Hi, just looking for some help and info, my wife is 35 days post SCT,things have been going slowly but she is moving forward, the last couple of days she’s started to ache and be stiff in the old places, is this normal? Has it not worked? Is it just because she’s spending a lot of time in bed? Many thanks for helping.

Hi there, just looking for a bit of guidance and hand holding I suppose!
My wife had her SCT approx 10 days ago, at first all was ok, but the last few days she’s been very poorly.
Sore swollen mouth and constant diaroheah, she’s now very confused and seeing thing,last night at 02.00 she pulled her canulas out, packed her bags and tried to walk…[Read more]

Carrying on my post from last night , we heard today that the consultant wants to do another bone marrow biopsy next Thursday to try and get to the bottom of my wife’s continuing low white cell count (0.49),everything has been out on hold, STC etc. we are devastated.
Any idea why the white cell count would continue to remain low?she finished her…[Read more]

Hi, Had a wee knock back today, well we think its a knock back!

My wife (47) was supposed to start phase 2 (as I call it) today, thats the chemo followed by the GSCF(?), then a week later the Stem cell harvest, they ve postponed the chemo today as her white cell count is very low 0.49, its always been low since she started.

We have no idea whats…[Read more]

Hi All,

Looking for some info on what’s the agenda and time scale for the next couple of months.

My wife, who is 47, has just finished 6xcycles of CDT, her paraprotein numbers have levelled off, so theyve stopped treatment for 6 weeks now, in that period she will see her consultant for a update on whats going to happen over the next couple of…[Read more]