Myeloma Forum | HelenPage | Activity https://forum.myeloma.org.uk/members/helenpageuk/activity/ Activity feed for HelenPage. Sat, 11 Apr 2026 20:02:04 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 d227e7198da5f64d6d6ce1eb85406e0d HelenPage replied to the topic Blood Clots in the forum Side-effects http://www.myeloma.org.uk/forums/topic/blood-clots1322517464#post-104329 Fri, 02 Dec 2011 10:01:27 +0000 Hello Eve

Wow, Slim sounds like a real fighter and I am so pleased that things are going well for him at the moment. it is amazing how much the human body can take isn't it. I would imagine the chemical compound of our loved ones is pretty mind blowing at the moment!.

Mum was initially very sick with the Clexane however the anti sickness…[Read more]

]]> c5ccbc91b3fba380267629bdd091ead1 HelenPage replied to the topic Blood Clots in the forum Side-effects http://www.myeloma.org.uk/forums/topic/blood-clots1322517464#post-104334 Fri, 02 Dec 2011 09:48:41 +0000 Hi Dai

Thanks for the reply and so sorry to hear that you have been through it as well. How did you find being on the Warfarin? I pressume that mum will be moved onto this shortly. She goes to see her consultant on Wednesday next week so hopefully we will find out then if they plan to take her off the revlamid. I hope not as it appears to…[Read more]

]]> c917d74d8b12d99b7aa63eeac28bf80a HelenPage replied to the topic Blood Clots in the forum Side-effects http://www.myeloma.org.uk/forums/topic/blood-clots1322517464#post-104327 Tue, 29 Nov 2011 10:15:12 +0000 Thank you Eve and I am sorry to hear that Slim has suffered from clots as well. Do you mind if I ask if the cause was Revlimid? and also is there anything that mum could be doing at home to ensure she is treating the clots in the most appropriate way? The doctor has said that she will have to inject herself with 40mg of clexane in the morning…[Read more]

]]> 1366b4969fe3e43d1e635744b40efde9 HelenPage started the topic Blood Clots. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/blood-clots1322517464 Mon, 28 Nov 2011 21:57:44 +0000 Hi All,

I am looking for a bit of advice. We have just been told that my mum has got three blood clots…..one of her leg and two in her lungs. It is believed that they are caused by the Revlamid. The doctors have taken her off all meds except the anti inflamatories. She has been told that she has to inject herself with 80mg of clexane per…[Read more]

]]> 3ff43a50e4e5a962eb3119acc86b7a31 HelenPage replied to the topic 3 Months Post SCT in the forum Related conditions http://www.myeloma.org.uk/forums/topic/3-months-post-sct/page/2/#post-105632 Mon, 14 Nov 2011 13:49:54 +0000 Many Thanks Jet and I am so pleased and inspired to hear that you are doing so well. Long may it continue

Best Wishes

Helen

]]> 863fe6f5663f10ed0ccedca5091f658b HelenPage replied to the topic 3 Months Post SCT in the forum Related conditions http://www.myeloma.org.uk/forums/topic/3-months-post-sct#post-105629 Fri, 11 Nov 2011 14:05:02 +0000 Hi both,

Thanks so much for the replies. They were really useful. May I ask how long it took to get over the SCT after you left hospital?

Thanks and keep smiling

Helen

]]> 545dd4fc495237ced78d68a86d3b4d50 HelenPage replied to the topic 3 Months Post SCT in the forum Related conditions http://www.myeloma.org.uk/forums/topic/3-months-post-sct#post-105626 Thu, 10 Nov 2011 14:31:43 +0000 Hi All,

Glad to hear that you are all doing so well post SCT. I was wondering if I could ask a bit of a random question. My mum is currently on her 4th cycle of treatment (she is on the Revlamid Trials drug) and will eventually have a STC. My dad would really like to buy her a lap top for Christmas so that she doesnt feel so isolated when in…[Read more]

]]> 27bc15876cf01b5abbcbb4e57b262ce0 HelenPage replied to the topic The Joys of Revlimid!! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/the-joys-of-revlimid/page/3/#post-103862 Tue, 09 Aug 2011 10:06:40 +0100 Hi Helen and Eve,

Hope you are both well. Helen are you still heading in on the 16th for your SCT? Hope they managed to find you a bed.

