Myeloma Forum | hilitli | Activity https://forum.myeloma.org.uk/members/hilitli/activity/ Activity feed for hilitli. Tue, 05 May 2026 06:18:56 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 2f54edeb60a24f6f2788496a4ddd1e37 hilitli replied to the topic multiple myeloma relapsed - treat with Velcade need your advise in the forum Treatment http://www.myeloma.org.uk/forums/topic/multiple-myeloma-relapsed-treat-with-velcade-need-your-advise/#post-115305 Sun, 25 May 2014 11:54:49 +0100 Hello Friend,

Unfortunately, after 8 weeks of Velcade, the neuropathy become very bad to me mom’s legs and the doctor must stop the treatment.

She move to Revlimid, 50 milligram for 2 month (with few days off in between). My mom fells very bad with Revlimid, she says it is even bad than Thalidomide (the side effects).

1) Do you have any e…[Read more]

]]> d98e00a3b40aa73c345e61983d29b2c8 hilitli replied to the topic multiple myeloma relapsed - treat with Velcade need your advise in the forum Treatment http://www.myeloma.org.uk/forums/topic/multiple-myeloma-relapsed-treat-with-velcade-need-your-advise/#post-112960 Fri, 14 Feb 2014 19:17:05 +0000 Thank you very much David. Wishing you the best

 

]]> a242941bf141e58d316be2c49c756015 hilitli started the topic multiple myeloma relapsed - treat with Velcade need your advise in the forum Treatment http://www.myeloma.org.uk/forums/topic/multiple-myeloma-relapsed-treat-with-velcade-need-your-advise/ Fri, 14 Feb 2014 13:56:22 +0000 Hello

My Mom is 73, diagnosed multiple myeloma in 2014.

She was treated with: V.A.D + steroid+ radiation spinal column )D2 after that she got Thalidomide + steroid for 5 years and aredia for 3 years. She suffers from neuropathy. Osteoporosis and Hypothyroidism. After that remission for 5 years. Last month they did blood test & CT pet and found…[Read more]

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