greetje replied to the topic Myeloma and amyloidosis in lymph nodes? in the forum AL amyloidosis 7 years, 10 months ago
Hello Dakota377,
Sorry for my late reply, I only find your message now. As my MM specialist considered the situation with the lymph nodes as a disease progression (although in a very unusual way), he advised to go for an autologous Stem Cell transplantation. I had 6 months induction therapy, followed by high dose chemo and the ASCT. Initially,…[Read more]
greetje replied to the topic Extremely confused :-/ in the forum Newcomers 8 years, 9 months ago
Hello ksee86, I only find your message now as I was looking for more information about myeloma showing up in the lymph nodes!
I have a similar story. I have had smoldering MM for 14 years but recently, a lot of lymph nodes started to swell. Some lymph nodes were removed for biopsy and the result showed that there were a lot of myeloma plasma…[Read more]
greetje replied to the topic Extremely confused :-/ in the forum Newcomers 8 years, 9 months ago
Hello ksee86, I only find your message now as I was looking for more information about myeloma showing up in the lymph nodes!
I have a similar story. I have had smoldering MM for 14 years but recently, a lot of lymph nodes started to swell. Some lymph nodes were removed for biopsy and the result showed that there were a lot of myeloma plasma…[Read more]
greetje started the topic Myeloma and amyloidosis in lymph nodes? in the forum AL amyloidosis 8 years, 9 months ago
This post has also been posted in “General”
Hi, I have had smoldering MM for 14 years (diagnosed in 2002 at the age of 37). Up to now, I did not need treatment for the SMM. Lately, I started to have a lot of swollen lymph nodes. Removal and biopsy of some lymph nodes show that there are a lot of monoclonal plasma cells in the lymph nodes.…[Read more]
greetje started the topic Myeloma in lymph nodes? in the forum General 8 years, 9 months ago
Hi, I have had smoldering MM for 14 years (diagnosed in 2002 at the age of 37). Up to now, I did not need treatment for the SMM. Lately, I started to have a lot of swollen lymph nodes. Removal and biopsy of some lymph nodes show that there are a lot of monoclonal plasma cells in the lymph nodes. Moreover, tests also revealed amyloidosis in the…[Read more]
greetje replied to the topic Just started treatment in the forum Newcomers 8 years, 9 months ago
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Dear Millie, sorry to hear about your recent diagnosis. I wish you that your treatment brings you quickly in a disease stable situation. After treatment, many patients stay stable for years with a good quality of life. I was curious about your initial disease symptoms. Apparently, it started with the lymph nodes?…[Read more]
greetje became a registered member 8 years, 9 months ago