quite simple to perform, and the hospital has to provide the results as my legal right. It’s a shame that I have to do this but it’s inevitable.

I’ve made a Subject Access Request in respect of my January tests and, though I should…[Read more]

Welcome kendraw.

I can understand what you feel, though I have a more difficult time as my Haematology Department are always very reluctant to give me the results of my blood tests. I don’t understand why and it’s rather silly because it causes me to make formal legal demand on them. Let’s not discuss this.

My analogy is that abnormal blood…[Read more]