happyheartsfan replied to the topic Itchy Rash Post SCT in the forum Side-effects 11 years ago
Hi Suzy,
Glad your husbands rash is calming down. I am getting amazing treatment in Scotland – saw a dermatologist within a week of asking to see one! Would have struggled for that on my private health care. But still scratching. Skin biopsy for me next week. Good advice on any place that's warm. I have started running again but the itch becomes…[Read more]
happyheartsfan replied to the topic Itchy Rash Post SCT in the forum Side-effects 11 years ago
Hi, I hope your husband has got better over time? I had my transplant on 26th March. I had a rash appearing on my discharge 16 days later. I have never stopped scratching since. Legs, arms neck and upper trunk are the worst. Please tell me it suddenly just goes away? I am applying creams, taking tablets etc as prescribed by my dermatologist but…[Read more]
happyheartsfan replied to the topic Start of treatment journey in the forum Under 50s 11 years ago
Hi Alex,
Got you're message, delighted you are coming out the other side of the transplant. I had mine on the 25th March, been sick since! Good for the weight loss – a stone and a half so far – but not so good for the hair cut. A Bruce Willis look now in place. Just beginning to eat more regularly and was pleased to be home. Missed Vanessa,…[Read more]
happyheartsfan replied to the topic Joining the party in the forum Newcomers 11 years, 5 months ago
Hi Maureen,
Sorry to hear of the diagnosis. I am still coming to temrs with it but seem to be getting there. The treatment I have had in the Western General in Edinburgh can only be described as first class. Ask lots of questions of your consultant, they are only too happy to help. And try not to get down too much – there is always a positive…[Read more]
happyheartsfan replied to the topic Myeloma blogs in the forum Newcomers 11 years, 6 months ago
Hi Jet,
A list of blogs in one place, just what I was looking for. I will have a good look through and follow a few, only recently diagnosed at 45 so hoping to learn from other peoples real experiences – doctor said the bone marrow biopsy would just be uncomfortable. Aye, right.I'll be watching him in future.
Thanks for the info, hope your…[Read more]
happyheartsfan started the topic Joining the party. in the forum Newcomers 11 years, 6 months ago
Hi,
I am Stewart and 45, was diagnosed in September 2 days before my lovely daughter Elsie was due. Been a wee bit of a rollercoater, there's a lot to learn about MM. Even the acronims are taking me some time. I initially tried eating and drinking the myeloma to death, it was great fun but just got me fatter. Am parking that! I am on trial XI…[Read more]
happyheartsfan replied to the topic A wee bit confused in the forum Under 50s 11 years, 6 months ago
Hi Eve and Megan,
Thanks for the advice. It's hopefully a long road we are all on, I'm beginning to realise that, initial reaction of doom and gloom lifting. I will investigate the nurses thing and encourage Vanessa to join in, I really think there will be a big benefit for her discussing the disease with others.
We will all hold tight and…[Read more]
happyheartsfan started the topic A wee bit confused. in the forum Under 50s 11 years, 6 months ago
Hi folks,
Not really glad to be joining you all, I am 45 and was diagonsed in September this year, 2 days before the birth of my lovely daughter Elsie. I was put on CDT Myeloma XI trial and am just into my 3rd cycle. Hope for SCT in the new year. Doctor is great but I get the feeling he is not being fully clear with me. I had a paraprotien level…[Read more]
