Hi John, we’ve been going through the process for over four years now, and to be honest we feel we’re in the same boat as you still. I don’t know why some Dr’s prefer to keep you in the dark rather than being honest about the process; maybe they just don’t know. We’re often told there are lots of options to try, so keep your pecker up. My husband had tablet form to start with after it took nine months to diagnose. His vertebrae suffered with the delay in diagnosis but once they got the myeloma under control he was able to have a vertebroplasty procedure (cement inserted into the spine) to strengthen it. (Not sure if ‘vertebroplasty’ is another name for ‘kyloplasty’? If it is, it adds to the confusion doesn’t it; one Dr. calls it one thing and another Dr. will call it something else). Anyway the vertebroplasty alleviated a lot of pain and also strengthened the spine. I recommend you read up as much as you can and then if you go to clinic appointments with your Dad you can raise questions at the time. It’s important to remember they cannot cure myeloma, only treat it, everyone is different, but you can see from this website treatments are getting better all the time and people are living longer with the disease. Best wishes H
