Myeloma Forum | hl | Activity

hl replied to the topic CVD in the forum General

Wed, 20 Aug 2014 17:30:08 +0100

Hi Carole, you did make me laugh! Your description of swallowing a melon whole is spot on. Couldn’t believe it; one day a shirt fitted and another day it didn’t. My husband, John, has just come out of hospital following admission for an infection and starts the second cycle next week. They gave him an extra week break because of the side effe…[Read more]

hl replied to the topic It's lonely, feel like we don't know in the forum General

Wed, 20 Aug 2014 17:21:20 +0100

Hi John, we’ve been going through the process for over four years now, and to be honest we feel we’re in the same boat as you still. I don’t know why some Dr’s prefer to keep you in the dark rather than being honest about the process; maybe they just don’t know. We’re often told there are lots of options to try, so keep your pecker up. My hu…[Read more]

hl started the topic CVD in the forum General

Sun, 17 Aug 2014 18:26:28 +0100

Hi, my husband’s myeloma is back and he was asked to join the MUK five trial. He was randomly selected for the Cyclosphomene, Velcade and Dexamethosone (CVD) group and has completed his first cycle. I don’t think this combination is new, but he didn’t get selected for the carfilzomib. I’d like to know how folks are coping with this group of med…[Read more]

hl started the topic CVD in the forum Side-effects

Sun, 17 Aug 2014 04:26:51 +0100

Hi, my husband’s myeloma is back and he was asked to join the MUK five trial. He was randomly selected for the Cyclosphomene, Velcade and Dexamethosone (CVD) group and has completed his first cycle. I’d like to know how folks are coping with this group of meds? My husband couldn’t sleep, he was hyper all the time, bloated stomach with severe sw…[Read more]