Myeloma Forum | helenm | Activity https://forum.myeloma.org.uk/members/helenm/activity/ Activity feed for helenm. Sat, 11 Apr 2026 12:16:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 c1358d5f82a2e1435f3b92ef7e0e100d helenm replied to the topic Timescales in the forum Treatment https://www.myeloma.org.uk/forums/topic/timescales/#post-137659 Mon, 16 Apr 2018 14:26:48 +0100 He got home the day before Good Friday – having spent 2 and a half weeks in hospital.  Very tired but we are taking things easy.  He has a really bad cough at the moment and has been given antibiotics which seemed to have helped.

Helen

]]> 61148142c448e89a0749aa5aa61ef666 helenm replied to the topic Timescales in the forum Treatment https://www.myeloma.org.uk/forums/topic/timescales/#post-137426 Wed, 21 Mar 2018 11:57:47 +0000 Another update – Dave was admitted last Monday to the Beatson, Glasgow.  He had his Chemo Tuesday and his stem cells transplanted Wed and Thursday.  He also had to have 2 blood transfusions as he was anaemic.  There was a blip on Friday when he had arrhythmia and ended up in intensive care for about 8 hours.   Once they had stabilised him and moni…[Read more]

]]> 8e112cfbf9aed04e1cf666cbc6ddd81f helenm replied to the topic The Unexpected Christmas Present in the forum Treatment https://www.myeloma.org.uk/forums/topic/the-unexpected-christmas-present/#post-136578 Fri, 05 Jan 2018 13:49:45 +0000 Sorry to hear about your setback.  I can only sympathise – my husband has had a roller coaster ride since having his stem cell harvested in September.  I honestly thought his transplant would be done and dusted by Christmas.  Instead he has had 5 weeks in hospital resulting from infection from hickman line, a minor heart episode and surgery to pi…[Read more]

]]> 220c46a14aa74bde95dac4c8218a7609 helenm replied to the topic Timescales in the forum Treatment https://www.myeloma.org.uk/forums/topic/timescales/#post-136565 Wed, 03 Jan 2018 15:51:03 +0000 Just a wee update – since posting 3 months ago when he had an infection in his hickman line – he ended up in hospital for 2 weeks while they tried to get the infection under control – they also had to take his line out.  He got home for about 6 hours and then promptly had a heart episode and ended back in hospital for a further 3 weeks.  As if t…[Read more]

]]> 1be20c4c15f3a5e0298b12146bf2065c helenm replied to the topic Hi - Husband waiting for SCT in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-husband-waiting-for-sct/#post-135130 Sat, 23 Sep 2017 19:40:17 +0100 Bit of a setback.  He has an infection in his Hickman line. Is in hospital being pumped with all antibiotics known to man (well that is how it feels!).  Has had to have it out and will be reinserted later.  Has appointment in Glasgow 3rd oct to see consultant. Hopefully a date ..   Not a good journey. But hey such is life …

 

]]> 0fde8db033b642b1b35f9ec6d8d0da1d helenm replied to the topic Timescales in the forum Treatment https://www.myeloma.org.uk/forums/topic/timescales/#post-135113 Fri, 22 Sep 2017 10:34:14 +0100 Thanks – he had his harvest last week, however, this week he went into our hospital yesterday  to get his hickman line cleaned and it turns out he has an infection – so they admitted him!

Hopefully he will be OK and out Monday.

He will have to stay in Glasgow when he has his transplant as it is too far for him to go daily.

Good luck with…[Read more]

]]> cfd408ed8c60d326d053b5f4771f3d81 helenm replied to the topic Hi - Husband waiting for SCT in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-husband-waiting-for-sct/#post-134976 Thu, 14 Sep 2017 14:42:17 +0100 Well – Dave has had his stem cells harvested this week.  Took 3 days as we had a blip on the Tuesday when his white cell count was down.  They gave him an extra injection (costing £5000) and that did the trick – blood count went back up .  We were put up at the Pond hotel (Dave had his accommodation and breakfast paid for – I had my acc…[Read more]

]]> 05ff9ac9207885976c87dfbefee2e413 helenm replied to the topic Timescales in the forum Treatment https://www.myeloma.org.uk/forums/topic/timescales/#post-134838 Thu, 07 Sep 2017 10:43:27 +0100 Thanks  – he is having his hickman line put in tomorrow so at least things are moving.

 

Helen

]]> 109da8f4b00b984033c069d3139ebdd9 helenm started the topic Timescales in the forum Treatment https://www.myeloma.org.uk/forums/topic/timescales/ Thu, 07 Sep 2017 10:22:17 +0100 Hi all – We are going up to Glasgow Monday for hubby to start stem cell harvest (allocating 3 days)- what sort of timescales are we looking at between having the harvest and going in to have high dose chemo and cells transplanted?

Thanks

 

Helen

]]> 3b1b744a6e1cb1b24ff59f1142f34d33 helenm replied to the topic Hi - Husband waiting for SCT in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-husband-waiting-for-sct/#post-134264 Tue, 18 Jul 2017 10:19:05 +0100 Thank you so much for the reply and reassurance.  Hopefully Dave will start to feel better in the not too distant future.  I have had a few offers of rooms to stay nearby from internet friends on a site I use.   I will keep the forum updated on Dave’s journey.

Helen

 

]]> 16efab22a6c3b39d66019c7cb3a8d1ff helenm replied to the topic Hi - Husband waiting for SCT in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-husband-waiting-for-sct/#post-134248 Mon, 17 Jul 2017 11:02:12 +0100 Thanks for the info – we now have an appointment next Tuesday at Glasgow to discuss treatment.  I had to laugh – Dave had to go and pick up a letter from the post office because there was £2 to pay on it.  The hospital had only not put any postage on the appointment letter.  They had also sent us another copy of the booklet explaining tre…[Read more]

]]> 49b0f81854048a73cfa9053b7269b0d2 helenm replied to the topic Hi - Husband waiting for SCT in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-husband-waiting-for-sct/#post-134248 Mon, 17 Jul 2017 11:02:12 +0100 Thanks for the info – we now have an appointment next Thursday at Glasgow to discuss treatment.  I had to laugh – Dave had to go and pick up a letter from the post office because there was £2 to pay on it.  The hospital had only not put any postage on the appointment letter.  They had also sent us another copy of the booklet explaining tre…[Read more]

]]> 7c9c9ceb22c4ffccb5a9d4648c3a4820 helenm started the topic Hi - Husband waiting for SCT in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-husband-waiting-for-sct/ Wed, 05 Jul 2017 13:18:22 +0100 My husband Dave was diagnosed with Myeloma 13 years ago at 54.  We were very lucky and he had 13 years of monitoring (hospital check ups every 3 months – with a few blips meaning 1 month check ups).  However, in the past 6 months Dave has gradually been getting worse with rib and back pain and the hospital decided he needed to start Chemo.  He is…[Read more]

]]> f915d99f05326a595410e85a97804729 helenm became a registered member https://forum.myeloma.org.uk/activity/p/50340/ Wed, 05 Jul 2017 12:56:11 +0100 0