Myeloma Forum | Heather M | Activity https://forum.myeloma.org.uk/members/heathermullen/activity/ Activity feed for Heather M. Mon, 06 Apr 2026 11:30:11 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 9a43705e9cf2f43cd5a21868b8ff6d26 heathermullen's profile was updated https://forum.myeloma.org.uk/activity/p/141863/ Thu, 09 Jun 2022 15:08:11 +0100 0 ca1f8d4af23cbff56afcbc58b167c92c heathermullen replied to the topic Advice please - first SCT in July, in tips in the forum Treatment https://www.myeloma.org.uk/forums/topic/advice-please-first-sct-in-july-in-tips/#post-133982 Mon, 26 Jun 2017 13:32:08 +0100 Hi Amme and Pamn,  thank you for advice Amme, it was kind of you to reply whilst your recovering.  It’s pretty scary isn’t it waiting for this treatment isn’t it.  I’m still waiting for results of bone marrow biopsy week last Friday before can be absolutely sure SCT will go ahead on 11th July as if cancer isn’t low enough I will have to have mo…[Read more]

]]> 775d076769f9b514cd1be51b38c40349 heathermullen started the topic Advice please - first SCT in July, in tips in the forum Treatment https://www.myeloma.org.uk/forums/topic/advice-please-first-sct-in-july-in-tips/ Sat, 17 Jun 2017 09:05:44 +0100 Hi, I have had 6 months of chemo cycles, started last Nov following severe bone damage in my spine, and have just had stem cells harvested. I gave a provisional date 11 July for SCT, providing results of bone marrow biopsy ok and health check day next week fine.  I have just read need to suck ice to avoid mouth ulcers and also to ask for paliferm…[Read more]

]]> 5e397c2638469358b3af3a54403d715a heathermullen replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hello-smoulderers/page/2/#post-130244 Thu, 27 Oct 2016 18:55:13 +0100 Hello Marian,

I have been supposedly smouldering since I was diagnosed 2 1/2 years ago.  My blood results have remained low throughout, para protein being always less than 10 although plasma cells have been 22, which is higher than should be for someone smouldering apparently.  I too though have had a great deal of pain and fatigue throughout t…[Read more]

]]> a50235e8862e70d9aac036633ec1df35 heathermullen replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hello-smoulderers/#post-128747 Thu, 07 Jul 2016 07:39:46 +0100 Hi Graham,

Thank you for responding.  I think it highlights that this is such an unpredictable condition and your right because it effects our plasma cells and immune system we can experience many differing symptoms.

 

Best wishes Heather

]]> 53d6ea199de77ef23e2a10fb629f533b heathermullen replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hello-smoulderers/#post-128745 Wed, 06 Jul 2016 16:48:50 +0100 Hi Bella,

lovely to hear from you.  I think I should have started a new discussion trail rather than adding on the bottom of this one started by GeeBee but I didn’t realise that until after I posted it, of well hey ho.  At least you have responded anyway.

odd your consultant is referring to you as MGUS.  No I’m referred to as having myeloma.  S…[Read more]

]]> d7a7d58140308cc4a315e3e9f63455bc heathermullen replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hello-smoulderers/#post-128684 Mon, 04 Jul 2016 07:16:28 +0100 Hi all,

I haven’t been on this forum before, although I was diagnosed with myeloma over 2 years ago.  I am on watch and wait still regarding treatment, my pp being less than 10.  My plasma cells though are 22.  I am unwell a great deal, fatigue and bone pain particularly in the mornings, I do though ignore it as much as poss and get on with my li…[Read more]

]]> 2539ad9538edfc6f3193d1433ac4096e heathermullen became a registered member https://forum.myeloma.org.uk/activity/p/36263/ Tue, 04 Nov 2014 10:44:44 +0000 0