Hi Lynne

my husband like yours was diagnosed in feb following he thought a pulled back muscle, only to find he had 5 fractures to his vetebrae  he has just had 8 months of CTD, it is frustrating to watch your loved one go through this treatment, all you can do. Is be there to support and  to be there, it is life changing but you can only try a…[Read more]

Hi sarah my husband was diagnosed in February, he is on CTD  as is on his second cycle. He also had fractures to his vetebrae. It is a difficult and devastating. Disease like the previous reply said side effects vary  my husband experiences constant pain, fatigue, nausea constipation, it is very upsetting to see your  loved ones suffering, but yo…[Read more]

Let’s hope he shows more improvement it is the worst thing  ever you get relief from one thing and then get a further problem, let’s just try and take a day at a time, I will let you know if my husband able to have veterbraeplasty. Stay strong

Hi

my husband has fractures in his back as well, he describes it as brutal he started his CTD but got pneumonia so it stopped currently, he takes morphine and top ups daily, only relief lying on his side. He is going for MRI and assessment for veterbraeplasty to see if he suitable to see if this helps.

it is horrible to see your loved one in…[Read more]

My husband had  large doses of dexemethasone and he had a rash on his arms and a very red face whilst having this . He was on allopurinol as well at the time. He told doctor at his appt this week but they didn’t seem worried about it, hope your treatment goes well

My husband is suffering badly with constipation he  is on CDT. And lots of morphine   He is taking fibre drinking 3 litres water and on movical  sometimes it is really painful not sure what else helps

Thankyou for replies hopefully will get appt this week..

We live in South west