Hi Rebecca,
Thank you so much for your reply. It has given me quite a lot of comfort in this stressful time. I agree about the sledgehammer aspect of the so called gold standard of SCT. There must be a better option than melphalan? Regarding your questions, I started on VTD (Velcade,Thalidomide and Dexamethasone) Sept 19, with 10 rounds of full strength Radiotherapy. I completed four cycles of VTD. My ‘proteins’ on admission were 34 and reduced down to zero by the end of the 4th cycle (although they were zero by the third) I had no other issues such as renal problems etc. I just had pain in my spine. I am waiting to have vertebroplasty on the parts of my spine that were compromised by the myeloma lesions. I am currently on Thalidomide 50mg a day (taken in the evening) APOLOGIES FOR MY MISTAKE IN THE PREVIOUS POST! I hope to keep myself healthy and ready for SCT when it is deemed safe to have it, either this year or next. What has consoled me, through additional reading and help of people such as yourself, is that I am not going to be worse off by delaying my SCT.
Best wishes to you Rebecca and to all.
John
grenolad.
