Hi Amme and Pamn,  thank you for advice Amme, it was kind of you to reply whilst your recovering.  It’s pretty scary isn’t it waiting for this treatment isn’t it.  I’m still waiting for results of bone marrow biopsy week last Friday before can be absolutely sure SCT will go ahead on 11th July as if cancer isn’t low enough I will have to have mo…[Read more]

Hello Marian,

I have been supposedly smouldering since I was diagnosed 2 1/2 years ago.  My blood results have remained low throughout, para protein being always less than 10 although plasma cells have been 22, which is higher than should be for someone smouldering apparently.  I too though have had a great deal of pain and fatigue throughout t…[Read more]

Hi Graham,

Thank you for responding.  I think it highlights that this is such an unpredictable condition and your right because it effects our plasma cells and immune system we can experience many differing symptoms.

Best wishes Heather

Hi Bella,

lovely to hear from you.  I think I should have started a new discussion trail rather than adding on the bottom of this one started by GeeBee but I didn’t realise that until after I posted it, of well hey ho.  At least you have responded anyway.

odd your consultant is referring to you as MGUS.  No I’m referred to as having myeloma.  S…[Read more]

Hi all,

I haven’t been on this forum before, although I was diagnosed with myeloma over 2 years ago.  I am on watch and wait still regarding treatment, my pp being less than 10.  My plasma cells though are 22.  I am unwell a great deal, fatigue and bone pain particularly in the mornings, I do though ignore it as much as poss and get on with my li…[Read more]