Mum is not very good at the moment. She has to go into hospital today becuase her liver function test was of concern to the Doctor. They have taken her off all meds while they find out what is up with…[Read more]

]]> a0f75168cbff89e9e8dcbc8099463b93 HelenPage replied to the topic The Joys of Revlimid!! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/the-joys-of-revlimid/page/3/#post-103858 Mon, 08 Aug 2011 20:43:45 +0100 Thanks Bridgette. I must keep reminding myself that the medication is strong stuff and may take mums body a while to adjust to. It seems crazy that she is taking so much of the stuff as she has always been very anti medication. It is such a shame that she has had this 'blip' following the good news that her PP level reduced to 5.5 after the…[Read more]

]]> 489ba2169d88360d99b28d1e4d70cf5a HelenPage replied to the topic The Joys of Revlimid!! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/the-joys-of-revlimid/page/3/#post-103856 Mon, 08 Aug 2011 17:52:25 +0100 Hi Bridget,

Hope you had a good weekend. I am afraid I have another question for you. Mum has had two blood tests; one on Friday and one today (Monday). Each time the liver function result has been 'of concern' to the doctors. They had told her to stop taking all medication and want her to go to see them tomorrow to have further tests and a…[Read more]

]]> 13d706bb9b6bb9ec95bf05a64d89bbe5 HelenPage replied to the topic The Joys of Revlimid!! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/the-joys-of-revlimid/page/2/#post-103855 Thu, 04 Aug 2011 12:15:31 +0100 Bridget, you were not rambling at all. Wow, you are so brave. You sound like you have really been through it over the past few years but so glad that you are finding life to be a little more normal now.

It is so frustrating as mum and dad retired together about a year and half ago and they were looking forward to it so much. Now they are…[Read more]

]]> fec09559cc6ac14902e9e245ecbbb46e HelenPage replied to the topic The Joys of Revlimid!! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/the-joys-of-revlimid/page/2/#post-103853 Thu, 04 Aug 2011 09:58:09 +0100 Morning Min. Really glad to hear that your husband is on good form and long may it continue. I will mention to dad about serving mums food up on a tea plate. Mum decides what she wants for dinner at about lunch time on each day however, when it is presented to her, she often cant face it.

Hi Bridget. Lovely to meet you. I have read many of…[Read more]

]]> 621877bcbb9cf32c56eff7ad0a700e93 HelenPage replied to the topic The Joys of Revlimid!! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/the-joys-of-revlimid/page/2/#post-103850 Wed, 03 Aug 2011 22:41:28 +0100 Thanks so much min. I will ensure mum calls the trials nurse in the morning.meanwhile I have told her to keep the fluids up.I think she is reluctant to take any more pills. I wish there was something to increase her appetite. My dad cooks delicious meals bu she just can't face it when it is put in front of her 🙁 How is your husband at the…[Read more]

]]> 2483846d35a69f2d458808076c48e1a2 HelenPage replied to the topic The Joys of Revlimid!! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/the-joys-of-revlimid/page/2/#post-103848 Wed, 03 Aug 2011 21:40:10 +0100 Hi all. I am Helen and my mum started the RCD trial a couple of months ago. I must admit it is comforting to read all of your posts allows me to pass reassuring information onto mum. I think you are all so brave and positive and that is half the battle with fighting this disease. Mum went to see the consultant last Wednesday and her pp level has…[Read more]

]]> 4489bf34018a689272693dc6534b3177 HelenPage replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid/page/2/#post-97589 Tue, 26 Jul 2011 17:47:12 +0100 Hi Helen

Really glad to hear that you responded so well to treatment. I hope so much that mum is the same.

She had her radiotherapy today and I think that it has hit her pretty hard as she seems to be in more pain now and went straight home to bed. The radiologists have said that her pain may get worse before it gets better so I hope…[Read more]

]]> a608e9070f598f98db36f2b0e110edf9 HelenPage replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid/page/2/#post-97587 Mon, 25 Jul 2011 21:14:13 +0100 Hi Helen

Fingers crossed for the 15th. I will be thinking of you and sending lots of positive thoughts as I do with my mum every day.

Your symptoms sound very similar to mums. She has had the croaky voice, is very tired (especially after about 5pm ish and constipation. She has been taking a packet mix of something to help with the…[Read more]

]]> 7692b6d4369a374441638435385d22e4 HelenPage replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid/page/2/#post-97585 Mon, 25 Jul 2011 13:42:28 +0100 Hi Helen.

