Myeloma Forum | Nick Carrington | Activity https://forum.myeloma.org.uk/members/hikernick/activity/ Activity feed for Nick Carrington. Thu, 09 Apr 2026 00:11:16 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 71fbbd553560e0307cb855542064450b Nick Carrington replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/3/#post-116084 Wed, 18 Jun 2014 21:35:31 +0100 To put the other side of the coin, I think I had exactly 2 months in a smouldering status, then my PP level went over 30, which, combined with some lytic lesions in my skull, led to treatment starting. 8 1/2 months and 2 different chemo regimes later I’m almost back down low enough to consider stem cell harvest. As someone said higher up, every…[Read more]

]]> 675168f343b72b9407c0b96fafbddfa1 Nick Carrington replied to the topic Friendly reminder in the forum Newcomers http://www.myeloma.org.uk/forums/topic/friendly-reminder/#post-115853 Sun, 08 Jun 2014 22:45:07 +0100 There’s a community here which is obviously long-established. Unfortunately it doesn’t seem to welcome newcomers, which is the reason I gave up posting. I hope it will prove useful to some. You need a thick skin to persevere, though.

]]> cddfd09278f27b0245ff86b4324dae97 Nick Carrington replied to the topic New member in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-member-2/page/2/#post-112069 Fri, 17 Jan 2014 17:17:07 +0000 Have a great weekend together!

]]> 2584b48141bd7bfdd9c00077a3349d47 Nick Carrington replied to the topic New member in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-member-2/page/2/#post-111902 Sun, 12 Jan 2014 11:58:29 +0000 The infosheet is here: http://www.myeloma.org.uk/information/myeloma-uk-publications-list/living-well-with-myeloma/diet-and-nutrition-infosheet/

Nick

]]> a4a7b7573028707d8e807de650ecfa4f Nick Carrington replied to the topic New member in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-member-2/page/2/#post-111899 Sun, 12 Jan 2014 11:31:35 +0000 Andy,

I don’t think I’m playing Russsian roulette with my health, and I’m not sure that kind of emotive language is helpful. I don’t tend to eat much in the way of seafood etc. that carries high risk anyway. I just wanted to put the other side of the coin for Sarah who had been warned about a great long list of foods, and wanted to know if others…[Read more]

]]> d55d593fbdbb0bc6a7225676571626df Nick Carrington replied to the topic New member in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-member-2/#post-111892 Sat, 11 Jan 2014 22:52:01 +0000 Sarah,

We got all the scary food advice as well. I’ve mostly ignored it and carried on eating what I normally eat. I’ve found my skin is a little bit more sensitive than normal, and my digestion has been put out of whack by the drugs, but I don’t think I’ve suffered from eating any particular foods or from any infections acquired during cooking…[Read more]

]]> f0ff7cc34e7e5b03291cfeab25fee2f3 Nick Carrington replied to the topic New member in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-member-2/#post-111752 Tue, 07 Jan 2014 14:21:31 +0000 From my point of view going through chemo at present I would say psychological support is as important as or more important than physical. Physical help is easily measured – if he can’t do something, you may have to help. I personally can do most things albeit a bit more slowly and with attendant fatigue so I try to get on and do so. Encourage M…[Read more]

]]> e811f0e718941a5c03c36a2bec6ac4cd Nick Carrington replied to the topic Hi in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-3/#post-111495 Tue, 17 Dec 2013 15:57:54 +0000 Ah, thanks Ted. You’ll notice I didn’t say I don’t know what Light Chains are, just that I don’t know what my figures are – not quite the same thing. In fact I’m not sure if they’re being measured or not (Edit: from reading the leaflet on the test available here, I’m pretty sure they’re not, but also that it’s not so relevant for me anyway with my…[Read more]

]]> ec27255c5f074160ae2cc36067b0225e Nick Carrington replied to the topic Hi in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-3/#post-111419 Sun, 15 Dec 2013 20:25:51 +0000 Good luck to Colin, sounds like he has had a tough time but is in a good place now. Unfortunately I’m still learning the terminology, no idea what my light chains value is or even what pps is, but hopefully not something I need to worry about or they would have told me? What do I need to ask….?

SCT has been presented to me not exactly as a fait…[Read more]

]]> 1be1ded52c7ea43b90e5861d6a18bf44 Nick Carrington replied to the topic Hi in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-3/#post-111400 Sat, 14 Dec 2013 22:08:29 +0000 I’m hoping so too, Harmony. Stinks, doesn’t it! 🙁

]]> 1bf0357545517e970dc1712f0764facf Nick Carrington replied to the topic Hi in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-3/#post-111377 Thu, 12 Dec 2013 21:13:07 +0000 Thanks for the welcome, Mavis. What made you decide against SCT – was it the high intensity chemo?

I’m not sure how long I could expect to stay stable after just the CDT – my paraprotein levels were shooting up before I started on the chemo – around 3 per month. When it got to 31 the decision was taken out of my hands, more or less.

I was…[Read more]

]]> 44919368c841805530d2014f2ed2ed72 Nick Carrington replied to the topic A 'get rid of these peasents' rant in the forum Off topic http://www.myeloma.org.uk/forums/topic/a-get-rid-of-these-peasents-rant/#post-111359 Thu, 12 Dec 2013 11:39:01 +0000 A captcha on the signup form will trap a good proportion of them as they are signed up by bots (automated programs), or by humans from other cultures who don’t necessarily understand the content of the site they’re joining up on. So a question like “What does the first M in MM stand for?” or something along those lines would probably filter most…[Read more]

]]> 04c8a14865aa8c8c1511dc1bcb7932ff Nick Carrington started the topic Hi in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-3/ Thu, 12 Dec 2013 11:33:28 +0000 Hi, Nick here.

Diagnosed in June – initially hoped it would just be MGUS, but that soon escalated – smouldering between then and October, started CDT on 25th October, so on my 3rd cycle at the moment. Guess I’ll be in for SCT some time between Feb and April if I respond well (I’m 56).

Not much else to say really, look forward to reading more of…[Read more]

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