Thanks Paula,
I feel very privileged to have private healthcare that has opened doors, saying that my current consultants are all NHS and have been very quick to get this looked at.
It’s quite isolating to find I have a rare strain of an uncommon condition, and from what I’m told the treatment is the same as for MM. All I’ve found is a few medical journal write ups but nothing for patients of MGRS/PGNMID. I suspect I’ll be making my way into a medical dissertation before long!
Thanks