Thanks so much for the reply. I am sorry to hear that you have been through a tough time of late but pleased to hear that you are on track now to recieve your SCT. Have you got an appointment booked yet? I wish you all the best and please let me know how you get on. I will be thinking of you.
Mum has been diagnosed now for two…[Read more]

]]> 4cd3b59e5f721561f4b5345164fde37d HelenPage replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid/page/2/#post-97583 Sat, 23 Jul 2011 13:26:37 +0100 Hi again folks.

Mum has come out in a rash on top of her arms and on her tummy. She finished the first cycle of the RCD trial last week. These things always seem to happen at the weekend when no trials nurses are working 🙁 Is this rash that she is experiencing common and do you think that we should be contacting A&E? Thanks all xx

]]> 398b2cb978de763652a68349ccb25f69 HelenPage replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid/page/2/#post-97582 Tue, 19 Jul 2011 13:02:13 +0100 Thanks for your reply Mike, I must admit that the whole thing is a bit of a massive learning curve hence all the questions!! Mum took her second lot of 20 a day tablets for four days last week. To be honest, when she is on them, she seems much brighter and like you, very hyper!! After the four days she seems to be incredibly tired and no way…[Read more]

]]> 659f17dff0b036d9d8b95d4a4ca1f835 HelenPage replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid#post-97574 Sat, 16 Jul 2011 22:20:51 +0100 Me again. Just spoken to dad and he said mum has been confused today and has slept all day pretty much. Is this normal? Thanks in advance
Helen x

]]> 86d0ed8ba7b993ea03a69c162a1fbd65 HelenPage replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid#post-97573 Sat, 16 Jul 2011 21:43:01 +0100 Hi all (hi again Tom)

My name is Helen.

My mum has recently been diagnosed with Myeloma and has been put on the RCD trial and has just completed her second cycle of the 20 tablets in the morning. She has been doing great and is incredibly positive however today she has had her first bad day. She has had severe diarrhea today and is…[Read more]

]]> c5f8fc6d6be744ad360aedc47d44cea8 HelenPage replied to the topic Starting a discussion... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-a-discussion/page/2/#post-84298 Sun, 10 Jul 2011 20:16:24 +0100 Thanks Tom, that's really useful. I am so glad that I found this website. My Fiance, brother and sister in law are currently raising lots of money for Myeloma UK to make sure that it continues with the amazing work that they currently do.
I am glad to hear that you are doing well. That is amazing that you are only on the Zometa 🙂 I am…[Read more]

]]> 8b50b7e192a813977e67b74e3a9bc699 HelenPage replied to the topic Starting a discussion... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-a-discussion/page/2/#post-84295 Wed, 06 Jul 2011 09:05:50 +0100 Thanks Eve. Mum has text me this morning to say that her aches and pains seem to have subsided and her temperature has returned to normal 🙂 I will go on other sites to ask my questions in future.

Thank you

Helen

]]> b915f25d37180593f49753f22fb11d8a HelenPage replied to the topic Starting a discussion... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-a-discussion/page/2/#post-84293 Tue, 05 Jul 2011 22:06:26 +0100 Me again. Mum just got back from a&e as her temperature went up to 38.2. The dr advised that she should do this. They have just advised her to take paracetamol and drink lots. Did the zometa cause you to have a temperature?Sorry to keep asking so many questions! Best wishes Helen

]]> 28556d91166fc203422bc9a911f89825 HelenPage replied to the topic Starting a discussion... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-a-discussion/page/2/#post-84292 Tue, 05 Jul 2011 20:56:40 +0100 Thanks so much Tom and good to hear that the symptoms are short lived. All the best for tomorrow. Are you on the same trial as mum? If so how are you finding it? Best wishes Helen

]]> 38c56b33f05051cbda6da3bc61e84cb1 HelenPage replied to the topic Starting a discussion... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-a-discussion/page/2/#post-84290 Tue, 05 Jul 2011 17:46:40 +0100 Hi there everyone.
My mum (64) was diagnosed with Myeloma 3 weeks ago and has just started on the myeloma XI trial. She has been picked for the RCD trial.
She had her first lot of Zometa yesterday and unfortunately, today she is experiencing aches on her joints all over her body. Is this normal and how long will it last?

Thanks in advance

Helen

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